ERN-Skin

24/08/2026

29/07/2026

Making information more accessible can make a real difference. 🌍

Today, we would like to highlight the work of CMTC-OVM, a global non-profit patient organisation supporting patients and families affected by vascular malformations.

CMTC-OVM provides a valuable collection of information folders in multiple languages, covering a wide range of conditions and topics relevant to patients, families, caregivers, teachers and healthcare professionals.

For people navigating a rare condition, access to understandable and relevant information is an important part of feeling informed, supported and less alone.

We invite you to explore these resources and share them.

🔎 Find the information folders on the CMTC-OVM website: https://www.cmtc.nl/en/activities/information-material/information-folders/

We have a whole series of information folders available in multiple languages. All folders can be downloaded or sent directly!

27/07/2026

💻 Register to our upcoming ERN-Skin AIBD Webinar!
📆 Taking place on 30th of July 2026 from 5:00 – 6:00 pm CET

Organized by the ERN-Skin AIBD thematic group this webinar will be structured into 2 parts:

🔹 Part 1: Over-mortality in bullous pemphigoid patients in the first 6 months after diagnosis: insights from a cohort study, presented by Carmen Glück, Würzburg.

🔹 Part 2: Drug survival in bullous pemphigoid, presented by Leon Johannsen, Würzburg.

It will be chaired by Marc Yale, Research & Policy Advisor at International Pemphigus & Pemphigoid Foundation.

👉 If you haven't registered yet, make sure to register: https://ern-skin.eu/webinars/

09/07/2026

06/07/2026

01/07/2026

✨ A wrap-up of Day 1 at !

Today was filled with inspiring talks, the latest research, engaging discussions, and plenty of opportunities to connect with colleagues working across the rare skin disease community.

It was great to see researchers, clinicians, patient representatives, and industry partners exchanging ideas and sharing experiences throughout the day.

We are looking forward to another day of learning, collaboration, and conversations that continue to drive progress in rare skin diseases.

See you tomorrow! 👋

30/06/2026

Looking forward to combining science, networking, and a bit of movement during the 3rd World Congress on Rare Skin Diseases!

Join the Strava club to explore the beautiful gardens of Versailles with a run or walk between sessions. It's a great reminder that taking care of our well-being is part of making the most of a busy congress.

If you're attending, feel free to join the Strava group and log your activities throughout the event.

More information here: https://www.strava.com/clubs/2082219?share_sig=0921D89E1781507076&_branch_match_id=1600417963795178192&_branch_referrer=H4sIAAAAAAAAA8soKSkottLXLy4pSixL1EssKNDLyczL1s%2Fz9HXziQw3izROsq8rSk1LLSrKzEuPTyrKLy9OLbL1AapJTfHMAwDDY8GUPwAAAA%3D%3D

See you in Versailles! 🏃🌿

Fondation René Touraine - International Foundation for Dermatology

30/06/2026

📅 WCRSD 2026 starts tomorrow!

Before you head to Versailles, take a few minutes to make sure you're ready:
- Have you explored the scientific programme and highlighted the sessions you don't want to miss?
- Have you checked your registration confirmation and printed your badge?
- Have you planned your journey to the Palais des Congrès de Versailles?
- Have you connected with colleagues you'll be meeting during the congress?

Make the most of the congress by planning ahead and tailoring your experience to your interests!

📅 View the programme: https://wcrsd.com/en/program

ℹ️ Practical information, venue details and more: https://wcrsd.com/en/practical-information

We look forward to seeing the rare skin disease community come together tomorrow.

Fondation René Touraine - International Foundation for Dermatology