Myeloma Patients Europe

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België
Bruxelles / Brussel
Myeloma Patients Europe

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Myeloma Patients Europe is an umbrella organisation of myeloma and AL amyloidosis patient groups

Myeloma Patients Europe (MPE) is an umbrella organisation of myeloma patient groups and associations from across Europe. MPE was formed following the merger in 2011 of the European Myeloma Platform and Myeloma Euronet. MPE is registered as a non-profit organisation (AISBL) under Belgian law and its headquarter is located in Brussels. MPE has a number of broad aims including:
• Collaborating on projects to the benefit of the myeloma community
• Exchanging information and best practice
• Developing existing patient groups and encouraging and facilitating the setting up of new groups
• Helping to shape appropriate health- related policies and initiatives on a European and national level
• Ensuring patients across Europe receive timely access to new treatment
• Stimulating and promoting patient- centred research and clinical trials
• Developing a strong evidence base for the needs and wants of patients and their role in research
• Providing information, educational and outreach programmes to member groups

To meet its aims and in addition to its membership, MPE works directly with healthcare professionals, reimbursement authorities, regulators, politicians, pharmaceutical companies, the media and anyone involved in the ‘myeloma community’.

09/10/2026

European Young Myeloma Patients Group Meeting

Our next EYMPG meeting will focus on:

How to communicate with family, friends and healthcare professionals
Living with myeloma can sometimes make conversations difficult.

During this meeting, we will explore ways to talk about your experiences, needs and concerns with the people around you and with your healthcare team.

Date: 26 November 2026
Time: 19:00–20:00 CET

Register here: https://forms.cloud.microsoft/e/Wjn3yb9h1W

We’d love to see you there!

09/10/2026

Your views and experiences on myeloma, intimacy and sexual wellbeing

We're seeking views from people living with myeloma and their partners about how myeloma and treatments affect intimacy and sexual wellbeing. This input will help shape our educational resources, primarily a new video.

Take the survey now: https://www.mpeurope.org/elementor-117034/

Or alternatively, please share this short, anonymous survey with patients and partners in your network. All responses are confidential and feedback will help us create information that truly addresses the needs of our community.

The survey is available in English and will be open until 16 October 2026.

08/10/2026

Applications for the MPE 2027 Advocate Development Programme (ADP) are NOW OPEN

We're excited to announce that applications are now open for next year's ADP cohort. The ADP is MPE's comprehensive training and support initiative for patient advocates across Europe.

The ADP is designed for individuals and representatives of patient organisations committed to strengthening myeloma and AL amyloidosis advocacy. Through structured training, peer mentorship, and hands-on support, participants develop the skills and knowledge needed to create sustainable, impactful advocacy strategies and become a voice for the patient community.

You can also become part of a vibrant network of advocates across Europe, where you can work together, learn from each other and share your successes.

Find out more and apply here: https://www.mpeurope.org/what-we-do/capacity-building-advocacy/advocate-development-programme/

08/10/2026

Did you know? Around 40% of the plasma used in Europe comes from the USA.

Plasma is used to make immunoglobulin replacement therapy, which many people living with myeloma and other immune conditions rely on to help protect them from infection. Because Europe depends so heavily on plasma from outside the continent, its supply is more vulnerable to shortages and disruption.

More plasma donations within Europe would help make sure patients can continue to access the treatments they need.

Donating plasma takes around 60 to 90 minutes, and it works in a similar way to giving blood.

It's not always possible for everyone to donate, but to find out whether you can donate plasma in your country, visit www.plasmaweek.org/about

Thank you to everyone who already gives their plasma. Every donation makes a difference 💛

07/10/2026

This week is International Plasma Awareness Week🩸

Plasma Awareness Week shines a light on plasma donation, the people who donate and the medicines made from plasma.

Plasma is the liquid part of your blood. It is light yellow in colour and carries your red blood cells, white blood cells and platelets around the body. Around 7% of plasma is made up of proteins, such as immunoglobulins (a type of antibody), which help fight infection.

Why does this matter for myeloma? Myeloma and its treatments affect the immune system, making infections more likely. Donated plasma is used to make immunoglobulin replacement therapy, which helps reduce infection risk for many people living with myeloma.

Find out more by visiting www.plasmaweek.org/plasma-101

06/10/2026

Prof. Michel Delforge shares the headlines from the recent annual meeting.

01/10/2026

Last week wasn't just about and for us; MPE was also in Zagreb for the EORTC Quality of Life Group meeting, strengthening the patient voice in cancer research.

Our Board Member Vincent Claus led training on SISAQOL (patient-reported data in clinical trials), while our Head of Patient Research Eilidh Duncan represented MPE on key projects measuring how T-cell immunotherapies and cancer treatments impact patient quality of life and finances.

This is what patient-centred advocacy looks like, representing patients across Europe to ensure myeloma patients' experiences shape research, treatment development and policy.

Find out more about the meeting: https://www.mpeurope.org/mpe-strengthens-patient-voice-in-cancer-quality-of-life-research-at-eortc-meeting/

01/10/2026

Thanks to everyone for coming together on EMD last Sunday to improve the lives of myeloma patients across Europe.

That's what European Myeloma Day is all about and over last weekend, patients, families and member organisations across Europe were doing exactly that: sharing the MPE Myeloma Diagnosis Pathway and calling for myeloma to be recognised earlier. So thanks to all who did just that!

Just because EMD has ended there's still time to download the MPE Myeloma Diagnosis Pathway in your language and take it to your GP and encourage your network to do the same.

You can also follow Myeloma Patients Europe and share our campaign video.

Learn. Share. Change.

27/09/2026

🔴 Today is European Myeloma Day!
The MPE Myeloma Diagnosis Pathway helps GPs and family doctors recognise the signs of myeloma and understand which tests should be considered. It's translated into nearly 15 languages.
Download it. Print it. Take the Pathway to your GP and help them to recognise myeloma earlier.
▶️ Watch our campaign video
Learn. Share. Change.

Adresse

Avenue Louise 143/4
Brussels
1050

Site Web

http://www.mpeurope.org/

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