NSW Stoma

NSW Stoma NSW Stoma is a not-for-profit, member-based organisation that aims to improve the quality of life of ostomates across NSW.

By providing information, support, representation, and medical supplies to our members, we are proud to be here for you.

πŸ‘ This week is National Volunteer Week so we're taking this opportunity to thank all of our wonderful volunteers here at...
23/05/2026

πŸ‘ This week is National Volunteer Week so we're taking this opportunity to thank all of our wonderful volunteers here at NSW Stoma!

πŸ™ We are very fortunate to have 29 lovely volunteers who generously give their time to NSW Stoma in multiple roles.

πŸ“¦ From picking and dispatching orders in our warehouse, manning the reception desk, answering the phone and other admin duties, helping with our education and support services, to ensuring our governance is of the highest standards by serving on our Board, our volunteers are crucial to the smooth and efficient operation of our organisation.

🫢 So to all our volunteers (past, present, and future... could this be you?), we thank you for your time and dedication to NSW Stoma and your fellow ostomates; you are truly invaluable members of team NSW Stoma and we really couldn't do it without you.

πŸ“£ Can you help? Whether it's half a day per month or every week, if you have the time and passion to work with us, we want you! Learn more about volunteering on our website (nswstoma.org.au/volunteers) and email us at [email protected] to express your interest in volunteering. We would love to hear from you!

πŸ“… Did you know May is Crohn's and Colitis Awareness month? And today, May 19, is World IBD Day?🫢 Many of our members hav...
18/05/2026

πŸ“… Did you know May is Crohn's and Colitis Awareness month? And today, May 19, is World IBD Day?

🫢 Many of our members have first-hand experience with Crohn's Disease and/or Ulcerative Colitis, collectively known as Irritable Bowel Disease (IBD). For some ostomates, it's the reason for their stoma.

❗We believe it's important to raise awareness for this debilitating (and all-too-often relentless and treatment-resistant) condition which is why we want to ask: how does Crohn's and ulcerative colitis (or IBD) impact you? What would you want others to know? ❓

We can't wait to hear your story, if you want to share it with us.

πŸŽ‰πŸ₯³7️⃣0️⃣0️⃣ πŸŽ‰πŸ₯³We now have 700 HUNDRED (❣️) members on our Private Facebook Group exclusively for NSW Stoma members and t...
16/05/2026

πŸŽ‰πŸ₯³7️⃣0️⃣0️⃣ πŸŽ‰πŸ₯³

We now have 700 HUNDRED (❣️) members on our Private Facebook Group exclusively for NSW Stoma members and their supporters! πŸŽ‰πŸ₯³

πŸ˜„ Thank you everyone for joining us so far, it's been wonderful to see you all embrace 'our' little corner of the internet/world. πŸ₯°

πŸ’ Happy Mother's Day from all of us at NSW Stoma! πŸ’We might be biased, but we think ostomate Mums (osto-Mums?) are the t...
10/05/2026

πŸ’ Happy Mother's Day from all of us at NSW Stoma! πŸ’

We might be biased, but we think ostomate Mums (osto-Mums?) are the toughest Mums there are. πŸ˜‰

We hope you had a relaxing day with your loved ones as they got a chance to celebrate you and everything you do for them!

πŸ•ŠοΈ We are also conscious that today is a difficult day for those who have lost their Mum - please know that you are in our thoughts, too.

πŸ«πŸ©·πŸ’

πŸ‘€πŸ“–πŸ–ŠοΈIt's time for another  !One of the new stories featured on our website is Kelly's. An inspiring and strong woman, Ke...
09/05/2026

πŸ‘€πŸ“–πŸ–ŠοΈ

It's time for another !

One of the new stories featured on our website is Kelly's. An inspiring and strong woman, Kelly has transformed her life of medical trauma into her life’s work through her ostomy bears!

πŸ”— To read her story, click here: https://www.nswstoma.org.au/long-reads/meet-kelly/

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β€οΈβ€πŸ©Ή

AT NSW Stoma, we're committed to fostering a sense of community among our members, and sharing our stories is just one way we do that.

We hope you enjoy reading Kelly's story, and we again thank Kelly for sharing it with us.

🫢 Have you ever thought about sharing your stoma story...? If and when you'd like to, we'd love to share it with your fellow ostomates... If you're interested, please email your story and image/s to: [email protected] and we will be in contact. Note: You can either write your story in your own words (as Kelly has done) or be interviewed via the phone and a story written up about you. ☺️ Hope to hear from you!

πŸ“… Save the date: Sunday 19th May is Anna's Walk, a fundraising charity walk for bladder cancer awareness.πŸšΆβ€β™€οΈ Held by BE...
05/05/2026

πŸ“… Save the date: Sunday 19th May is Anna's Walk, a fundraising charity walk for bladder cancer awareness.

πŸšΆβ€β™€οΈ Held by BEAT Bladder Cancer Australia, the charity event is free to attend and held in all Australian capital cities, as well as Tamworth. Anna’s Walk aims to raise awareness of, and much-needed funds to help fight bladder cancer. A volunteer-led patient advocacy charity, BEAT Bladder Cancer also highlights the information and support available for those in need. Bladder cancer is also one of the leading causes of why a person may require a urostomy.

