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GFCNI Connecting the world for newborn health! We represent the patient and parent voice in the global arena, transcending country borders and continents.

Connecting the world for newborn health, we at the Global Foundation for the Care of Newborn Infants (GFCNI) envision a future where every baby born receives the right care, at the right time, in the right place! The Global Foundation for the Care of Newborn Infants (GFCNI) works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world. Our particular focus is on infants born too soon, too small, or too sick – those who need special medical care and hospitalization after birth. GFCNI is the first global organization and network to unite patients, families, healthcare professionals, medical staff, and scientists from different disciplines, fields, and countries – all with the joint goal of advancing the health and quality of care for newborns and their families across the globe. We envision a future where every baby born receives the right care, at the right time, in the right place!

13/10/2026

The countdown to the Turkish Neopedia platform is now on!

We are delighted to announce that in two weeks we will be launching the platform together with Premature Bebek, providing Turkish-speaking families with access to essential information on everything from high-risk pregnancies and NICU stays to taking your baby home and follow-up care.

One of Neopedia’s special features is the parent-to-parent advice. It adds warmth and a personal touch to the factual explanations, and we hope that it will let families know that they are not alone. Preterm birth affects families everywhere in the world, and there is a global community of parents and preemies who all share this experience in one way or another.

Thank you İlknur Okay, president of the Turkish organization El Bebek Gül Bebek, for your kind advice on how to be there for your baby in the NICU, and for the amazing collaboration on Turkish Neopedia.

📅 Launch date: October 27, 2026
✍️ Sign up now to be notified: www.neopedia.org/tr

❓ 𝐂𝐚𝐧 𝐍𝐈𝐂𝐔 𝐩𝐚𝐫𝐞𝐧𝐭𝐬 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐏𝐓𝐒𝐃?Having a baby in the NICU can be overwhelming. An unexpected or difficult birth, fear...
12/10/2026

❓ 𝐂𝐚𝐧 𝐍𝐈𝐂𝐔 𝐩𝐚𝐫𝐞𝐧𝐭𝐬 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐏𝐓𝐒𝐃?

Having a baby in the NICU can be overwhelming. An unexpected or difficult birth, fear for your baby’s health, separation, medical procedures, alarms, and uncertainty can all leave a lasting emotional impact. 💜

For some parents, these experiences may be followed by post-traumatic stress disorder (PTSD). Research suggests that approximately 1 in 4 NICU parents experience symptoms of post-traumatic stress in the months following their baby’s birth.

Both mothers and fathers can be affected.

🧠 What can PTSD look like?
Symptoms can vary from person to person, but may include:
• Unwanted or distressing memories of the birth or NICU stay
• Nightmares or feeling as if you are reliving parts of the experience
• Avoiding places, conversations, or reminders connected to the NICU
• Feeling constantly on alert or easily startled
• Difficulty sleeping or concentrating
• Feelings of fear, guilt, numbness, or disconnection

💡 Good to know:
Having some of these reactions after a stressful event does not necessarily mean that you have PTSD. A diagnosis depends on the type, duration, and impact of symptoms, and should only be made by a qualified healthcare or mental health professional.

🤝 Support can help.
If memories or feelings related to your baby’s NICU stay are intense, persistent, or interfere with everyday life, consider talking to a healthcare or mental health professional. Counseling, trauma-informed care, peer support, and support from family and friends can all be valuable resources.

✨ World Mental Health Day reminds us that NICU parents’ mental health matters, too. Caring for parents is an important part of caring for babies. 💗

💜 You are heard. Your experiences matter.For parents who have or had a baby in the NICU, this experience can bring many ...
10/10/2026

💜 You are heard. Your experiences matter.

For parents who have or had a baby in the NICU, this experience can bring many emotional challenges, from fear and uncertainty to stress and anxiety. These feelings don't always end when families leave the hospital.

On , under this year's theme “Lived Experiences Heard: Real Voices, Real Change,” we want to remind all parents that their feelings are valid, their voices matter, and they deserve all the support they need.

