Dystonia Medical Research Foundation Canada

Dystonia Medical Research Foundation Canada Dystonia Medical Research Foundation Canada

The Dystonia Medical Research Foundation was founded in 1976 by Samuel and Frances Belzberg of Vancouver, after their daughter was diagnosed with generalized dystonia. The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education; and to support the needs and well being of affected individu

als and families. DMRF Canada works in partnership with the Dystonia Medical Research Foundation in the United States and other like-minded research organizations to ensure funding of the best and most relevant dystonia medical research in Canada and worldwide.

06/09/2026

đź‘€ You may have seen us out and about in Toronto...

We're hitting the streets to spread the word about đź’™

Freedom to Move: Run, Walk & Wheel for Dystonia brings people together to support Canadians living with while raising critical funds for research, advocacy, education, and support programs.

đź“Ť Join us in person on June 14 at Downsview Park in Toronto
🌎 Or participate virtually from anywhere in Canada throughout June

Last year, our community made an incredible impact. This year, we're aiming even higher, and we need your help to get there.

✨ Ready to make a difference?
👉 Register today: www.freedomtomove.org
📲 Share this post to help us reach more people
đź‘ź Walk, run, or wheel with purpose

With thanks to our sponsor, Ontario Brain Institute.

We’re thrilled to partner once again with for Freedom to Move Toronto! 💙 As a special thank you, everyone who registers...
06/08/2026

We’re thrilled to partner once again with for Freedom to Move Toronto! 💙

As a special thank you, everyone who registers for Freedom to Move Toronto will receive an exclusive 15% discount on a Cooking Class for Singles in Toronto. 🍽️✨

Whether you're looking to learn new culinary skills, meet new people, or simply enjoy a fun night out, this is the perfect opportunity.

Haven’t registered yet?
👉 Sign up for Freedom to Move Toronto through the link www.freedomtomove.org and unlock your discount!

Every registration helps raise awareness and support for Canadians living with dystonia. Together, we can make a difference, one step (and one delicious meal) at a time. đź’™

Thank You to DMRF US for hosting this webinar about the Dystonia Coalition. Join Dr. Hyder "Buz" Jinnah and Dr. Joel Per...
06/03/2026

Thank You to DMRF US for hosting this webinar about the Dystonia Coalition.

Join Dr. Hyder "Buz" Jinnah and Dr. Joel Perlmutter for an insightful discussion about the Dystonia Coalition and how collaborative research is advancing understanding and treatment of dystonia.

đź“… Monday June 8, 2026
đź•– 7:00 PM ET

Register today: https://us02web.zoom.us/webinar/register/WN_jiy1d1dlT2yO0kGlrUe4Iw #/registration

Virtual Freedom to Move: Run, Walk and Wheel 2026 kicks off today! 💙💚From June 1–30, walk, run, or wheel from anywhere i...
06/01/2026

Virtual Freedom to Move: Run, Walk and Wheel 2026 kicks off today! 💙💚

From June 1–30, walk, run, or wheel from anywhere in Canada in support of Canadians living with dystonia.

Every step and every dollar raised helps fund vital support programs, advocacy, education, and research for individuals and families affected by .

Join the movement, share your journey, and help raise critical awareness and funds across Canada.

📅 June 1–30
🌎 Participate from anywhere
đź”— Register today: freedomtomove.org

Special Thanks to Our Sponsor – Ontario Brain Institute

DMRF Canada urgently needs volunteers for our Delta Bingo and Gaming bingo sessions. Right now, we only have a small num...
05/28/2026

DMRF Canada urgently needs volunteers for our Delta Bingo and Gaming bingo sessions. Right now, we only have a small number of volunteers signed up and without enough participation, we could lose this important source of funding.

Just 2 hours of your time once a month can make a real difference for Canadians living with dystonia. Funds raised through this program are currently providing much-needed support, resources, and guidance for patients and families. Travel stipends and honorariums are available for returning volunteers.

If you can help, please sign up today:
https://dystoniacanada.org/DeltaBingoEtobicoke

Thank you to Delta Bingo & Gaming Etobicoke and Charitable Gaming. Community Good. for supporting the dystonia community.

Freedom to Move 2026 Press Release Out Now! 📢 Despite affecting an estimated 50,000 Canadians, public awareness for dys...
05/27/2026

Freedom to Move 2026 Press Release Out Now! 📢


Despite affecting an estimated 50,000 Canadians, public awareness for dystonia remains critically low — leaving nearly 60% of patients waiting over a year for a proper diagnosis.


This June, join us in raising much needed funds and awareness through our national event, Freedom to Move: Run, Walk and Wheel for Dystonia.

Read our official press release to learn more about our incredible 2026 Ambassador Laurence Guénette-Rochon, and how you can join us virtually or in person at Downsview Park on June 14.



👉 Read the full press release here: https://dystoniacanada.org/news/freedom-move-run-walk-and-wheel-for-dystonia-2026



Special thanks to our sponsor, the Ontario Brain Institute, for their support. đź’™

Meet our 2026 Ambassador, Laurence Guénette-Rochon 💙 After being diagnosed with cervical dystonia, Laurence found stre...
05/26/2026

Meet our 2026 Ambassador, Laurence Guénette-Rochon 💙

After being diagnosed with cervical dystonia, Laurence found strength through community, connection, and hope. Now, she’s helping raise awareness and support for the 50,000 Canadians living with dystonia.

Join Laurence this June for and help fund research and support programs for the dystonia community.

To read more about her journey: www.freedomtomove.org/ambassador

PS: If you’d like to participate in this year’s event, please visit www.freedomtomove.org and register today!

Time is running out! Register for by May 14 to save 50% on your registration fee. Join us in person on June 14 at Dow...
05/12/2026

Time is running out!

Register for by May 14 to save 50% on your registration fee. Join us in person on June 14 at Downsview Park in Toronto for a fun, family-friendly event, at half the cost. Prefer to participate virtually? Take part from anywhere, anytime between June 1 and June 30, and complete your race your way.

All funds raised support important dystonia research and programs across Canada.

Register now: www.freedomtomove.org

With thanks to our event sponsor, Ontario Brain Institute.

This Mother’s Day, we recognize and honour the remarkable mothers in the community, including many whose lived experie...
05/10/2026

This Mother’s Day, we recognize and honour the remarkable mothers in the community, including many whose lived experiences help shape and strengthen DMRF Canada’s leadership. Our community is reflected not only in those we support, but also in those guiding our mission forward every day.

Your strength, compassion, advocacy, and resilience continue to inspire those around you and remind us of the importance of community and connection.

DMRF Canada offers resources and support for parents at every stage, whether you’re caring for a child with dystonia or navigating your own journey into parenthood. You are not alone, and support is here when you need it.

Learn more: www.dystoniacanada.org/parentsupport

Join the National Virtual Support Meeting on Saturday, May 16, from 12:00–2:00pm PST. Please check your local time zone....
05/08/2026

Join the National Virtual Support Meeting on Saturday, May 16, from 12:00–2:00pm PST.

Please check your local time zone. All are welcome, and we’re grateful to our volunteer Soreyea for hosting this session.

For more information and to join, please visit: https://dystoniacanada.org/events/national-virtual-support-meeting-may-16th-2026

Support meetings bring together people living with dystonia, whether newly diagnosed or living with it for many years, to connect, share, and support one another. These gatherings offer a space to both receive support and give back through shared experiences, encouragement, and hope. Thank you for being part of this caring community.

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PO BOX 1009 STN TORONTO DOM
Toronto, ON
M5K1P2

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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