15/10/2026
💜 October is Rett Syndrome Awareness Month 💜
Today, we’re sharing Chloe’s story, as told by her beautiful mum, Bethan.
Rett syndrome is a devastating neurological condition that primarily affects girls. For Chloe, it impacts her ability to walk, talk, eat, breathe, smile and even cry. She lives with seizures, chronic lung disease and thermoregulatory dysfunction. Her bedroom is essentially a hospital ward, and the condition impacts every part of her family’s lives.
But amongst the challenges, there is so much love. 💜 Chloe is surrounded by incredible nurses and support workers who bring fun, laughter and joy to her days while providing the care she needs to help minimise hospital stays. Her family is also incredibly grateful for the love and support of the people around them.
Life with Rett syndrome is hard, heartbreaking and relentless. But Chloe deserves a life filled with love, laughter, experiences and memories, and her family is determined to make sure she lives her best life every single day.
Rett syndrome may have changed their lives, but it will never take away their love, their fight or their determination to give Chloe the very best life possible.
This Rett Syndrome Awareness Month, we stand with Chloe and her family in raising awareness, sharing their story and reminding everyone of the importance of compassionate, individualised support.