Scleroderma Canada

10/07/2026

🍂❄️ The seasons are changing, temperatures are dropping, and for many people living with Raynaud's, that can mean extra challenges when it comes to staying warm and managing symptoms.

October is Raynaud's Awareness Month, and throughout the month we'll be sharing information about Raynaud's phenomenon, raising awareness of its connection to scleroderma, highlighting practical tips for managing symptoms, and talking about our community's favourite cold-weather essentials and must-haves.

Whether you're newly diagnosed, supporting a loved one, or have been managing Raynaud's for years, we hope you'll join us as we learn, share, and raise awareness together.

10/01/2026

At Scleroderma Canada, we talk about the whole person - not just one symptom or one part of the disease.

That’s why pulmonary fibrosis matters to us.

For some people living with scleroderma, lung involvement can become a very important part of their health journey.

Our goal this past Pulmonary Fibrosis Month was simple:

Help our community understand the connection between scleroderma and pulmonary fibrosis - and feel more confident asking questions about their lung health.

Because awareness can start a conversation.

And sometimes, a conversation is the first step.

09/29/2026

You don't have to become an expert in pulmonary fibrosis to advocate for your health.

Start with a conversation.

Save these questions for your next appointment and talk with your healthcare team about what lung monitoring is right for you.

🫁 Know your lungs. Ask questions.

09/23/2026

One of the reasons awareness of pulmonary fibrosis matters is that changes in the lungs aren't always immediately obvious.

You might not notice a difference at first—or you may simply think you're getting tired more easily.

If you live with scleroderma, talk with your healthcare team about your lung health and how it should be monitored based on your individual circumstances.

Don't wait for your symptoms to speak for you. Start the conversation.

09/16/2026

Your lungs don't always make it obvious when something is changing.

Symptoms of pulmonary fibrosis can include shortness of breath, persistent cough, fatigue and a decrease in your ability to exercise or do everyday activities.

If you're living with scleroderma and notice changes in your breathing or activity levels, talk to your healthcare team.

Your symptoms are worth discussing.

09/11/2026

You may have heard of pulmonary fibrosis—but do you know how it can connect to scleroderma?

Pulmonary fibrosis is scarring of the lung tissue. When the lungs become scarred, they can become stiffer and breathing can become more difficult.

For people living with scleroderma, understanding this connection is an important part of understanding the disease.

This month, Scleroderma Canada is putting pulmonary fibrosis in focus.

09/09/2026

09/09/2026

It’s been a few weeks since we gathered in Ottawa for our Bi-Annual National Conference, and we’re still thinking about the conversations, connections, and moments that made this year’s event so meaningful.

Our 2026 theme, Together for Tomorrow, came to life in so many ways throughout the conference. We saw people reconnect with old friends, meet others who truly understand the realities of living with scleroderma, share experiences, learn from experts, and build relationships that will continue long after the conference ended.

For many people affected by this rare and chronic autoimmune disease, finding community isn’t always easy. That’s why coming together is so important. The support, understanding, and sense of belonging that exists when our community gathers reminds us that no one has to face scleroderma alone.

To everyone who attended, volunteered, presented, sponsored, exhibited, and helped make this conference possible, thank you. Thank you for sharing your stories, your experiences, your knowledge, and your hope.

We’re grateful for the opportunity to come together, and we’re already looking forward to continuing the conversations and connections that began in Ottawa.

09/09/2026

As summer comes to an end, we’re taking a moment to look back on an incredible season of Make a Move for Scleroderma. 💙

Together, we set a goal of $200,000… and you helped us raise an incredible $236,000! 🎉

These funds make a meaningful difference in the lives of people living with scleroderma. They help make programs, educational initiatives, patient education nights, conferences, resources, advocacy, and so much more possible.

But Make a Move is about more than fundraising. It’s about showing up for one another. It’s about creating opportunities for people living with scleroderma, their families, friends, and supporters to come together, find community, and remind each other that no one has to navigate this journey alone.

To everyone who showed up, showed out, walked, moved, fundraised, donated, cheered, volunteered, and helped us build these communities, thank you.

Your support helps us make life better for everyone living with scleroderma, and we are so grateful to have you with us.
We’re already looking ahead to the year to come and dreaming about what Make a Move will look like next year. We can’t wait to do it all again with you. 🌻

Thank you for making a move with us.

09/08/2026

🫁 Did you know scleroderma can affect your lungs?

This month, we’re talking about pulmonary fibrosis and what it means for people living with scleroderma.

September is Pulmonary Fibrosis Awareness Month.

At Scleroderma Canada, we’re using this month to highlight an important connection for our community:

Scleroderma and pulmonary fibrosis.

Scleroderma can affect more than the skin. For some people, it can also cause changes in the lungs, including pulmonary fibrosis, scarring of the lung tissue that can make it harder to breathe.

This month, we’ll be talking about what pulmonary fibrosis is, how it can be connected to scleroderma, what signs to look out for and why knowing your lung health matters.

🫁 Know the connection. Know your lungs.