Lithgow LGA Chronic illness and Autoimmune support network

Lithgow LGA Chronic illness and Autoimmune support network This page is for anyone in the Lithgow LGA, with a chronic illness or autoimmune disease that are looking for people going through the similar journeys.

This a page where you can connect, make friendships and get support for every stage of their journey.

This is also massive news in Australia for a skin cancer vaccine..How an Australian scientist led a cancer vaccine break...
21/08/2026

This is also massive news in Australia for a skin cancer vaccine..

How an Australian scientist led a cancer vaccine breakthrough

Former Australian of the Year Georgina Long was the medical lead on the trial, the results of which have been described as “a pivotal moment for cancer”.

21/08/2026

Could mean alot for severe lupus paitents especially in regional areas.

💜 BIG NEWS FOR AUSTRALIANS LIVING WITH LUPUS 💜

The July 2026 PBAC outcomes have been released — and subcutaneous anifrolumab (Saphnelo®) has been RECOMMENDED for PBS listing.

The Pharmaceutical Benefits Advisory Committee has recommended PBS subsidy for a pre-filled pen auto-injector, allowing eligible adults with severe systemic lupus erythematosus (SLE) and high disease activity despite standard care to receive anifrolumab by weekly subcutaneous injection.

This is important because anifrolumab is currently administered as an intravenous infusion every four weeks.

A positive PBAC recommendation does not mean the medicine is available on the PBS immediately. There are still further government and listing processes to be completed before it becomes available.

But this is a major step forward.

For people living with lupus, treatment access is not just about whether a medicine exists. It is also about how treatment fits into real life — appointments, travel, work, family, fatigue, illness and the enormous burden that can come with ongoing healthcare.

Greater treatment choice matters.

Lupus Voice Australia will continue following the PBS listing process closely and will share updates as they happen.

💜 Today, though, we celebrate a very positive step for our lupus community.

Sorry for the late post but here is the weekly illness Sjrogrens disease.Sjogren's disease is a relatively common condit...
20/08/2026

Sorry for the late post but here is the weekly illness Sjrogrens disease.
Sjogren's disease is a relatively common condition that mainly affects the eyes and salivary glands, but can affect different parts of the body.

Sjogren's disease is an autoimmune condition, which means it occurs as a result of a malfunctioning immune system.

Your immune system is designed to identify foreign bodies (such as bacteria and viruses) and attack them to keep you healthy. However, in the case of Sjogren's disease your immune system attacks the glands that make tears and saliva. This prevents the glands from working properly and causes dryness of the mouth, eyes or other tissues.

The condition may progress slowly, so the typical symptoms of dry eyes and mouth may take years to show. However, rapid onset can also occur. Symptoms can be mild, moderate or severe, and the progression is often unpredictable.

Women are most commonly affected by Sjogren's disease. There is no cure, but it can be managed effectively.

In rare cases, organs such as the liver and kidneys may be involved, which can increase the severity of the condition.

In a small number of people, Sjogren's disease may be associated with lymphoma (cancer of the lymph glands). Better health channel

The reason I have highlighted this disease is that I have suffered it for a number of years, spent money on scans, specialists and botox. My sjrogrens causes me to have severe paratoid infections that often ended me up in hospital. This is extremely painful and causes alot of face swelling, jaw pain, trouble eating and damage to jaw. I have constant infections on both sides, last year I went to another ENT who suggested trying a regular operation where they go into paratoid glands via your inside cheek with a camera, clean out the junk, put in meds and then do botox. I have to have this every six months and tomorrow is this year's. To have this operation I have to travel to RPA and stay at a hotel overnight and then go to the Chris Obrien Lifehouse and undergo surgery.

This disease is debilitating and painful, hopefully one day they will have a cure.

If you have any questions just ask.

Hope you are all doing well take care 🙂 😊

So this week I wanted to focus on one of my main illnesses which is Lupus SLE. Lupus is a systemic autoimmune disease th...
12/08/2026

So this week I wanted to focus on one of my main illnesses which is Lupus SLE. Lupus is a systemic autoimmune disease that causes widespread imflammation throughout the body causing damage to joints, skin, organs, hair, nails, gut, etc. It is a chronic illness that has no cure but symptoms are managed with steroids and immune suppressants which all bring there own side effects like weight gain, bone degeneration.

Systemic lupus erythematosus (SLE) is a long-term autoimmune disease. The body's immune system attacks healthy tissues by mistake. This causes swelling and damage in different body parts, like the skin, joints, kidneys, and brain.

Extreme tiredness
Pain and swollen joints
Red rash on the face shaped like a butterfly over the nose and cheeks
Sores in the mouth or nose
Fever with no clear cause
Hair loss
Skin getting worse after being in the sun

Genes: Runs in families, but one single gene does not cause it.
Hormones: Happens much more often in women than men.
Environment: Sunlight, stress, smoking, or certain infections can trigger flare-ups

Medicines: Doctors use hydroxychloroquine, steroids, or other drugs to calm the immune system.
Sun safety: Wear hats, long sleeves, and high-SPF sunscreen.
Healthy habits: Get enough rest, eat good food, and do light exercise.

Hey guys I can't do a group chat on Facebook as they have changed there rules. So i jave set it up on whats app, it is c...
17/07/2026

Hey guys I can't do a group chat on Facebook as they have changed there rules. So i jave set it up on whats app, it is completly safe and private so please create a profile and join the chat so far only have one person.

Please feel free to message me below.

Otherwise join us at
https://chat.whatsapp.com/KVcNa870dnj02FPfcLipzb

16/07/2026

So after leaving the poll up for the last week, it is clear to see people want a group chat so I have made a whats app chateoom. The links have been shared so please come join me and in the future we may be able to create in person meetings.

Thanks

16/07/2026

New group chat

Follow this link to join my WhatsApp group:

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Portland
Lithgow, NSW
2847

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+61430117193

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