Families can find real stories from other parents, reliable information about mental health challenges, and guidance on where and how to seek support on Neopedia (in various languages): https://www.neopedia.org/parent-support

09/10/2026

💜 𝐄𝐯𝐞𝐫𝐲 𝐟𝐚𝐦𝐢𝐥𝐲 𝐝𝐞𝐬𝐞𝐫𝐯𝐞𝐬 𝐚𝐜𝐜𝐞𝐬𝐬 𝐭𝐨 𝐪𝐮𝐚𝐥𝐢𝐭𝐲 𝐧𝐞𝐰𝐛𝐨𝐫𝐧 𝐜𝐚𝐫𝐞. South Africa has made important advances in maternal and newborn health. Yet for many families, where they live can still determine the care they receive.

In this video, 𝐓𝐚𝐬𝐦𝐢𝐧 𝐁𝐨𝐭𝐚 from Preemie Connect shares why equal access to high-quality care and emotional support for parents are still some of the biggest challenges facing families today.
When parents receive the information, resources, and support they need, babies don’t just survive – they have the opportunity to thrive.

🎥 This video is part of 𝐅𝐚𝐜𝐞𝐬 𝐨𝐟 𝐆𝐅𝐂𝐍𝐈, highlighting voices from our global network working to improve outcomes for preterm and sick newborns everywhere.

Thank you, 𝐏𝐫𝐞𝐞𝐦𝐢𝐞 𝐂𝐨𝐧𝐧𝐞𝐜𝐭, for advocating for babies and families across South Africa. 💜

📣 New on Neopedia!Today is - a day to raise awareness about protecting vision and eye health. To mark this important d...
08/10/2026

📣 New on Neopedia!
Today is - a day to raise awareness about protecting vision and eye health. To mark this important day, we are excited to share new content about Retinopathy of Prematurity (ROP) and ROP prevention on our global information platform .

ROP is an eye condition that can affect babies born too early. Regular eye checks, early detection, and timely care can make an important difference in protecting a baby’s vision.

The new Neopedia page explains ROP in clear, parent-friendly language and offers helpful information for families of preterm or sick babies, as well as healthcare professionals supporting them.

🔗 Read the new page and help us raise awareness for healthy vision from the very beginning: www.neopedia.org/pregnancy-birth/complications/eye

🌍️ Available in English, French, German, Italian, Spanish, and Portuguese, with more languages to come: Turkish in 2026 and Greek in 2027!

Created with parent organization and reviewed by experts worldwide, Neopedia is bridging the information gap on neonatal care and prematurity.

The Neopedia platform is unconditionally supported by Chiesi. The ROP prevention content was developed with support from Neobiomics.

💜 Going home from the is often filled with hope and relief, but it can also bring a whole new set of worries.After day...
07/10/2026

💜 Going home from the is often filled with hope and relief, but it can also bring a whole new set of worries.

After days, weeks, or even months surrounded by healthcare professionals, many parents suddenly find themselves at home asking:
Is my baby feeding enough?
Is their breathing normal?
Is their growth on track?
When should I ask for help?

For our latest – Beyond the NICU story, we spoke with Désirée Kost from Frühchen Schweiz about why follow-up care is about so much more than medical checkups. 🏠

It is also about reassurance, practical guidance, knowing who to call, and helping families feel supported as they find their new rhythm at home.
Désirée’s message to parents is simple: Every family’s journey after the NICU is different, but no parent should have to face it alone. 💜

✨ Small babies have big potential and meaningful follow-up care can help protect their future.

🔗 Read the full story on our website: https://www.gfcni.org/campaigns/world-prematurity-day-stories

💚 Today is World Cerebral Palsy Day!Cerebral palsy can affect movement, posture, and coordination in many different ways...
06/10/2026

💚 Today is World Cerebral Palsy Day!

Cerebral palsy can affect movement, posture, and coordination in many different ways. Every child is different, and early support, appropriate therapies, and family-centered care can make an important difference.

✨ But do you know the six F-words?
Function. Family. Fitness. Fun. Friends. Future.

