AGE Program

AGE Program Adult Genetic Epilepsy Program

Grateful to have been part of the European Dravet Syndrome Conference, in Madrid, 🇪🇸 this year.I had the opportunity to ...
21/03/2026

Grateful to have been part of the European Dravet Syndrome Conference, in Madrid, 🇪🇸 this year.

I had the opportunity to present on clinical and neuropathological insights into Dravet syndrome and to chair a session with outstanding colleagues and a courageous, loving mother of a patient with DS.

One of the highlights, as always, was reconnecting with friends, fellow physicians, scientists, and families, all united by a shared commitment to improving the lives of individuals with Dravet syndrome.

Moments like this (captured just before my talk!) remind me how strong and collaborative this community truly is.

Looking forward to continuing this work together.

EpilepsyCommunity EpilepsyResearch Andreas Brunklaus
Simona Giorgi Massimo Mantegazza Jacqueline French Fundación Síndrome de Dravet Dravet Syndrome Foundation UHN Foundation University Health Network Krembil Research Institute

We may have been thinking about Dravet syndrome too narrowly. For decades, Dravet syndrome has been framed primarily as ...
05/03/2026

We may have been thinking about Dravet syndrome too narrowly. For decades, Dravet syndrome has been framed primarily as a severe pediatric epilepsy. But as more individuals reach adulthood, we are learning that the neurological story continues to evolve.
In this upcoming talk at the European Dravet Syndrome Conference 2026, I will discuss clinical and neuropathological insights into Dravet syndrome, including what long-term clinical follow-up and neuropathological studies are beginning to reveal about the lifespan trajectory of this condition.
I would be very interested to hear from colleagues if they are also observing new clinical manifestations emerging as these patients age.
Neuroscience MovementDisorders RareDisease

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