Bow Valley DMD Awareness

09/10/2025

Any help with this fundraiser will be eternally appreciated.

Please help us share, collect or donate to give Ollie the bestest of short lifes.

Next bottle drive is on 18th September!

https://www.gofundme.com/f/help-ollie-stay-active

06/03/2024

Last Sunday these amazing people have joined us on our 33 km long walk to help raise awareness and funds for Defeat Duchenne Muscular Dystrophy! Thank you!

05/08/2024

Our hearts are aching for this family, who lost their son way too soon.

https://www.parentprojectmd.org/update-on-pfizers-phase-2-gene-therapy-trial-for-duchenne/?fbclid=IwZXh0bgNhZW0CMTEAAR1QUi4ExdLcmm_09afMg-Tw8EAj3ErJkE8T_xvXf6WnFu1LrCAusXyl-OA_aem_AYZS7jxaehCqUikpTGr7rSseWLV5wMFPCAQmozaNgBobetiPIpqGJukwStKMaOQ7XLzLNMSW2EJQGvMJftqaadNX

We are devastated to learn of the tragic loss of a young boy that was participating in Pfizer’s Phase 2 DAYLIGHT study. This study is evaluating the safety and dystrophin expression of fordadistrogene movaparvovec (PF-06939926),...

04/04/2024

Read our family story here.

I am here to tell the story of a little boy with one big secret. At first, this secret was so little that no one could notice it, not the ultrasound or the first blood work after he was born. Not even the doctors who saw him on regular checkups over and over again.

03/21/2024

Let's hope this Drug will be available soon!

https://defeatduchenne.ca/italfarmaco-results-from-pivotal-phase-3-epidys-study-of-givinostat/?fbclid=PAAaZUsdet1VyG35RjUCiwajJNDwEmfQ1hKc12_SLWoweOCO73HZNXSltiIO0

Defeat Duchenne Canada is pleased to share the results from Italfarmaco Pivotal Phase 3 EPIDYS Study of Givinostat in Duchenne Muscular Dystrophy (DMD). Highlights: