Australian & New Zealand Fontan Registry

Australian & New Zealand Fontan Registry The Australian and New Zealand Fontan Registry page provides a community for children, youn Welcome to the Fontan Registry!

As a participant, parent or friend of the Registry, we invite you to join this community to share information and collaborate with other members. This page has been created by the Registry to build a forum where doctors and patients can ask questions, share their experiences and even guide future research. The Fontan Registry is the largest Fontan database in the world, providing the community wit

h information to help improve the long-term health of patients and explore different treatment options. Despite being around for 40 years, there are still many things we do not know about the future of the Fontan procedure. By helping us ask important questions through research projects, you can be involved in providing the whole Fontan community with a better future.

IMPORTANT UPDATE!!Participant recruitment for the CH-FIT- Congenital Heart Fitness Intervention Trial is now OFFICIALLY ...
16/04/2026

IMPORTANT UPDATE!!
Participant recruitment for the CH-FIT- Congenital Heart Fitness Intervention Trial is now OFFICIALLY COMPLETE!
Thank you to all the participants who have committed their time and effort to the study.
STAY TUNED for the results coming Spring 2026!

Hey there! Have you recently moved house or changed your phone number or email address? Just a friendly reminder to ensu...
24/03/2026

Hey there! Have you recently moved house or changed your phone number or email address? Just a friendly reminder to ensure we have your most up to date contact details..
If your contact details have changed, please stop by our website and click on the 'Update Contact Details' tab or alternatively click on the link provided https://redcap.mcri.edu.au/surveys/?s=FgnpPGcRG6

DID YOU KNOW?The Fontan procedure connects the Inferior Vena Cava (IVC) to the pulmonary artery (PA) to allow the redire...
25/02/2026

DID YOU KNOW?
The Fontan procedure connects the Inferior Vena Cava (IVC) to the pulmonary artery (PA) to allow the redirection of deoxygenated blood from the lower body to flow directly to the lungs, without passing through the pumping chamber of the heart- the ventricle. The Fontan Operation improves oxygenation and reduces the workload of the heart.
Fontan heart illustration by The Royal Children's Hospital, Melbourne

Dr Ryan Maxwell recently joins the ANZ Fontan Registry Steering Committee.Dr Maxwell is a Consultant Cardiologist specia...
10/02/2026

Dr Ryan Maxwell recently joins the ANZ Fontan Registry Steering Committee.
Dr Maxwell is a Consultant Cardiologist specialising in Adult Congenital Heart Disease (ACHD) and is based at The Prince Charles Hospital (TPCH) in Queensland.
Dr Maxwell is a co-director of the ACHD service at TPCH and is also a researcher affiliated with the University of Queensland.

Welcome Dr Ryan Maxwell!

Did you know?? The first Fontan procedure in Australia was performed in 1980 at The Royal Children’s Hospital in Melbour...
06/02/2026

Did you know??
The first Fontan procedure in Australia was performed in 1980 at The Royal Children’s Hospital in Melbourne!

Now, in Australia and New Zealand, the Fontan Operation is performed at The Heart Centre for Children in Sydney, Queensland Children’s hospital, Perth Children’s Hospital and Starship Children's Hospital in NZ.
We have come so far and we look forward to the future of advancing the care and treatment options for our Fontan Community.

As 2025 comes to a close, this Christmas, our thoughts are with everyone affected by recent events in Australia. From th...
22/12/2025

As 2025 comes to a close, this Christmas, our thoughts are with everyone affected by recent events in Australia.
From the team at The Fontan Registry, we wish peace, comfort and kindness to all this holiday season.
Thank you to our community for the continued support this year and beyond.

REMINDER!!! We need your help!Have your say – can you help with a Congenital Heart Disease study? If you are a person li...
15/12/2025

REMINDER!!! We need your help!
Have your say – can you help with a Congenital Heart Disease study? If you are a person living with Congenital Heart Disease or a parent, guardian or caregiver of someone with Congenital Heart Disease, you may be eligible to participate in an online focus group.
We are looking for more participants to jump onboard and join our sessions in 2026!
Please register your details via the link below:
https://redcap.sydney.edu.au/surveys/?s=XLKCN379T77WJ9JJ

Miss out on this years 12th Annual Fontan Education Day? Recordings are NOW AVAILABLE to watch when it is convenient for...
28/11/2025

Miss out on this years 12th Annual Fontan Education Day? Recordings are NOW AVAILABLE to watch when it is convenient for you! Jump onto our website https://www.fontanregistry.com/ or you can pop by our YouTube channel by clicking the link
https://youtube.com/?si=pPIPxZ9Z2SXygPCN

Don't forget to please 'Have Your Say' and give us your honest feedback so we can make the day even better next year!
Please click the link to share your experience..
https://docs.google.com/forms/d/e/1FAIpQLSdzbo-ZRWCD5Cnknwk5HV32i3KuNQpsuFMawc32_3OGh3AHVQ/viewform?usp=sharing&ouid=100111357067032379643

Have your say – can you help with a Congenital Heart Disease study? If you are a person living with Congenital Heart Dis...
18/11/2025

Have your say – can you help with a Congenital Heart Disease study? If you are a person living with Congenital Heart Disease or a parent, guardian or caregiver of someone with Congenital Heart Disease, you may be eligible to participate in an online focus group.
Please register your details via the link below:
https://redcap.sydney.edu.au/surveys/?s=XLKCN379T77WJ9JJ

We would love to hear from you! After this year's 12th Annual Fontan Education Day, we want to thank everyone who attend...
13/11/2025

We would love to hear from you! After this year's 12th Annual Fontan Education Day, we want to thank everyone who attended and we hope you enjoyed it as much as we did. We would love to receive your feedback, hear your thoughts and ideas so we can make the day even better next year.
Coming soon.... Keep an eye out on our website to view some recorded clips of the day.

Click the link below to share your experience.
https://docs.google.com/forms/d/e/1FAIpQLSdzbo-ZRWCD5Cnknwk5HV32i3KuNQpsuFMawc32_3OGh3AHVQ/viewform?usp=publish-editor

Address

Melbourne, VIC

Alerts

Be the first to know and let us send you an email when Australian & New Zealand Fontan Registry posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Australian & New Zealand Fontan Registry:

Share