09/10/2026
Yesterday was PANS/ PANDAS Awareness Day. I intended to post, but after participating in the Clinical Research Symposium from midnight until 1.30 am Newcastle time, I was simply too sleepy!
Here in Australia, young people with PANS can lose access to government-funded IVIg when they turn 19 because of an age restriction - even when treatment has helped them return to school and regain independence.
Some can successfully wean off IVIg. Others deteriorate when it is withdrawn. Parents across Australia are sharing heartbreaking accounts of young people losing skills and independence after treatment ceased. Some are now housebound.
A birthday does not mean someone has recovered.
I’m working with families from PANS Australia to advocate for continued access when clinically indicated, based on individual need, documented benefit and treatment risks.
Please sign and share Angela Michell’s petition:
https://c.org/2JtYqQZvRR