PSC Partners Seeking a Cure Canada

05/31/2026

Can’t come in person? Join us virtually on Saturday, June 5th at 9am and participate in What the Cell?! Toronto 2026 from home.

Click here 👉🏻 https://pscpartners.ca/news-events/ to register today!

05/27/2026

📣 There’s still time to register for “What the Cell? Toronto 2026” with PSC Partners Seeking a Cure Canada!

From June 5–7, join others impacted by Primary Sclerosing Cholangitis (PSC) for a weekend of connection, learning, and conversation focused on PSC. Topics include PSC basics, clinical trials, transplant, and emerging cellular research.

Whether you are living with PSC or supporting someone who is, this event offers a welcoming space to learn and connect with others who understand the journey.

🗓 Registration closes June 1

🔗 Register here: https://pscpartners.ca/what-the-cell-toronto-2026/

✈️ Travelships are still available for those requiring travel and accommodation assistance.

05/04/2026

Join PSC Partners Seeking a Cure Canada from June 5th to June 7th for a weekend of learning and connecting for the PSC community. If you are a caregiver or a patient affected by primary sclerosing cholangitis, then this event is for you. Join us for dinner Friday night and get to know others in the PSC community. Learn about the basics of PSC, clinical trials, transplant, and get ready to explore PSC on a cellular level. Registration closes June 1st so register today and secure your spot: 🔗https://pscpartners.ca/what-the-cell-toronto-2026/

✈Travelships are available on a first come first served basis for those who need assistance with travel and accommodation costs.


The Centre for Living Organ Donation at UHN University Health Network Ajmera Transplant Centre at UHN

03/25/2026

LAST CALL! Register by Midnight tonight!

Join PSC Partners Seeking a Cure Canada on March 28 for a day of bilingual learning and connecting for the PSC community. If you are a caregiver or a patient affected by PSC in the Montreal area and beyond, then this event is for you. Learn about the basics of PSC, drug development research, and get ready to explore PSC on a cellular level. Join us for opportunities to meet and get to know others in the PSC community.

Registration closes at midnight so register for free now and secure your spot!

For more information and link to register:
https://pscpartners.ca/news-events/

03/16/2026

Are you 15–24 and living with PSC? Share your story in a 30-minute online survey + enter to win a $15 gift card.

Your experience can help improve PSC care for other young people.

✅ Diagnosed with PSC
✅ Ages 15–24
✅ English + device access
🔒 Private. Voluntary. You can skip any questions.

👉 See link in bio to take the survey.

Questions? Email the study team: [email protected]
Approved by Queen’s University HSREB.

03/12/2026

Seeking Canadian young people with PSC for this research study!

Are you 15–24 and living with PSC? Share your story in a 30-minute online survey + enter to win a $15 gift card.

Your experience can help improve PSC care for other young people.

✅ Diagnosed with PSC
✅ Ages 15–24
✅ English + device access
🔒 Private. Voluntary. You can skip any questions.

👉 Take the survey: bit.ly/4qQF8eW

Questions? Email the study team: [email protected]
Approved by Queen’s University HSREB.

PSC Partners Seeking a Cure Canada

02/19/2026

For those listed for transplant, post-transplant, caregivers or donors...

The The Centre for Living Organ Donation at UHN is offering a 6-week expressive writing workshop designed to help you explore and share your transplant journey through guided writing exercises.

📅 Dates: March 19 - April 23 2026
🕒 Time: 12:00–1:30 PM EDT
📍 Location: Online (Zoom)

Open to transplant recipients, living donors, those on the waiting list, and caregivers. Attendance at all six sessions is expected. Spots are limited to 25 participants.
Registration required – Link in bio


https://www.facebook.com/share/p/1PxxiJQqna/

Craft your story and connect with other transplant recipients, donors, and caregivers in a safe and supportive space guided by Dr. Sharon Bray.
Centre for Living Organ Donation is offering a 6-week expressive writing workshop designed to help you explore and share your transplant journey through guided writing exercises.

📅 Dates: March 19 - April 23 2026
🕒 Time: 12:00–1:30 PM EDT
📍 Location: Online (Zoom)

Open to transplant recipients, living donors, those on the waiting list, and caregivers. Attendance at all six sessions is expected. Spots are limited to 25 participants.

Registration required – givelifeuhn.eventbrite.ca

02/13/2026

Join PSC Partners Seeking a Cure Canada on March 28 for a day of bilingual learning and connecting for the PSC community. If you are a caregiver or a patient affected by PSC in the Montreal area and beyond, then this event is for you. Learn about the basics of PSC, drug development research, and get ready to explore PSC on a cellular level. There will be opportunities to meet and get to know others in the PSC community. Registration closes March 24th so register for free today and secure your spot!

REGISTER TODAY!
https://pscpartners.ca/news-events/

02/13/2026

From CDTRP - Canadian Donation and Transplantation Research Program, a webinar series for post-transplant functional resiliance. First in series of four is Feb 25th.

Functional Resilience After Solid Organ Transplantation
"Join us for a four-part virtual event series exploring physical activity and exercise after transplantation, from early post-transplant rehabilitation to long-term fitness, sports participation, and building resilience around exercise. We invite patients, family caregivers, clinicians, and researchers to join us as we share knowledge, experiences, and strategies to support functional recovery and active living post-transplant."
https://cdtrp.zoom.us/mee.../register/Nj15A1e4RTSJJSfbT5IjKg

02/12/2026

Big news for PSC drug development!! Elafibranor is moving forward into a Phase 3 clinical trial for PSC in study named ELASCOPE.

Recruitment information hasn’t been released yet, but the past Phase 2 Elafibranor study included Canadian research sites. We’re keeping a close eye on updates and will share details about participation as soon as they are announced.

Possibly eligible:
- Adults aged 18-75 with large duct PSC with compensated liver disease at screening
- Stable background therapy, where applicable prior to study entry

Possibly not eligible:
- History or presence of other chronic liver disease
- History of hepatic decompensation, including:
- - History of liver transplantation, current MELD 3.0 score ≥12 due to hepatic impairment, or
- - Evidence of complications of cirrhosis

For for study details, clinicaltrials.gov is listing this study at: https://clinicaltrials.gov/study/NCT07387549