23/06/2026
“I don't know." 🤷♂️
As a neurodiversity-affirming Behavior Support Practitioner, I find myself discussing with parents this phrase. When disabled people meltdown, shutdown, or act out, our first instinct is to ask why. But when they answer with "I don't know," it is not defiance. It is the absolute truth.
This can be due Alexithymia
Many neurodivergent individuals find it incredibly difficult to identify, name, or describe their own emotions.
When a nervous system is overwhelmed, the person’s brain switches to survival mode and they are unable to analyse or understand their triggers in that moment. They genuinely do not know what just happened.
As an affirming practitioner, my goal is to help carers to understand, accommodate and support the nervous system.
If the person you are caring for says "I don't know," you can lean into these affirming responses:
💡 Validate the disconnect: "It’s okay if it’s hard to find the words right now. You don't have to explain it."
💡 Check the environment: "The room got really loud. Let's go somewhere quiet and let your body rest."
💡 Drop the demands: "We don't need answers. I'm just here to keep you safe while you ride this wave."
Behaviour is a window into a disabled person’s sensory and emotional world. When we stop demanding explanations, we create the safety they need to co-regulate.
It may affect around 5 to 10 percent of the population. But what does alexithymia actually feel like?
https://www.sciencealert.com/what-is-alexithymia-the-hidden-experience-of-millions-explained