MEFM Society of BC

MEFM Society of BC Myalgic Encephalomyelitis (ME) and Fibromyalgia (FM) affect over 100,000 British Columbia residents

We are a registered charity that was formed to help and support people, and their families, living with the health conditions Myalgic Encephalomyelitis (ME) and/or Fibromyalgia (FM).

Stanford's Genome Technology Center is hosting a free virtual Community Symposium on the Molecular Basis of ME/CFS, feat...
09/04/2026

Stanford's Genome Technology Center is hosting a free virtual Community Symposium on the Molecular Basis of ME/CFS, featuring distinguished speakers sharing the latest research updates and insights. Presented on behalf of Dr. Ronald Davis.

- Friday, September 11, 2026
- 8:00 AM PST
- Virtual, register to attend

Register now: https://stanford.zoom.us/webinar/register/WN_SHMUXqjTSj6wNicQ6LSyPw #/registration

Our 2026 Annual General Meeting is coming up!Join us Saturday, September 26 at 2 pm PST for updates on our strategic pla...
09/03/2026

Our 2026 Annual General Meeting is coming up!

Join us Saturday, September 26 at 2 pm PST for updates on our strategic plan, our projects, and what we're doing to support the ME/CFS, Fibromyalgia, and Long COVID community in BC, plus a chance to share your own ideas and feedback.

Society membership is free, and you'll need to be a member to attend. To vote, membership must be at least 30 days old, so join today if you'd like to have a say.

Become a member & Register for the AGM (link in bio)

https://www.mefm.bc.ca/become-a-member
https://us02web.zoom.us/j/82447583760

In BC, there are over 200,000 people with either myalgic encephalomyelitis (ME) or Long COVID that has lasted over a yea...
09/02/2026

In BC, there are over 200,000 people with either myalgic encephalomyelitis (ME) or Long COVID that has lasted over a year. If this is you or your loved one, your voice is deeply needed.

Reaching out to your MLA is easier than you think. Join other disabled volunteers & caregivers to speak up for your healthcare needs. Volunteering with us will not ask for more than your energy envelope can handle.

We can coach you to tell your story to your MLA in a way that is compelling, effective, and considerate of your symptoms.

Sign up via the linktree in our bio or email [email protected]

https://www.mefm.bc.ca/

25% of people with myalgic encephalomyelitis (ME) are house- or bed-bound.We can speak for ourselves, but we can't do it...
08/26/2026

25% of people with myalgic encephalomyelitis (ME) are house- or bed-bound.

We can speak for ourselves, but we can't do it alone. We want to reach as many MLAs as
possible, and they don't often reply to those outside their ridings. The more volunteers
we have across BC, the stronger our advocacy.

We'll connect you with your MLA to share your story and express your healthcare
priorities for BC.

Sign up via the linktree in our bio or email [email protected]

https://www.mefm.bc.ca/

Patients with ME and Long COVID face dismissal, as well as ineffective and unsafe care from healthcare providers. We've ...
08/25/2026

Patients with ME and Long COVID face dismissal, as well as ineffective and unsafe care from healthcare providers. We've heard the community's priorities in our research; now we want to hear from you.

How has inadequate care changed your life? What would help? We can coach you to tell your story to your MLA in a way that is compelling, effective, and considerate of your symptoms.

Sign up via the linktree in our bio or email [email protected]

https://www.mefm.bc.ca/

New resource for healthcare providers 📋Our own survey data shows most patients rank "more knowledgeable providers" as th...
08/03/2026

New resource for healthcare providers 📋

Our own survey data shows most patients rank "more knowledgeable providers" as their top priority for better care, and most physicians say they feel only moderately confident in diagnosing and treating ME.

We've launched a new Clinician Education and Training page: a curated, free list of continuing education resources covering diagnosis, post-exertional malaise, orthostatic intolerance, disability documentation, and more, drawn from trusted sources like the ME Association, CDC/Medscape, the Bateman Horne Center, Solve ME/CFS Initiative, and NICE Guideline NG206.

If you have a healthcare provider, this is an easy way to help them learn more. Share the link below, or bring it to your next appointment.

https://www.mefm.bc.ca/clinician-education-and-training

Why does defining Long COVID matter? A new peer-reviewed study confirms what we've said before: getting the definitions ...
07/30/2026

Why does defining Long COVID matter? A new peer-reviewed study confirms what we've said before: getting the definitions right isn't just academic; it directly affects whether research is valid and whether treatments help or harm.

The study, "Rethinking measurement of health outcomes in Long COVID," found that many studies use only partial definitions or lump Long COVID/ME in with a lengthened recovery from the virus, organ damage, or flare-ups of existing conditions. The researchers put it plainly: failure to account for this variability limits our ability to show whether treatments actually work.

That's why we've put together a breakdown of the different types of Long COVID, each with its own symptoms, risks, and treatments. Understanding which one a person is experiencing is critical to getting the right care.

Read more in our blog:
https://www.mefm.bc.ca/post/why-defining-long-covid-matters-for-research-and-care

The ME|FM Society of BC is looking for skilled individuals to join our Board. Together, we create and execute strategic ...
07/28/2026

The ME|FM Society of BC is looking for skilled individuals to join our Board. Together, we create and execute strategic plans and help deliver programs like our Social Support Groups and the My MLA and ME Outreach Campaign.

We're currently focused on recruiting in three areas:

-Fundraising
-Non-profit management and administration
-Financial Management (Treasurer: CPA or CGA)
-Legal

Board members volunteer about 10 hours per month, and all society work is virtual. We accommodate those with disabilities and understand the challenges many of our Board and volunteers face with respect to participation.

Interested? Apply by Aug. 27, 2026. Send your resume, cover letter, and references to [email protected].

https://www.mefm.bc.ca

07/23/2026

Take the challenge! We're inviting our community, and yours, to send us a short video (15 seconds or less) or photo of yourselves planking in support of ME research. This challenge supports the Open Medicine Foundation's (OMF) current fundraising campaign.

Can't hold a plank? No problem. Lie down on the floor, a couch, or a bed instead, and just say you're planking in support of ME research.

However you choose to participate, we'd love to have you.

Details and submission info in our latest blog.

https://www.mefm.bc.ca/post/take-the-plank4me-challenge-support-me-research

New research may help explain why exertion hits so hard for people with ME/CFS.Dr. Alain Moreau's team at OMF found that...
07/07/2026

New research may help explain why exertion hits so hard for people with ME/CFS.

Dr. Alain Moreau's team at OMF found that people with ME/CFS have lower levels of a muscle protein called irisin, and a blunted response to physical exertion, offering a possible piece of the post-exertional malaise (PEM) puzzle.

Want the full breakdown? Join OMF's live Journal Club on July 9 at 1 p.m. ET.

Read our summary → https://www.mefm.bc.ca/news/categories/research-education
Register for the webinar → https://us02web.zoom.us/webinar/register/WN_Vz4RSa0uS_q8IrFiJcbt_g #/registration

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Vancouver, BC
V6J5M4

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+16048787707

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