Epilepsy Tasmania

Epilepsy Tasmania Not-for-profit organisation providing education, services and support to Tasmanians with epilepsy What is Epilepsy? Epilepsy is not contagious.

Epilepsy Tasmania has been supporting Tasmanians with epilepsy
for over 45 years.

20,000 Tasmanians have epilepsy and this impacts around 80,000 of their family members, colleagues and friends - that’s one-fifth of Tasmania’s population! Epilepsy Tasmania is a not-for-profit community organisation improving the quality of life of Tasmanians with epilepsy, and those around them, through education

, coordination and support. Even in Tasmania, epilepsy still has a stigma that causes hurt and frustration: more than half have experienced discrimination as a result of their condition. If you have been diagnosed with epilepsy, Epilepsy Tasmania can help you:
- Communicate better with your medical specialist.
- Create an Epilepsy Friendly Workplace.
- Make your school Epilepsy Smart.
- Teach your family seizure first aid and medication administration.
- Establish valuable support systems.
- Live well with epilepsy. Epilepsy is a common brain condition that takes the form of recurring seizures. Epilepsy is not due to the effects of drugs or alcohol, although some onlookers may assume this is the case. Anyone can develop epilepsy and it can develop at any age.

1 in 25 Australians will develop epilepsy during their life.

1 in 10 will experience a seizure during their life.

🌟 Excited to join the fun! Epilepsy Tasmania will be at the free Community Play Date Thursday 11 June, 10:00–11:30am at ...
04/06/2026

🌟 Excited to join the fun!
Epilepsy Tasmania will be at the free Community Play Date Thursday 11 June, 10:00–11:30am at Kids’ Space, Hope Discovery Family Centre, Door of Hope, Glen Dhu Street, Launceston
We'll have some fun activities for the children, together with many other organisations, so come along. We’d love to chat and celebrate International Day of Play with you. The theme for 2026 is Protect Play, Protect Childhood 🧩✨

🚨 LAST DAY TO HAVE YOUR SAY 🚨Submissions to the Senate Inquiry into Epilepsy close TODAY 15 May 2026!This is your chance...
15/05/2026

🚨 LAST DAY TO HAVE YOUR SAY 🚨
Submissions to the Senate Inquiry into Epilepsy close TODAY 15 May 2026!
This is your chance to help shine a light on:
🟣 Delays in diagnosis
🟣 Gaps in support
🟣 NDIS challenges
🟣 Medication impacts
🟣 The real impact epilepsy has on everyday lives
Every submission is read.
Every story matters.
Let your voice be heard.
Make epilepsy impossible to ignore.
Share YOUR story!
📩 Submit today:

https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

🚨 Don’t Miss this Pivotal Moment for Epilepsy in Australia 🚨Submissions close tomorrow — Friday, 15 May 2026.This is a r...
13/05/2026

🚨 Don’t Miss this Pivotal Moment for Epilepsy in Australia 🚨

Submissions close tomorrow — Friday, 15 May 2026.

This is a rare and meaningful opportunity to help shape how epilepsy is understood, supported, and prioritised in Australia.

Every submission is read and counted and helps build a clearer picture of what people are experiencing:

🟣 The real stories
🟣 The daily challenges
🟣 The delays in diagnosis
🟣 The gaps in support
🟣 The impact on families, work, and quality of life
🟣 Where the system is falling short
🟣 What needs to change
🟣 NDIS shortfalls
🟣 Medication impacts

The Senate wants to hear YOUR story.

It is an official Senate Inquiry where every submission is read and counted.

If epilepsy has affected you, your family, your work, or your community — this is your chance to speak up and help create change.

What to do: For full details and information on how to structure your story visit https://epilepsytasmania.org.au/

Ready to submit? Email your story directly to the Senate by visiting
https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

Don't miss this opportunity to make epilepsy impossible to ignore.


ONLY 2 DAYS TO GO! Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026. This is a rare and me...
13/05/2026

ONLY 2 DAYS TO GO!

Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026.
This is a rare and meaningful opportunity to shape how epilepsy is understood, supported, and prioritised in Australia.
Every submission is read and counted and helps build a clearer picture of what people are experiencing:

🟣 The real stories
🟣 The daily challenges
🟣 The delays in diagnosis
🟣 The gaps in support
🟣 The impact on families, work and quality of life
🟣 Where the system is falling short
🟣 What needs to change
🟣 NDIS shortfalls
🟣 Medication impacts

The Senate wants to hear YOUR story

❌This is NOT a petition or survey. It is an official inquiry where every submission is read and counted.

👉 What to do: For full details and information on how to structure your story visit https://epilepsytasmania.org.au/
📧 Ready to submit? Email your story directly to the Senate by visiting https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia
Don't miss this opportunity to make epilepsy impossible to ignore.

ONLY 4 DAYS TO GO! 4️⃣Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026. This is a rare opp...
12/05/2026

ONLY 4 DAYS TO GO! 4️⃣

Submissions to the Senate Inquiry into Epilepsy close this Friday, 15 May 2026.

This is a rare opportunity to influence how epilepsy is understood, supported, and prioritised in Australia.

Every submission helps build a clearer picture of:

▪️ What people are experiencing
▪️ Where the system is falling short
▪️ What needs to change

The Senate wants to hear YOUR story—the real impacts of diagnosis, medication, NDIS, work, family, and life

❌ This is NOT a petition or survey. It is an official inquiry where every submission is read and counted.

👉 What to do: For full details and information on how to structure your story visit https://epilepsytasmania.org.au/
📧 Ready to submit? Email your story directly to the Senate by visiting https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia

Don't miss this opportunity to make epilepsy impossible to ignore.

Checking in at the Genetic Epilepsy Team Australia (GETA) Conference.A room full of families, clinicians and researchers...
01/05/2026

Checking in at the Genetic Epilepsy Team Australia (GETA) Conference.

A room full of families, clinicians and researchers…
yet still a system that struggles to recognise them.

If we can’t see people, we can’t support them.

That’s why the Senate Inquiry into epilepsy matters.
It’s a chance to bring visibility, coordination and real change for people living with Developmental and Epileptic Encephalopathies (DEE) and other epilepsies.

👉 https://epilepsytasmania.org.au/senateinquiry/

Let’s not make this community “too hard to find.”

22/04/2026

Plushie Competition Winners Announced! 🎉
A huge congratulations to Jessica and Mollie for taking out the win in our "Name the Plushie" competition! 🧸💜
They will each receive a sloth and owl plushie which we hope bring lots of joy and smiles.
Jessica suggested the sloth name and Mollie the owl name BUT for the big reveal you will need to check out the video! 👀🎥💜
Thank you to everyone who participated.
We loved seeing all the creativity and joy that went into every entry
Stay tuned for more fun ahead for our plushie family!
To welcome your own special purple plushie to your family go to https://myimpact.epilepsytasmania.org.au/shop
Sloth & Owl and their furry friends are eagerly waiting new homes.

11/04/2026

Opportunities like this don’t come around often.
A national chance to shape how epilepsy is understood, supported, and funded in Australia.
But it only works if people take part.
So if you’ve been thinking about it — this is your moment.
Start small.
Write something down.
And submit it.
Because your voice could help shape what comes next.
🔗 Start your submission: https://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/EpilepsyinAustralia
📧 We’re here to support you: [email protected]

Address

Unit 10/31 Thistle Street
Launceston, TAS
7250

Opening Hours

Monday 8am - 4pm
Tuesday 8am - 4pm
Wednesday 8am - 4pm
Thursday 8am - 4pm

Telephone

+61363446881

Website

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