Inflamed Brain Alliance

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Inflamed Brain Alliance

Canada’s PANS PANDAS charity providing support, education & research.

08/31/2026

One Reason to Walk | Kathryn & Michael, Stouffville, Ontario

When Kathryn and Michael’s daughter was nine, PANS changed their family’s life.

What followed were years of searching for answers, navigating care and advocating for treatment. Today, their daughter is stable, heading off to college and building a future they once weren’t sure would be possible.

Their journey is also why they’re Steppin’ Out.

“We walk because every child deserves the chance to get their life back.”

Kathryn and Michael are the first family we’re featuring in our One Reason to Walk series. Over the next couple of weeks, we’ll be sharing more stories from our community about the very personal reasons behind each step.

👟 Read Kathryn and Michael’s full story:
https://inflamedbrain.org/one-reason-to-walk/

What’s your one reason to walk?

08/29/2026

Reminder: Our Adult Peer Connection Group (ages 18–35) meets tomorrow.

💬 Navigating School & Past School Related Experiences

This Zoom gathering is for Canadian adults living with PANS or PANDAS to connect and talk about how symptoms may have affected school, whether you're navigating education now or looking back on past experiences. We'll talk about things like attendance, accommodations, keeping up with coursework, communicating with teachers or instructors, taking time away from school, returning after an absence, and changing educational paths. Not therapy. Not medical advice. Just a peer connection space where you can share, listen, and connect with others who understand.

Sunday, August 30
3:00–4:00 PM PT (6–7 PM ET)
Zoom (Canada-wide)
Facilitated by Taryn & Supported by Amanda

🔗 Register: https://tinyurl.com/AdultAugust30

08/29/2026

👟 3 Weeks to Steppin’ Out — One Reason to Walk

Everyone Steppin’ Out has a reason. 🩷

This week, we want to hear yours.

Share a photo, your fundraising page and one reason why you’re walking.

Simply start with:
“I’m Steppin’ Out because…”

Your story can raise awareness, inspire support and help others understand why PANS and PANDAS matter.

🩷 What’s your one reason to walk?

Learn more about Steppin’ Out:
https://inflamedbrain.org/steppin-out/

08/27/2026

📣 FINAL CALL FOR SPONSORS

Steppin’ Out for PANS PANDAS is happening September 19, and sponsorship opportunities are still available for businesses and organizations that would like to stand with families affected by PANS/PANDAS.

There’s still time to sponsor us through Sunday, August 30.

Sponsorships start at $500 and help us raise awareness, support families, and strengthen the work of Inflamed Brain Alliance across Canada.

Learn more about sponsorship opportunities and apply here: https://inflamedbrain.org/become-a-sponsor/

Please consider sharing this with a business, colleague, or organization in your network that may want to Step Out with us this September. 👟

08/25/2026

WHAT RESEARCH QUESTIONS ARE MOST IMPORTANT?

The Canadian PANS Registry asks participants about research priorities, including:
• Diagnosis and biomarkers
• Treatment effectiveness
• Clinical trials
• Long-term outcomes
• Quality of life
• Healthcare access

Patient and caregiver experiences can help researchers better understand which areas may benefit from further study.

Participation is voluntary, confidential, and free of charge.

It's never too late to participate.

The Canadian PANS Registry is an ongoing research study that continues to welcome new participants from across Canada.

www.inflamedbrain.org/pans-registry

08/23/2026

School can be challenging when your symptoms aren't always visible or easy to explain.

Missed classes. Trouble concentrating. Brain fog. Fatigue. Needing accommodations. Falling behind. Taking time away. Trying to return.

💬 Navigating School & Past School Related Experiences

Join our Canadian Adult Peer Connection Group (ages 18–35) for an honest conversation about how PANS or PANDAS can affect school experiences and the strategies people have found helpful along the way.

Whether you come to share, listen, or simply connect with others who understand, you are welcome.

Sun, August 30, 2026 | 3:00–4:00 PM PT
Zoom (Canada-wide) | Facilitated by Taryn

🔗 Register: https://tinyurl.com/AdultAugust30

08/22/2026

👟 4 Weeks to Steppin’ Out — Who are your five?

This week’s challenge is simple:

Ask 5 people for $25.

That could mean $125 toward your fundraising goal — and five more people learning why you’re Steppin’ Out for PANS and PANDAS. 🩷

Send a text, email or personal message and share your fundraising page.

Who are your five?

08/21/2026

With September just around the corner, it’s a timely opportunity to talk about school experiences, past and present.

💬 Navigating School & Past School Related Experiences

Adult Peer Connection Group (ages 18–35)

For adults living with PANS or PANDAS, school experiences can be complicated. Brain fog, fatigue, anxiety, difficulty concentrating, missed classes, changing symptoms, or feeling misunderstood can all affect the school experience, both at the time and long after.

This facilitated Zoom gathering is a peer connection space for Canadian adults living with PANS or PANDAS to talk about current and past school experiences, share what has helped, and connect with others who understand.

Whether you're currently in school, thinking about returning, reflecting on past experiences, or simply want to listen, you're welcome.

Sunday, August 30, 2026 - 3:00–4:00 PM PT
Zoom (Canada-wide) - Facilitated by Taryn

🔗 Register: https://tinyurl.com/AdultAugust30

08/20/2026

A big thank you to these businesses for supporting our Edmonton Steppin’ Out for PANS PANDAS walk! 👟💗

Community Sponsor
Go Auto (Bavaria BMW Edmonton)

Route Sign Sponsors
Revtech International Inc.
WTX'Press Ltd.

We’re so grateful for their support in helping make Steppin’ Out possible in Edmonton and advancing awareness and support for the PANS/PANDAS community.

There’s still time to join them as a sponsor!
Sponsorship deadline: August 24

👉 https://inflamedbrain.org/become-a-sponsor/

08/19/2026

Virtual Walkers: Find & walk with someone near you.

Participating in Steppin’ Out for PANS PANDAS 2026 virtually and hoping to find someone nearby to walk with?

We’ve created a Virtual Walkers connection post inside the IBA private Facebook support group. Join the group, then add your city or general area to the post to connect with other virtual walkers nearby.

Our private support group is for caregivers, family members, friends, and adults with diagnosed or suspected PANS/PANDAS across Canada to connect, share, and support one another in a safe, moderated space.

Join the IBA private Facebook support group:
https://www.facebook.com/groups/inflamedbrainalliance

Not registered for Steppin’ Out yet? Learn more and sign up here:
https://inflamedbrain.org/steppin-out/

Wherever you are, you don’t have to Steppin’ Out alone. 👟

Address

PO Box 71023 Silver Springs
Calgary, AB
T3B5K2

Website

http://inflamedbrain.org/

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