ERN-Skin

13/10/2026

📢 Next week: ERN-Skin AIBD + ToxiTEN e-training course for residents

📅 Join us on 22 October 2026, from 5:00 to 7:00 pm CET, for two hours of expert teaching focusing on bullous diseases, DRESS syndrome and toxic epidermal necrolysis (TEN).

5:00 - 6:00 pm CET: Bullous Diseases
• Diagnosis and Management of EBA, Frédéric Caux
• Diagnosis of AIBD of the Dermal Side of the DEJ, Matthias Goebeler

6:00 - 7:00 pm CET: DRESS & TEN
• DRESS Syndrome: From Clinic to Treatment, Frédéric DEZOTEUX
• Toxic Epidermal Necrolysis: A Case-Based Approach to Diagnosis and Management, Clémentine Toussaint

Chairs: Prof. Matthias Goebeler and Prof. Pascal Joly.

👉 Register for the e-training course: https://ern-skin.eu/ern-skin-meetings/

Registration is still open. Join us for an afternoon of learning and knowledge-sharing with leading specialists.

02/10/2026

02/10/2026

Congratulations to Professor Christine Bodemer!

The ERN-Skin network is delighted to celebrate Professor Christine Bodemer, ERN-Skin Coordinator, who has received the EADV Scientific Achievement Award 🏆

This recognition from the European Academy of Dermatology and Venereology (EADV) celebrates scientific excellence and outstanding contributions to dermatology.

Professor Bodemer has played a key role in the development and coordination of ERN-Skin.

💙 The entire ERN-Skin team warmly congratulates her on this well-deserved achievement!

01/10/2026

🏆 We have a quiz winner!

Yesterday, during the ERN-Skin session at the EADV - European Academy of Dermatology and Venereology Congress, participants had the chance to test their knowledge in our quiz with an exciting prize!

👏 Congratulations to Alessandra Gelmetti, who won free registration to the 2028 World Congress of Rare Skin Diseases!

Thank you to everyone who took part and helped make the session an engaging and enjoyable experience.

24/09/2026

📢 2026 ERN-Skin Board Meeting

We are pleased to announce that the next ERN-Skin Board Meeting will take place on 19–20 November 2026 in Paris, France.

📍 The meeting will be hosted at Hôpital Necker–Enfants Malades and Institut Imagine.

📄 The preliminary programme is now available. Discover the planned sessions and activities and start preparing for the meeting:
https://ern-skin.eu/wp-content/uploads/2026/09/2026-Board-Programme-15092026.pdf

We look forward to welcoming the ERN-Skin team to Paris! 🇫🇷

10/09/2026

📢 Little reminder: the deadline is TODAY!

We’re sharing this opportunity with you one last time: the ERDERA Clinical Trial Call 2026 (ECTC) is open for applications, with the Expression of Interest deadline today, 10 September 2026.

The call supports multinational, GCP-compliant early-phase clinical trials in rare diseases, including Phase I, Phase I/II and Phase II studies, with the aim of strengthening clinical evidence and accelerating the development of innovative treatments.

If you or your colleagues are working on rare disease clinical research, today is the last opportunity to submit an Expression of Interest.

👉 More information: https://erdera.org/call/ctc2026/

Please help us spread the word by sharing this opportunity with your network! 💙

Erdera

ERDERA has launched its Clinical Trial Call (ECTC) to support multinational, GCP‑compliant early‑phase interventional clinical trials in rare diseases.

08/09/2026

⏳The ERN-Skin Symposium is coming soon!

We’re getting closer to the 2026 EADV Congress, where we’ll be hosting the ERN-Skin Symposium on 30 September 2026, from 8:30 to 10:00 CEST.

Join us for a morning of knowledge sharing, discussion and exchange around rare skin diseases.

Have a look at the program of the session: https://pagv3.virtual-meeting.org/eadv/eadvcongress2026/en-GB/pag/session/6858?is_sponsored=-1&view=vertical&segment=sessions&fullscreen=1

We look forward to seeing you there!

EADV - European Academy of Dermatology and Venereology

24/08/2026

29/07/2026

Making information more accessible can make a real difference. 🌍

Today, we would like to highlight the work of CMTC-OVM, a global non-profit patient organisation supporting patients and families affected by vascular malformations.

CMTC-OVM provides a valuable collection of information folders in multiple languages, covering a wide range of conditions and topics relevant to patients, families, caregivers, teachers and healthcare professionals.

For people navigating a rare condition, access to understandable and relevant information is an important part of feeling informed, supported and less alone.

We invite you to explore these resources and share them.

🔎 Find the information folders on the CMTC-OVM website: https://www.cmtc.nl/en/activities/information-material/information-folders/

We have a whole series of information folders available in multiple languages. All folders can be downloaded or sent directly!

27/07/2026

💻 Register to our upcoming ERN-Skin AIBD Webinar!
📆 Taking place on 30th of July 2026 from 5:00 – 6:00 pm CET

Organized by the ERN-Skin AIBD thematic group this webinar will be structured into 2 parts:

🔹 Part 1: Over-mortality in bullous pemphigoid patients in the first 6 months after diagnosis: insights from a cohort study, presented by Carmen Glück, Würzburg.

🔹 Part 2: Drug survival in bullous pemphigoid, presented by Leon Johannsen, Würzburg.

It will be chaired by Marc Yale, Research & Policy Advisor at International Pemphigus & Pemphigoid Foundation.

👉 If you haven't registered yet, make sure to register: https://ern-skin.eu/webinars/