Dystonia Medical Research Foundation Canada

Dystonia Medical Research Foundation Canada Dystonia Medical Research Foundation Canada

The Dystonia Medical Research Foundation was founded in 1976 by Samuel and Frances Belzberg of Vancouver, after their daughter was diagnosed with generalized dystonia. The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individu

als and families. DMRF Canada works in partnership with the Dystonia Medical Research Foundation in the United States and other like-minded research organizations to ensure funding of the best and most relevant dystonia medical research in Canada and worldwide.

💙 September is ! 💙All month long, we’re coming together to shine a spotlight on dystonia — raising awareness, sharing s...
09/02/2026

💙 September is ! 💙

All month long, we’re coming together to shine a spotlight on dystonia — raising awareness, sharing stories, and uniting the community.

From coast to coast, you’ll also see landmarks glowing in blue and white in support of this important cause — just one of the many ways we’re making dystonia visible.

List of monuments lighting up so far - stay tuned for more!

1. CN Tower – Toronto, ON - September 6th
2. Niagara Falls- Ontario - September 10th
3. Halifax City Hall – Halifax, NS - September 10th
4. Esplanade Riel Bridge – Winnipeg, MB - September 10th
5. BC Place and Vancouver Convention Centre- Vancouver, BC - September 11
6. Calgary Tower – Calgary, AB- September 16th
7. City of Saint John Sign– Saint John, NB – September 16th

📅 Discover how you can get involved and see what’s happening this month:
🔗 www.dystoniacanada.org/dystoniaawarenessmonth



💙 September is Dystonia Awareness Month! This month, we come together to raise awareness of dystonia, a neurological mov...
09/01/2026

💙 September is Dystonia Awareness Month!

This month, we come together to raise awareness of dystonia, a neurological movement disorder affecting more than 50,000 Canadians.

Together, we can increase understanding, reduce stigma, and ensure that no one living with dystonia feels alone.

💙 Share your journey with dystonia. Start a conversation. Help spread awareness.

Learn more and see how you can take part:
🔗 https://dystoniacanada.org/dystoniaawarenessmonth


💙 Join the Greater Toronto Virtual Dystonia Support Group on Sunday, September 6th , 2026! Whether you're living with dy...
08/31/2026

💙 Join the Greater Toronto Virtual Dystonia Support Group on Sunday, September 6th , 2026!

Whether you're living with dystonia, newly diagnosed, or supporting a loved one, you're welcome to join us for connection, conversation, and peer support.

The meetings provide a safe, welcoming space to share experiences, ask questions, and connect with others who understand. You don't have to face dystonia alone.

For more information and to register, please click on the link here :
https://dystoniacanada.org/upcoming-events

Thank you to DMRF US for allowing us to share this webinar with the Canadian dystonia community. If you are interested i...
08/28/2026

Thank you to DMRF US for allowing us to share this webinar with the Canadian dystonia community.

If you are interested in attending and learning more, please see the post below for details and registration.

Deep brain stimulation can be a life-changing treatment for dystonia. Don’t miss this upcoming DMRF webinar with neurologist Neepa Patel, MD from Rush University in Chicago, along with DBS patient and DMRF Board member Liz Rawson.

📅 Wednesday, Sept. 9
⏰ 6:00 PM CT | 7:00 PM ET

Registration: https://dystonia-foundation.org/deep-brain-stimulation-webinar-sept-9/

Register now.

🎤 Speaker Teaser! Join us at the Dystonia GTHA Patient Support Health Fair: 50 Years of Community for a full day of exp...
08/18/2026

🎤 Speaker Teaser!

Join us at the Dystonia GTHA Patient Support Health Fair: 50 Years of Community for a full day of expert-led education, practical resources, and meaningful connections.

Featured speakers include:
🩺 Dr. Susan Fox & Dr. Alfonso Fasano – Understanding Dystonia and Treatment Options
🧠 Dr. Mateusz Zurowski – Dystonia and Anxiety
🔬 Dr. Jean-François Nankoo – Dystonia Research and Neuromodulation
🤝 Dr. Laura Moll – Disability Management and Community Resources

Whether you're living with dystonia, caring for someone who is, or simply looking to learn more, this free event offers valuable insights from leading experts.

📅 Sunday, October 25, 2026
📍 Toronto, ON
🎟️ Free registration (required)

Register today: https://dystoniacanada.org/2026GTHASymposium

A special thank you to our sponsor, Ipsen, for supporting this event.

08/15/2026

The Freedom to Move 2026 Highlights Video is Here!

What an incredible month of moving with purpose! A heartfelt thank you to everyone who participated, donated, volunteered, fundraised, and cheered us on. Together, we raised our goal of $60,000 to advance dystonia research, education, advocacy, and support programs across Canada.

👏 Congratulations to our Top 3 Individual Fundraisers:
🥇 Mary Guy
🥈 JC from Team For Wesley
🥉 Oliver Jaakkola

A special thank you to our sponsors for helping make Freedom to Move 2026 possible, and for their unwavering support.

🎬 Watch the highlights and relive the inspiring moments that brought our community together from coast to coast.

⏰ Reminder: Registration is now open for the Dystonia GTHA Patient Support Health Fair: 50 Years of Community!Hosted by ...
08/04/2026

⏰ Reminder: Registration is now open for the Dystonia GTHA Patient Support Health Fair: 50 Years of Community!

Hosted by the Greater Toronto Area Dystonia Support Group, join us for a day of learning, connection, and support as we mark 50 years of serving the dystonia community.

📅 October 25, 2026
📍 Toronto, ON
🎟️ Free Registration

Connect with others affected by dystonia, hear from healthcare professionals, explore resources, and be part of a community that understands.

📣 Help spread the word! You can also download our promotional poster from the event page and share it with your family, friends, local clinics, pharmacies, healthcare providers, and community organizations.

🔗 Register and access the promotional poster: https://dystoniacanada.org/2026GTHASymposium

The July 2026 DMRF Canada e-newsletter is now available!Read the latest news, upcoming events, research updates, and com...
07/31/2026

The July 2026 DMRF Canada e-newsletter is now available!

Read the latest news, upcoming events, research updates, and community highlights (Également disponible en français).

Check your inbox or subscribe at dystoniacanada.org/newsletters

Stay informed. Stay connected.

💙 Thank You, Canada! Freedom to Move: Run, Walk, and Wheel for Dystonia 2026 was a success because of YOU! Together, 13...
07/30/2026

💙 Thank You, Canada!

Freedom to Move: Run, Walk, and Wheel for Dystonia 2026 was a success because of YOU!

Together, 138 participants from across Canada joined us in Winnipeg, Toronto, Kingston, Calgary, and virtually throughout June to support the more than 50,000 Canadians living with dystonia.

Thanks to your generosity, we've exceeded our fundraising goal, raising more than $60,000 to support dystonia research, clinical fellowships, education, advocacy, and community support programs.

A special thank you to our 2026 Freedom to Move Ambassador, Laurence Guénette-Rochon, and to every participant, volunteer, donor, sponsor, and partner who made this campaign possible.

Together, we're moving closer to better treatments—and ultimately, a cure.

💙 Thank you for moving with us. See you in 2027!

Photo credits to: Julie Allison Media

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