Crohn's & Colitis Australia

12/06/2026

"Years and years passed and no doctor could figure out what was wrong"

Jack’s journey with Crohn's disease began as early as he can remember. Never-ending doctor visits, hospital appointments and a whole lot of confusion.

It wasn't until a car accident and the subsequent flare-up that Jack finally received his diagnosis.

Stories like Jack’s are a reminder of why research matters – so more people can get the answers and support they need, sooner.

Read Jack’s full story: crohnsandcolitis.org.au/stories/from-secrecy-to-advocacy-my-journey-to-finding-purpose-in-the-face-of-adversity/

Support research that helps change stories like Jack’s: crohnsandcolitis.org.au/appeal (link in bio)

12/06/2026

What should IBD research focus on next?

Patients, carers and clinicians have shared their priorities – now brought together into a Top 10 list, published in Internal Medicine Journal and helping shape Australia’s national research agenda.

From disease prevention to mental health support, this is where change begins.

Give before 30 June to help drive what comes next: crohnsandcolitis.org.au/appeal

12/06/2026

"Surgery isn't the path anyone hopes for - but for some people with IBD, it's the one that leads to a better quality of life.

If surgery is on the table for you or someone you love, it's okay to have mixed feelings about it.

A stoma (where stool is diverted to allow healing) can be temporary or permanent - and while that's a lot to take in, many people find life on the other side of surgery is far better than living with severe, uncontrolled disease.

The most important thing? Ask your questions. Your stomal therapy nurse and IBD team are there to make sure you feel informed and supported every step of the way.

Read our Life with a Stoma resource: crohnsandcolitis.org.au/living-with-crohns-colitis/medical/complications-of-ibd-2/life-with-a-stoma"

11/06/2026

"Watching our 5-year-old son suffer for most of his life has shown us just how desperately more research is needed. Your support of IBD research gives hope to families like ours – and to future generations who deserve a different journey.”

No one should have to watch their loved one suffer for most of their lives – without the ability to help them.

For families like Xavier’s, the need for better treatments – and ultimately a cure – is beyond urgent. More research means earlier diagnosis, better care, and real hope for the future.

If you’re able to, you can support research that helps change stories like Xavier’s.

Give today: crohnsandcolitis.org.au/appeal

2025 End-of-Year Appeal: Donate now to help us fund much-needed resources, services and events to support children and young people with IBD.

11/06/2026

Do you speak Vietnamese and live with IBD?

We’ve created resources in your language, and we want to know what you think. Head to the link in our bio and have a read. The survey will appear on the bottom right-hand side of the screen upon leaving the webpage.




Your feedback helps us make sure these resources are actually useful for your community.

Link in bio or here: https://crohnsandcolitis.org.au/resources-in-other-languages/

10/06/2026

Research Opportunity:

A research group at Deakin University is inviting people aged 18 years and over with Multiple Sclerosis (MS) or Inflammatory Bowel Disease (IBD) to share their experiences of diagnosis and management within the Australian healthcare system.

Taking part involves completing a short online survey (about 10 minutes) about your demographic and health information to check your eligibility. If you’re eligible, you’ll be invited to take part in a one-hour online interview about your healthcare experiences.

Copy and paste this link to access the Plain Language Statement and complete the short survey: bit.ly/4ovZyIC

For more information or support, email Connie at: [email protected]

09/06/2026

IBD nurses gets it. They know Crohn's and colitis inside out - and they're here to help you make sense of what's happening in your body.

Whether you're navigating a flare, have questions about your treatment, or just need someone to talk it through with, they can help.

Appointment slots are available now, free of charge.💜

Book yours here: https://crohnsandcolitis.org.au/support/nurseline

07/06/2026

Fertility isn’t always a simple story - and for people living with Crohn’s or colitis, there can be extra layers to navigate 💜

This recent article from body+soul highlights some of the lesser-known health conditions that can impact fertility - including inflammatory bowel disease (IBD).

While many people with IBD can go on to have children, factors like active disease, inflammation or certain surgeries can make things more complex.

That’s why awareness, early conversations and the right support matter - so people living with IBD can make informed choices about their health and family planning.

Read the full article here: https://www.bodyandsoul.com.au/health/womens-health/pregnancy/the-surprising-health-issues-doctors-say-can-impact-fertility/image-gallery/67036801e86b4bc9fa44246b01800274

Thank you to +soul for the support

📸 body+soul

06/06/2026

Do you speak Nepali and live with IBD?

We’ve created resources in your language, and we want to know what you think. Head to the link in our bio and have a read. The survey will appear on the bottom right-hand side of the screen upon leaving the webpage.




Your feedback helps us make sure these resources are actually useful for your community.

Link in bio or follow this link here: https://crohnsandcolitis.org.au/resources-in-other-languages/

05/06/2026

If you're in the Bacchus Marsh (Vic) area and looking to connect with others who truly understand life with IBD, a new local support group has started.

The Bacchus Marsh IBD Support Group meets on the last Thursday of each month from 7:00–9:00pm at the Quamby Room, Andy Arnold Centre, 10 Bennett St - whether you're newly diagnosed or have been managing Crohn's or colitis for years, all are welcome.

The next meetings is on Thursday 25 June 2026. To register your interest or find out more, call 1800 138 029 or email us - [email protected]