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Myeloma Australia

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Myeloma Australia

Myeloma Australia is the only Australian myeloma specific not-for-profit organisation. They can all be found at: https://myeloma.org.au/resources/

We support, educate, inform, empower and bring hope to people who are living with myeloma, and their loved ones. Myeloma Australia publishes many online resources to guide you through myeloma. These resources include our booklets such as ‘Myeloma – A Comprehensive Guide’ and ‘Living Well with Myeloma’, information sheets and treatment fact sheets.

01/09/2026

A family's search for life saving treatment- by Lani Reti

'My husband, Tawhai, was diagnosed with myeloma in 2019 when he was 29 years old. We were young and busy raising our family.

Before diagnosis, Tawhai was an incredibly successful sheep shearer. It was hard, physical work. One day I received a call from his boss telling me he had collapsed on the shearing board.
We were told 'you need to be on a plane this week, as next week might be too late'. Leaving our kids with Tawhai's sister and not knowing how long we would be away was the hardest part.'

To read Lani's MyeStory visit our webpage: https://myeloma.org.au/myestory

If you would like to share your MyeStory click here https://myeloma.org.au/myestory-submission/

It’s been a year since we reintroduced MyeStory, and we’d love to hear what you think. Please take this 2-minute survey to share your feedback: https://forms.office.com/r/BxivLY08yw

24/08/2026

Could you bring My Greatest Walk to your community?

Get in touch with us to find out more and become a My Greatest Walk 2027 Event Organiser!

21/08/2026

Designed specifically for GPs and community health professionals, our new GP Learning Hub brings together practical, evidence-based resources on the recognition and management of multiple myeloma and related conditions.

Access guidance on symptoms and red flags, diagnostic testing, referral pathways, MGUS monitoring and ongoing patient care, all in one place.

Explore the hub here: https://myeloma.org.au/health-professionals/gp-learning-hub/

20/08/2026

My Greatest Walk 2027 date is LOCKED IN!

Sunday, 21 March 2027

17/08/2026

The journey to minimal residual disease (MRD)- by Nigel Holden

'In April 2023, I was diagnosed with smouldering myeloma, a pre-cursor condition to myeloma.

Burning sensations and tightness in my feet raised concerns because my father’s motor neuron disease (MND) had begun with similar symptoms. I discussed my concerns and family history with my general practitioner (GP).
My GP arranged a neurologist referral. After nerve conduction tests and extensive blood work, the neurologist confirmed I did not have MND; the symptoms were early-onset peripheral neuropathy. As I was leaving, she added that I needed to see a haematologist about my blood results.'

To read Nigel's MyeStory visit our webpage: https://myeloma.org.au/myestory

If you would like to share your MyeStory click here https://myeloma.org.au/myestory-submission/

It’s been a year since we reintroduced MyeStory, and we’d love to hear what you think. Please take this 2-minute survey to share your feedback: https://forms.office.com/r/BxivLY08yw

14/08/2026

In the coming months, we'll be introducing a dedicated section for carers in our monthly newsletter, and we'd love your input!

Help us choose a name for this new section and tell us what information, topics, and updates you'd like to see featured each month.

Click the link to share your feedback by 10 September:
https://forms.cloud.microsoft/r/s73ntY0hY4

Don't receive our monthly newsletter? Sign-up here: https://myeloma.org.au/sign-up/

13/08/2026

Happy National Cancer Nurses Day 💜

30/07/2026

Are you a partner, parent, family member or friend caring for or supporting someone diagnosed with myeloma? We want to hear your story!

As part of Myeloma Australia's MyeStory series we want to feature more stories from our myeloma carer community.

If you are interested in sharing your story, follow the link to submit: https://myeloma.org.au/myestory-submission/

29/07/2026

Win big, support the myeloma community 🎟️

You could win a Toyota Kluger, a Toyota Yaris or a 25-day Northern Lights and Rhine River cruise, all while backing a cause that matters.

Every $2 ticket you buy through the People's Choice Community Lottery goes straight to Myeloma Australia when you choose us at checkout. That means more support, information and education for people affected by myeloma, right across the country.

🔗 Grab your tickets https://www.communitylottery.com.au/products/myeloma-australia

Address

Melbourne, VIC

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+611800693566

Website

http://www.myeloma.org.au/

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