Warrior Princess Luna

Warrior Princess Luna Processing the life of my complex daughter by writing to her in diary entries.

10/06/2026

We have been quiet, but Luna is happy healthy & thriving! 🥺

Dear Luna, How are we almost half way through 2026 already? This year has been really good for us & especially you, you ...
20/05/2026

Dear Luna,

How are we almost half way through 2026 already?

This year has been really good for us & especially you, you are the healthiest you have ever been, we have had multiple staycations now & unlocked a new Luna personality, Luna the poolside baby!

The only health issues you have faced is your poor ears have been discharging & causing your skin to have a pretty horrible reaction which we had to advocate hard today for new grommets to be placed, this will be your 3rd set now.

You failed another hearing test today, with little to no engagement with sound.

The ENT specialist spoke about taking you under & doing a deep clean, grommets & another more in-depth hearing test to see if your hearing has improved. This test will also show us if cochlear implants will need to be our next route in your hearing journey. Which was heavy news to hear as we had hopes your hearing had improved. But time will tell if this is the road we will have to take.

We also got to catch up with 2 friends today while at QCH & seeing how much you girls have grown is so surreal! Where did our babies go?!

Overall you have been your happy bubbly self when you don’t have a belly ache. You have been having more tastes of food & enjoying it, also watching us eat so trying to find a speech therapist who does oral feeding therapy is one of our high priorities atm. You have also been trying to slug on the ground!

We are still in the ART process for NDIS, but we have made really good progress, I’m still not ready to publicly discuss this until it’s all sorted but know things seem to be on our side!! 🎉

Mummy has also just been pre approved for a home loan to buy us a bigger house! Which is such a surreal feeling as 6 months ago I was feeling extremely stuck & helpless. Hard work & persistence does pay off eventually!

We have made some changes in Forest’s world & that seems to have helped him as well, while daddy has been holding down the fort while mummy is at work. We have been busy but we have been good. The closest to normal our life has been since you entered this world which is honestly a weird feeling, but it’s nice! And it’s nice to see all our hard work paying off!

Your little smiles & excitement to see me every morning truely lights up my world.

I’m always so lucky you chose me to be your mum!

Love you always,
Mum
💜

Dear Luna, It’s March 2026 & the year is flying by already so fast. We celebrated your 3rd heart anniversary, crazy to t...
08/03/2026

Dear Luna,

It’s March 2026 & the year is flying by already so fast.

We celebrated your 3rd heart anniversary, crazy to think how far you have come since then, from being told you wouldn’t make it to seeing you here today full of life.

You started ECDP which you have been loving playing with you little friends, honestly brought me to tears dropping you off the first day & it feeling the closest thing to normal your whole life. Although you did almost choke on a sticky dot your first day, as you are sooo orally stimulated everything goes in your mouth & in the past month you have almost choked on 3 different things, 2 of them being your scrunchies. Forest has been an incredible big brother & pulled them from your mouth as of course it happens when myself or daddy have been busy in a different room!

You have been a little unwell the past week as with going to “school” comes with germs but you have been handling it like the little warrior you are.

You have been getting sooo loud. Like 2am raspberries that wake up the whole house or screeching so loud to get someone’s attention, sleep has been challenging as we all still sleep in the same bedroom but you are happy & that’s all that matters 😂

We have an NDIS update which I won’t be discussing until we have everything in writing but it’s looking like good news! Praying they don’t fall short of it & they stick to their word.

You have started smiling when you see myself or daddy’s faces & my god it melts my bloody heart. It’s truely the sweetest feeling in the world.

Your gut/bowels have not been happy & while we have tried to introduce more blended food it has backed you up giving you extreme discomfort. Hypotonia really is a fu***ng bitch.

You have started getting up on all fours & rocking!! 😭😭 I don’t think you’ll be crawling anytime soon but still watching you learn new skills truely is incredible.

You are OBSESSED with hair, no one is safe, pulling, eating, grabbing, if it’s available you bet it’s in your hands or mouth.

