22q Minded

22q Minded Psychological knowledge about 22q should not stay inside a clinic. Dr Linda Campbell and Dr Sasja Duijff
www.22qminded.com Dr Linda Campbell & Dr Sasja Duijff

Webinars, programmes and community for families and professionals worldwide, whether your child is 4 or 44.

Joining Föreningen 22q11's family day in Sweden by video call this weekend, the conversation kept circling back to the s...
07/09/2026

Joining Föreningen 22q11's family day in Sweden by video call this weekend, the conversation kept circling back to the same question: what's the function of this behaviour? Receptive language and comprehension. Anxiety, depression, and fatigue. Different topics, same underlying question.

The questions don't change much from country to country. A child who understands less than they seem to. A teenager whose fatigue looks like laziness until you know what's underneath it. Anxiety that shows up as something else entirely.

What does change is the relief on someone's face when they realise they're not explaining themselves from scratch, that this is a known picture, not just their own family's.

If you're not able to be in a room like that yourself, our live Q&A on 13 September is a version of the same thing: an actual conversation, not just a recording.

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Next weekend, Linda and Sasja are live for a Q&A on Calming Big Reactions. What would you actually want to ask them?Drop...
04/09/2026

Next weekend, Linda and Sasja are live for a Q&A on Calming Big Reactions. What would you actually want to ask them?

Drop it in the comments, or send it through directly.

The full webinar is available on demand now on our website, watch whenever suits you. The live Q&A runs 13 September for anyone who'd like to join in real time.

Our free guide, What's Really Happening in a Big Reaction, is also waiting in our newsletter if you haven't grabbed it yet. Click here to sign up: https://www.22qminded.com/newsletter/

For a link to buy your copy of the webinar and/or sign up for the live Q&A, go to our website: https://www.22qminded.com/product/webinar-calming-big-reactions/

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Most of what's written about big reactions in 22q is written about children. What about everyone else?Overwhelm in adult...
02/09/2026

Most of what's written about big reactions in 22q is written about children. What about everyone else?

Overwhelm in adults with 22q doesn't often erupt. It builds, quietly, and it's easy to miss because it doesn't look like a reaction at all. A quiet week. Plans cancelled. "I'm fine" on repeat, said often enough that people stop hearing it.

None of that looks like a big reaction from outside. It still is one. The same threshold applies in adulthood as it does in childhood, it just wears a different shape.

Join us for our live Q&A on the 13th of September to discuss Calming Big Reactions. Check our website for more information, link in the comment section.

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A reaction that comes out of nowhere, far bigger than whatever just happened, usually isn't about that moment on its own...
31/08/2026

A reaction that comes out of nowhere, far bigger than whatever just happened, usually isn't about that moment on its own.

It's about everything that moment landed on top of: a rough night's sleep, a change in routine, an appointment earlier in the day. None of that shows up from outside. All anyone sees is the reaction.

We call this detective thinking. Instead of asking why this is happening again, ask what today has already asked of them. A reaction rarely starts in the moment it appears, it usually starts earlier, in whatever the day already demanded.

We've put the rest of this into a short, free guide, What's Really Happening in a Big Reaction. Five minutes to read.

Sign up to our newsletter and it's yours. Already subscribed? It's already sitting in your inbox or sign up here https://www.22qminded.com/newsletter/

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In two weeks, we're live answering your questions about big reactions, and we thought you might want to know a bit more ...
28/08/2026

In two weeks, we're live answering your questions about big reactions, and we thought you might want to know a bit more about who we actually are.

We're Linda Campbell and Sasja Duijff, psychologists with almost fifty years of combined experience in 22q, and co-founders of 22qMinded. Linda's based in Australia, Sasja's in the Netherlands, which is exactly why there are two live Q&A times on the day, one in each of our timezones, so wherever you're reading this from, there's a slot that actually works for you.

We've introduced ourselves here before, but with the live Q&A two weeks out, it felt worth doing properly again, so you know exactly who you'll be talking to on the day.

Preorder now, or catch the recording whenever suits. Write 'Big Reactions' in the comment section for a link.

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28/08/2026

A calm surface doesn’t mean nothing’s happening underneath. Water can look still and be moving the whole time.

Co-regulation works a bit like that. A steady voice or a steady body nearby doesn’t erase what someone’s feeling. It just gives their nervous system something calm to borrow from, until they can find their own way back to it.

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Big reactions in 22q often build for longer than they appear to from outside. Learning to notice that build-up, what we ...
27/08/2026

Big reactions in 22q often build for longer than they appear to from outside. Learning to notice that build-up, what we call detective thinking, may open up more room in the minutes before things peak, rather than only after.

Calming Big Reactions is our new webinar, looking at why these reactions happen more easily in 22q (it's biology, not a discipline problem), how to read the early signs, and what tends to help once things are already big.

The recording is available to preorder now; watch whenever suits your week. A live Q&A also runs on 13 September if you'd like to bring your own questions.

Subtitles for the recording are available for most languages, on request.

Follow us for more on 22q. See the link in the comment section for more information.

Why can a big feeling be so much harder to come back from, for someone with 22q, at any age?Part of it is universal, the...
25/08/2026

Why can a big feeling be so much harder to come back from, for someone with 22q, at any age?

Part of it is universal, the thinking brain isn't fully online until the mid-twenties in anyone. Part of it is more specific. Early medical experiences, hearing that works differently, communication that takes real effort even when it doesn't look like it. And because someone with 22q can often look entirely capable, the people around them tend to expect more than the system can currently manage, at school, at work, in a conversation that looks easier than it is.

None of this means regulation isn't possible. It means it takes more scaffolding than it looks like from outside, at every age.

We're building on this in our upcoming webinar, Calming Big Reactions, more soon.

Follow us for more on 22q. Check the link in the comments to preorder the webinar and to sign up for the live Q&A (13th of September!)

In three weeks, we are live for a Q&A on Calming Big Reactions, the moment things get big and what actually helps.Before...
24/08/2026

In three weeks, we are live for a Q&A on Calming Big Reactions, the moment things get big and what actually helps.

Before then, we want to hear from you. What's the question you'd actually want answered, the one that comes up in your house specifically, not the general version?

Drop it in the comments, or send it through directly if you'd rather keep it private. We'll bring the real ones into the session, live.

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There's a version of this some parents carry quietly, the sense that the real relationship with their child is somehow o...
20/08/2026

There's a version of this some parents carry quietly, the sense that the real relationship with their child is somehow on pause until the medical side settles down. Once the appointments ease off. Once things feel more certain. Then we can really connect.

It doesn't actually work that way. Swipe through for where that connection is genuinely being built, often in the exact moments that feel the least like bonding at the time.

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