πŸ•ŠοΈ Who was Anna? Anna Lynch was an Australian woman who sadly lost her battle with bladder cancer in September 2017, aged just 45. Anna was the reason BEAT Bladder Cancer Australia was formed by her widower/husband, Adam Lynch.

πŸ’œ In honour of Anna's memory, and to raise awareness of bladder cancer, you're invited to attend Anna's Walk on Sunday, 19th May. Participants are encouraged to wear a splash of purple - Anna's favourite colour.

πŸ”— For more information, go to the website: https://www.beatbladdercanceraustralia.org.au/annas-walk/

🫢 Can you remember the moment you realised you had accepted your new life as an ostomate?It's okay if it hasn't happened...
06/04/2026

🫢 Can you remember the moment you realised you had accepted your new life as an ostomate?

It's okay if it hasn't happened yet. Learning to live with - and accept - a stoma takes time and is a journey lived differently for everyone.

But if you're struggling, it may help to know that many ostomates out there once felt just like you do - and now live comfortably having accepted their new life with a stoma.

It's not the same, sure, but in many ways, it is better.

❣️ Can you relate? What was the moment you realised you'd accepted your stoma?

We can't wait to hear your responses to this one! πŸ₯°

πŸ‘€πŸ“–πŸ–ŠοΈHave you seen our recently revamped 'Stoma Stories' page on our website...?One of the stories featured is Renee's. R...
29/03/2026

πŸ‘€πŸ“–πŸ–ŠοΈ

Have you seen our recently revamped 'Stoma Stories' page on our website...?

One of the stories featured is Renee's. Renee is an inspiring and accomplished young woman who has achieved many things despite, and because of, her stoma. A wife, mother, and ostomate, Renee is also Secretary of the Board of NSW Stoma.

Read more about Renee's story - in her own words - on our website here: https://www.nswstoma.org.au/stories/meet-renee/

β€οΈβ€πŸ©Ή

AT NSW Stoma, we're committed to fostering a sense of community among our members, and sharing our stories is just one way we do that.

We hope you enjoy Renee's story, and we again thank Renee for sharing it with us.

❓ Have you ever thought about sharing your stoma story...? If and when you'd like to, we'd love to share it with your fellow ostomates... If you're interested, please email your story and image/s to: [email protected] and we will be in contact. Note: You can either write your story in your own words (as Renee has done) or be interviewed via the phone and have a story written up about you. ☺️

❓We're continuing our 'ask an ostomate' series, and this time we're asking you: What's better now? What can you do now w...
26/03/2026

❓We're continuing our 'ask an ostomate' series, and this time we're asking you: What's better now? What can you do now with a stoma that you couldn’t do before? πŸ€”

At NSW Stoma, we recognise and appreciate that life with a stoma isn't always easy. It's normal to feel a rollercoaster of emotions when it comes to adapting to a life with a stoma. Hopefully though, focussing on the positives can help you appreciate your new lease on life, despite of, and because of, your stoma.

πŸ“š If you need help, there are many great free resources available - including mental health resources - that may help you lead a more comfortable life with your stoma. To learn more, head to our website and click the drop-down 'Resources' menu to find an array of resources that may be helpful to you. Another option is to see your local STN (stomal therapy nurse) (or our lovely STN, Anne Marie Lyons) who can help and guide you on this new journey.

🫢 Ostomy support groups are another great way to find comfort and understanding in other ostomates that likely know what you're going through and the emotions you have felt and are feeling. To find your local ostomy support group, contact your local STN or head to our website and under the 'Services' drop-down menu, click 'Other Support Groups'. If you need further support, it may be worth engaging the help of a counsellor or psychologist for specialised mental health care.

❓ But back to our question for you... What's better now? What can you do now with a stoma that you couldn’t do before? πŸ€”

We can't wait to read your answers! 😊

πŸ“£ Announcing our popular Stomal Therapy Education Days for 2026 πŸ“£This year we're going to:πŸ”΄ Tamworth - 29th May @ the Ev...
22/03/2026

πŸ“£ Announcing our popular Stomal Therapy Education Days for 2026 πŸ“£

This year we're going to:

πŸ”΄ Tamworth - 29th May @ the Event Centre
πŸ”΄ Dubbo - 19th June @ Dubbo RSL
πŸ”΄ Central Coast - apologies, date and venue TBC
πŸ”΄ Sydney - 16th October @ Club York

⌚ The time for all events is 9.30am - 3.30pm

ℹ️ Our Stomal Therapy Education Days are always a fun day out and we always get such wonderful feedback so please do attend if you can! It is a chance for you to meet and chat with fellow ostomates, STNs, and learn about all the latest products from our supplier reps.

πŸ“§ Please RSVP your attendance ASAP to [email protected] for catering purposes as a light lunch of finger food will be provided. For more info, like the itinerary for the day, check your emails as an invitation has just been sent out.

Hope to see you there! 😊

Address

Stanmore, NSW
2048

Opening Hours

Monday 8:30am - 3:30pm
Tuesday 8:30am - 3:30pm
Wednesday 8:30am - 3:30pm
Thursday 8:30am - 3:30pm
Friday 8:30am - 1:30pm

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