As always you make us smile everyday with your beautiful little quirks & personality & show us just how lucky we are to be your mama & daddy.

Keep shining bright little moon

Love always,
Mum
💜

09/02/2026

Honestly how are we in February already?!

Time has been going so quick since returning to work full time.

I have been loving being back at work & Cameron has been enjoying being a stay at home dad.

But switching rolls has been hard, especially when Luna was in hospital unwell with a UTI, but Cameron did so well & I’m so proud of him.

So we are here, quiet because life’s just so busy but we are getting there!

I hope everyone is having a good new year so far & life is being kind to you! 💜💜💜

Dear Luna, It’s been a little while since I wrote and so much has happened. Mummy has returned to work full time & daddy...
28/01/2026

Dear Luna,

It’s been a little while since I wrote and so much has happened.

Mummy has returned to work full time & daddy is now your full time stay at home carer, you have both been loving spending time together, while I have enjoyed returning to work in a kitchen as Head Chef doing what I am equally passionate about.

It’s been a big change & I have missed you & your brother so much already but it’s also been nice to have a piece of my old life back as well. Whilst watching your bond with daddy grow stronger everyday warms my heart.

Daddy has done an incredible job navigating this new world & trying to get his head around all of your appointments, team members & his new role. I’m so proud of him.

He even managed a short hospital admission with you while you were unwell with a UTI. It has been so long since you have had one but unfortunately this one really knocked you around & you had a really rough couple of weeks but watching you slowing come back to your cheeky happy self fills my heart with joy. Being at work while you were unwell was extremely hard for me but I knew daddy had you, just my mama heart tugged.

This year has already been full of so many changes.

I closed my business down last year & used the money to make a sensory room for you & your brother which you guys seem to be loving! I would give you both the world if I could. Trying to turn our home into a more function space has been an on going job & it’s starting to get there slowly!

Your new bed will hopefully arrive soon too & you’ll go into your big medical bed! Don’t ask me where it’s going to fit, we are working on that!

Next week you start ECDP, where you’ll go all by yourself (with educators) for 2 hours twice a week, I don’t think I’m ready for this! When did you get so grown?!

Your brother started kindy this year & he has had his own challenges while we navigate a diagnosis for him before school, hopefully. It’s like Déjà vu asking for help & being told to navigate the system or wait until he’s at school. Which frustrates me as he’s already having some extreme behaviours & struggling so waiting another 12 months just doesn’t seem plausible to me.

And while we navigate his diagnosis it has also made me learn a lot about my own mind & why it potentially works the way it does.

We are only a month into 2026 but our little family has already achieved so much & im so incredibly proud of us all.

I’ll endeavour to post monthly updates, work has kept me so busy & time just seems to be getting away so quickly!

Never forget how incredible you are little moon

Love always,
Mum
💜

24/12/2025

Grateful for how far Luna has come but days like today are still so heavy.

To anyone carrying extra weight today I see you. 💜💜

✨💜 Luna turns 3 💜✨ If you told me three years ago we would be here today sitting at a park enjoying this moment I don’t ...
16/12/2025

✨💜 Luna turns 3 💜✨

If you told me three years ago we would be here today sitting at a park enjoying this moment I don’t think I’d believe you. Everything Luna has overcome, we all have overcome as a family in her short life is nothing of a miracle.

I’m so proud of how far my little lady has come & all that she has worked hard to achieve.

Learning to sit unassisted, the strength to stand in a stander & supprted, enough strength to do physio & walk with assistance from one side of the room to another, the sassy little soul she has become.

Luna has shown me how ungrateful I have been my whole life, simply the ease of walking to get where I want to be without struggle or asking for what I want without having to think of ways to communicate that.

Although my heart has broken many times with the things she has had to face I’m so grateful she has taught me the little things in life truely are marvellous.

I’m inspired everyday by the resilience & persistence she shows to move mountains in her world.

How lucky am I to be her mum & to watch her thrive everyday.

Happy birthday my sweet girl, you truely are amazing & I’m so grateful you chose me to be your mother.
I love you
💜

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Maryborough, QLD

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