Ern-Rnd European Reference Network for Rare Neurological Diseases

28/08/2026

Rare disease registries are essential for advancing research and clinical trials, particularly in rare neurological diseases.

Join our free online scientific symposium on Registries for Rare Neurological Diseases on October 10 and register now: https://us02web.zoom.us/webinar/register/WN_m-8eQwGwTge3kXUTOtAzUg #/registration

Programme:https://www.ern-rnd.eu/wp-content/uploads/2026/07/Programme_ERN-RND_ScientificSymposiumOctober10_Newsletter.pdf

25/08/2026

💻 Upcoming joint with ERN EURO-NMD and the Academy of Neurology
📚 Social and life style issues related to ataxias and HSP
📅 08 September, 3-4pm CET
🗣️ Lotte van de Venis and Lori Renna Linton,
Radboud University Medical Center, Nijmegen, The Netherlands, and Euro-HSP

Sign up to our free educational webinar 👉 https://t1p.de/h5xgf

24/08/2026

💻 Upcoming joint with ERN EURO-NMD and the Academy of Neurology
📚 Diagnostics and Treatment of Dystonia
📅 15 September, 3-4pm CET
🗣️ Dénes Zádori, Department of Neurology, University of Szeged

Sign up to our free educational webinar
👉
https://t1p.de/bdiog

19/08/2026

On October 10 we will focus on "Registries for RND" in our Scientific +Symposium. Do you want to join us online (and free of charge)? Then register here now: https://us02web.zoom.us/webinar/register/WN_m-8eQwGwTge3kXUTOtAzUg #/registration

Programme:https://www.ern-rnd.eu/wp-content/uploads/2026/07/Programme_ERN-RND_ScientificSymposiumOctober10_Newsletter.pdf

05/08/2026

Learn more about registries in Rare Neurological Diseases in our Scientific on October 10 - online and free of charge!

For programme and registration click here:https://www.ern-rnd.eu/wp-content/uploads/2026/07/Programme_ERN-RND_ScientificSymposiumOctober10_Newsletter.pdf

05/08/2026

29/07/2026

Interested in Registries for Rare Neurological Diseases? Then join our Scientific on October 10 - online and free of charge!

The Symposium will focus on:
- Framework for RND registries
- Registry Examples in ERN-RND
- Regulatory and Methodological Perspectives

To see the programme and to register click here: https://www.ern-rnd.eu/.../Programme_ERN-RND...

27/07/2026

: From characterising gait disorders and interpreting blood results to recognising potential complications, our virtual patient cases on and guide learners through the clinical reasoning process and highlight diagnostic blind spots.

Become an expert in Ataxias and HSPs with the only UEMS certified postgraduate curriculum in the competency "Rare Neurological Diseases", consisting of:

- educational webinars and readings ()
- virtual patient cases ()
- expert centre stay for hands-on training

Interested? Visit our website for more information: https://www.ern-rnd.eu/postgraduate-curriculum-in-rare-neurological-diseases/

European Academy of Neurology Euro-ataxia

24/07/2026

Stay informed on the latest developments in rare neurological diseases by subscribing to our : https://www.ern-rnd.eu/mailpoet-email/6ec3e8c5c2fb-ern-rnd-newsletter-july-2026/

You'll receive updates on:
• New standards of care
• Clinical decision support tools
• Educational webinars
• Opportunities to participate in research and initiatives
• Upcoming events, including our Scientific Symposium: "Registries for Rare Neurological Diseases (RND)"

Join our community and stay connected with the latest knowledge, collaboration opportunities, and events shaping the future of rare neurological disease care.