T1D Advocate for change

20/10/2026

Re-sharing in case you didn't see this important survey..💙

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

19/10/2026

It’s Invisible Disabilities Week (19–25 October)! 🌻💛

Not all disabilities are visible, but a little understanding and kindness can go a long way in helping everyone feel seen, understood and supported.

The Hidden Disabilities Sunflower Australia & New Zealand helps people with non-visible disabilities discreetly indicate that they may need additional support, understanding or patience.

The Hidden Disabilities Sunflower is meant to be a simple, voluntary way to signal that you live with a condition that isn’t always visible. What I find interesting is how readily some people will wear the lanyard through airport security to get understanding or support, but in the same breath, insist that type 1 diabetes “isn’t a disability.” Living with T1D means constant decision-making, vigilance, interruptions, risk, and mental load, whether anyone can see it or not. Needing understanding in certain situations simply reflects the reality of managing a condition 24/7. You don’t have to identify with the word *disability* if it doesn’t resonate with you, but denying it altogether can erase the very real challenges many in our community face. However, T1D doesn’t stop being real just because it’s well managed or hidden under clothes. I am curious how others in the T1D community feel about this. 💛🌻 Yes, it's a personal choice.

18/10/2026

In Australia, there is no upper age limit for subsidised Dexcom G7 for people living with type 1 diabetes. The current policy rules distinguish people by age, concession status and pregnancy circumstances, rather than removing the co-payment for every eligible person.

If you believe everyone with type 1 diabetes should receive CGM free of charge you can contact the National Diabetes Services Scheme NDSS on 1800 637 700 to confirm your eligibility, or contact your federal MP to ask why the government has retained co-payments for some adults.

If you have type 1 diabetes and aged over 21, you may be eligible to access subsidised products through the NDSS. Learn more here.

16/10/2026

There will never be a day quite like the day you or someone you love is diagnosed with Type 1 diabetes (T1D).💔

The world can change in an instant.

One moment, life is carrying on as usual. The next, you're faced with a diagnosis that changes the way you think about the future, health, food, exercise, sleep and so many everyday things that others may take for granted.

For some, it begins with fear and uncertainty. For others, it's shock, grief, confusion or an overwhelming need to learn everything possible, as quickly as possible.

For parents, it's the moment you realise your child's life will look different from the one you imagined. For those diagnosed themselves, it's learning to navigate a lifelong condition while still trying to live the life you had planned.

And for loved ones, it's watching someone you care about face something you wish you could take away.

T1D doesn't take a day off.
Behind the smiles and the everyday moments are countless decisions, calculations, alarms, sleepless nights, worries and acts of courage that the outside world may never see.

But there is also resilience. There is love. There is a community that understands, supports and reminds us that we don't have to face this journey alone.

To everyone living with T1D, every parent, every partner, every sibling and every loved one who walks this journey alongside them: your experiences matter, your feelings are valid, and your strength deserves to be recognised.

We cannot change the day of diagnosis, but we can change what comes after it through greater awareness, understanding, advocacy, research and support.

Because no one should have to navigate life with Type 1 diabetes feeling alone, unheard or unsupported.

If you feel comfortable sharing, what do you remember most about the day T1D entered your life?

T1D Advocate for change

Donated Teddy bears with love 🤎🧸
Monash Children's Hospital 🏥

16/10/2026

I've shared this research opportunity multiple times because I believe it's important for Australian families living with Type 1 diabetes to have their voices heard.💙

The Australian Centre for Behavioural Research in Diabetes (ACBRD) and the Kids Research Institute are seeking parents of children living with T1D to share their experiences of childcare and preschool.

This research could help identify what makes childcare safer, what challenges families face, and what needs to change to better support children with T1D and their families.

Yet it's disappointing when opportunities like this are shared in private online support groups and then removed.

I understand that group administrators have rules to follow. How can we strengthen our community and advocate for better support if opportunities to participate in research aren't reaching the families whose experiences matter most?

Our community is more than a place to ask questions when we're struggling. It's also an opportunity to share information, contribute to research, raise awareness and help create meaningful change for future generations living with T1D.

If a post doesn't meet a group's rules, perhaps moderators could consider directing members to an approved way to share legitimate research opportunities. Collaboration and open communication can help ensure these important opportunities reach the families who may benefit from having their voices heard.

💙 Please feel free to share this far and wide! The more families who become aware of this opportunity, the greater the chance of hearing a broad range of experiences.

And to those seeking approval to share this information in private T1D support groups, all the very best!
I hope the opportunity can reach the families who want to contribute and help make a difference.

We all want better outcomes for our children. Giving families opportunities to have their voices heard should be part of that journey. 💙

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

15/10/2026

T1D Community, are you still confused or frustrated by insulin pump replacement policies in Australia? 🇦🇺

Many health funds require us to wait five years for a replacement pump, despite manufacturers commonly offering a four-year warranty. Meanwhile, diabetes technology keeps evolving, and access to newer pumps and software updates can make a real difference to our safety and diabetes management.

Changing funds isn't always an option, especially when corporate rates and premiums vary so much.

💬 Let's share our experiences!

- Which health fund are you with?

- Do they replace pumps after four or five years?

- Have you successfully appealed for an early replacement?

- Should we collectively advocate for fairer policies and better access to contemporary technology?

There's strength in numbers!
Let's start the conversation, share our experiences and see what we can achieve together for the Australian T1D community. 💙

14/10/2026

13/10/2026

🩸

A prolonged and record cold and flu season has contributed to critically low supplies of the most common blood types.

We urgently need everyone who is eligible and well to book a donation as soon as possible https://app.lifeblood.com.au/XW3k/zghwg8ge

Share this post to help us find the 16,000+ donors we need this week.

09/10/2026

⚠️ Trigger Warning ⚠️

💔 Thinking of Debra and Martin Robinson following the verdict in Mexico, with three men found guilty.

No verdict can ever bring Jake and Callum, back. One of their sons lived with T1D, and both deserve to be remembered always.

🕊️ May Jake and Callum never be forgotten. Sending love and strength to their family. 💙🤍🤍

Three men accused of killing Australian brothers Jake and Callum Robinson in Mexico have been found guilty of the murders.

09/10/2026

The Royal Children's Hospital, Melbourne

GLUCAGON 💉
TIP: At purchase check the “use by” date of your kit. Set a reminder for when it needs to be replaced. 📅

Position the person on their left side in the recovery position to prevent anything from being breathed into the lungs. Leave them in the position until they want to move.