These “Favourite Words” help shift the focus toward what matters in a child’s everyday life, taking part, building relationships, enjoying activities, staying active, and looking ahead. 💚

🔗 Learn more about cerebral palsy, the F-words framework, and further resources on Neopedia: https://www.neopedia.org/going-home/long-term/health

World CP Day

💬 𝐖𝐨𝐫𝐝 𝐨𝐟 𝐭𝐡𝐞 𝐖𝐞𝐞𝐤: 𝐒𝐚𝐟𝐞 𝐒𝐥𝐞𝐞𝐩Creating a safe sleeping environment matters for all babies, especially those born preterm...
05/10/2026

💬 𝐖𝐨𝐫𝐝 𝐨𝐟 𝐭𝐡𝐞 𝐖𝐞𝐞𝐤: 𝐒𝐚𝐟𝐞 𝐒𝐥𝐞𝐞𝐩

Creating a safe sleeping environment matters for all babies, especially those born preterm or with a low birth weight, as it can help reduce the risk of sudden infant death syndrome (SIDS). 💤

💡 Good to know:
SIDS is the unexpected death of an apparently healthy baby, most commonly during the first year of life. The causes aren’t fully understood, but safe sleep practices can significantly reduce the risk.

🏠 How can I help my baby sleep safely?

✔️ Safest position:
Place your baby on their back at the start of every sleep, unless advised otherwise by your healthcare team.

✔️ Own sleep space:
Use a crib or bassinet with a firm, flat mattress, without pillows, toys, loose bedding, pets, or other people. Car seats, swings, and other inclined or sitting devices aren’t for routine sleep.

✔️ Avoid overheating:
Dress your baby according to the room temperature and don’t use hats indoors.

✔️ Smoke-free environment:
Keep your baby away from to***co smoke.

✔️ Sleeping bags:
A well-fitting baby sleeping bag can be a safer alternative to loose blankets.

🛏️ What about co-sleeping?
The safest place for your baby is in their own crib or bassinet, close to your bed, in your bedroom. This is especially important for preterm or low-birth-weight babies, as bed-sharing can pose additional risks for them.

If you might fall asleep with your baby in bed, keep pillows and blankets away from them. Move your baby back to their own space when you wake. Never fall asleep with your baby on a couch or armchair and never share a sleep surface if an adult has smoked, consumed alcohol or drugs, or taken medication that makes them drowsy.

👶 Why might sleep look different in the NICU?
In the NICU, babies are sometimes placed on their stomachs or sides, or with positioning support, while being closely monitored. At home, always put your baby to sleep on their back and use positioning aids or nests only under adult supervision.

✨ October is SIDS Awareness Month! Share our post to help families create a safer sleep environment for their baby. 💜

Breast cancer affects people around the world, with the risk increasing with age. 🌍️ 💡 Breast Cancer Awareness Month hig...
02/10/2026

Breast cancer affects people around the world, with the risk increasing with age. 🌍️

💡 Breast Cancer Awareness Month highlights the importance of accessible screening, timely diagnosis, appropriate care and more research into breast cancer.

🩺 Being familiar with your body, speaking to a healthcare professional about unusual changes and taking part in recommended screening programmes can support early detection.

💜 The World Prematurity Day 2026 Social Media Toolkit is here!This year, we come together under the slogan:Small babies,...
01/10/2026

💜 The World Prematurity Day 2026 Social Media Toolkit is here!
This year, we come together under the slogan:
Small babies, big potential. Invest in follow-up care to protect their future!

The toolkit includes free graphics, key messages, and communication materials to help you raise awareness in your community, online, and around the world. 🌍

This year, World Prematurity Day will be observed on November 15 for the first time, following its official recognition as part of the World Health Organization (WHO) calendar of global health campaigns. We invite you to join us in turning the world purple for babies born too soon and their families. Use the materials, share the message, and help us raise awareness for the importance of follow-up care after the NICU. 🏠

🔗 Access the toolkit here:
https://trello.com/b/grJQcVAj/world-prematurity-day-social-media-toolkit

Join us to make this global movement stronger than ever. 💜

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