Vivir con Chiari&Siringomielia

24/06/2026

Algo se mueve …. Menos mal 👍‼️♥️

🧠 How do you get Chiari? 🤔

John Heiss, MD presents: " Mechanisms for the Development of Chiari I Malformation"

Dr. Heiss will discuss 7 mechanisms causing Chiari I malformation, how to distinguish them on MRI scans, and how treatment is tailored to the mechanism of CM I development. The influence of genetic factors on these mechanisms will be mentioned. The talk will conclude by summarizing how advances in genetics, imaging, outcome studies, and surgical experience influence the care of patients with Chiari I malformation.

📆 July 28-29!
⚠ Reserve your spot: https://tinyurl.com/ASAPConference2026

👩‍⚕️👨‍⚕️ Learn more about our distinguished speakers: https://tinyurl.com/asapspeakers2026

National Institutes of Health (NIH) National Institutes of Health (NIH)

24/06/2026

Tan real y tan verdad. Puedo asegurarlo a 32 grados ahora mismo en el exterior 😵‍💫😵‍💫😵‍💫‼️♥️

☀️ Heat intolerance is REAL for many people living with CM/SM and associated disorders like dysautonomia and POTS.

When the autonomic nervous system struggles to regulate temperature, even everyday summer heat can trigger:
💧 Dizziness
💧 Headaches
💧 Fatigue
💧 Brain fog
💧 Rapid heartbeat
💧 Increased pain & neurological symptoms

Staying cool and hydrated isn’t just about comfort — it can help reduce symptom flares and support overall wellness.

Helpful reminders this summer:
✔️ Drink fluids consistently
✔️ Avoid peak heat hours
✔️ Use cooling towels, fans, or ice packs
✔️ Rest when symptoms worsen
✔️ Eat hydrating foods like watermelon, cucumber & oranges
✔️ Listen to your body

Learn more about heat intolerance, nervous system dysregulation, hydration tips, nutrition, and symptom management in the ASAP community

👉👉 https://asap.org/heat-intolerance-in-syringomyelia/

20/06/2026

Aquí lo veis perfectamente cuando está en su sitio. Y sí un golpe para nosotros descomprimidos y con falta de hueso es aún más peligroso. Cuidado ‼️♥️

08/06/2026

Soy su fan …. Tan buena información ‼️‼️ gracias ‼️♥️

08/06/2026

🎉 Congratulations to the recipients of the 2026 Timothy M. George Fellowship Award!

Presented by the American Syringomyelia & Chiari Alliance Project (ASAP), this award supports promising medical students, residents, and neurosurgeons dedicated to advancing research in syringomyelia, Chiari malformation, and related disorders.

Through their commitment to scientific discovery and improved patient care, these researchers are helping shape a brighter future for our community.

Please join us in celebrating this year's award recipients and their important contributions to the field! 👏💙💜

https://asap.org/current-research/fellowships-and-awards/

See Dr. Ravindra live during ASAP's free virtual conference: https://tinyurl.com/ASAPConference2026

University of Utah Neurosurgery University of Utah Health