Cardiomyopathy UK

Cardiomyopathy UK Cardiomyopathy UK is the specialist national charity for people affected by cardiomyopathy.

We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.

An exciting few weeks of autumn challenge events are coming up, and we want to take a moment to say a huge thank you to ...
09/09/2026

An exciting few weeks of autumn challenge events are coming up, and we want to take a moment to say a huge thank you to everyone taking part on behalf of Cardiomyopathy UK!

First up, 14 amazing runners are taking on the Great North Run this weekend – and together, they’re aiming to raise an incredible £10,000 to support our vital work. Thank you for your dedication, determination and support – we'll be cheering you on every step of the way ♥️
..and that’s just the start!

will also be taking on the Royal Parks Half Marathon, Amsterdam Marathon, York Marathon, Great South Run, Ipswich Half Marathon, London to Paris Bike Ride and London to Brighton Bike Ride in the coming weeks.

To everyone running, riding, fundraising and supporting: YOU’VE GOT THIS!

Feeling inspired? We’re already looking ahead to spring 2027, when we have some amazing challenges coming up that we’d love you to be part of! Head over to our website to find your next adventure 👇️

https://www.cardiomyopathy.org/find-a-challenge

The Benefact Group Movement for Good is giving away £1,000 to 100 charities in this month's prize draw – and we want to ...
07/09/2026

The Benefact Group Movement for Good is giving away £1,000 to 100 charities in this month's prize draw – and we want to be one of them. Can you spare a minute today to help?

Charities are chosen at random from public nominations – so the more nominations we get, the better our chances!

Nominate Cardiomyopathy UK here (if two options come up when you search for us, you can choose either) 👇️
https://movementforgood.com/draws/1000

You only need to nominate once – but please share this with your friends and family too. Every nomination boosts our chances ♥️

07/09/2026

Learn how to live better with amyloidosis. A free event for people living with amyloidosis, their families and carers.

September's here, and we have a busy month of support groups ahead! 🍂 Cardiomyopathy UK support groups are a great oppor...
02/09/2026

September's here, and we have a busy month of support groups ahead! 🍂

Cardiomyopathy UK support groups are a great opportunity to connect in a relaxed environment, whether in person or online. See more information and joining instructions:

🌐 www.cardiomyopathy.org/supportgroups
📧 [email protected]

Our summer tour through research at Cardiomyopathy UK has come to an end – and we've absolutely loved telling you all ab...
01/09/2026

Our summer tour through research at Cardiomyopathy UK has come to an end – and we've absolutely loved telling you all about our Catalyst Grants.

To everyone who donated, shared their story, or shared our research campaign with the people in their lives: thank you. It all brings us closer to the possibility of better diagnosis, better treatment, and a longer, fuller life for everyone affected by cardiomyopathy.

If you still want to contribute specifically to our research fund, it's not too late: https://www.crowdfunder.co.uk/p/fundingresearchcardiomyopathyuk

Taking the first step into funding our own research was already a huge milestone. But with a community like ours behind us, we can't wait to see what comes next 🚀

Walk With Your Heart is back! ♥️ On Saturday 26 September, Walk With Your Heart will once more take place in Amersham, B...
29/08/2026

Walk With Your Heart is back! ♥️

On Saturday 26 September, Walk With Your Heart will once more take place in Amersham, Buckinghamshire – just around the corner from the Cardiomyopathy UK office.

Walkers will follow either a 2km or a 5km route to raise money for the charity. So, as well as being a great opportunity to get outdoors and meet some like-minded people, every penny raised goes towards our work to support individuals and families affected by cardiomyopathy.

The event is open to everyone, so if you're local or you're planning to be in the area we'd love to see you!

Even if you can't be there, why not join us in spirit and hold your own fundraising walk on the day?

Find out more 👇
https://www.cardiomyopathy.org/support-us/fundraise/take-challenge/walk-your-heart

27/08/2026

As our month focusing on research comes towards a close, we want to share David's story.

David was diagnosed with cardiomyopathy during lockdown. He already suspected that he might have the condition, given his family's history of heart problems.

The diagnosis was a hammer blow for him – but once he knew what was going on, he recognised an opportunity to build on his already-existing interest in research and help work towards a better future for people affected by cardiomyopathy.

With a daughter working as a medical researcher, and experience of taking part in drug trials for blood pressure medication, David had always thought a great deal of the difference research can make.

After being diagnosed, he became actively involved in cardiomyopathy research.

Where possible, he volunteers to get involved in research through our Research Network. He reviews applications for our Catalyst Grants as an expert by experience – and he's taken part in our Catalyst Connections sessions, where researchers have the opportunity to speak directly to patients about their proposed projects.

He also acts as a patient representative on the steering committee of the Heart Hive, which connects people living with heart conditions with appropriate opportunities to take part in research.

As well as this, he leads the Cardiomyopathy UK support group for North & North-East Scotland, helping other people in the community to find out more about their condition and meet others in a similar boat – and spoke alongside Research Manager Katie Le Blond at our Patient Conference in March 2026.

David believes that the Cardiomyopathy UK community is full of people who are experts in the condition – people who know better than anyone what it means to live day-to-day with symptoms – which is what makes our targeted research funding so exciting.

Thank you for sharing your story with us, David! ❤

Donate to our research fund to help spark the next breakthrough 👇

https://www.crowdfunder.co.uk/p/fundingresearchcardiomyopathyuk

Stef was diagnosed with dilated cardiomyopathy (DCM) in 2018, and went on to have a heart transplant in 2022.Her conditi...
25/08/2026

Stef was diagnosed with dilated cardiomyopathy (DCM) in 2018, and went on to have a heart transplant in 2022.

Her condition has had a big impact on her experience of family life – from spending the first two weeks of her daughter's life in hospital to being unable to breastfeed because of her medication. Keeping up with her daughter as she grew was difficult because of how easily she can tire.

But despite the many challenges, Stef hasn’t stopped giving back. She's fundraised for Cardiomyopathy UK in all sorts of ways – even undertaking a 30-day knitting challenge from hospital while waiting for her heart transplant!

Since then, she’s spoken at our Patient Conference in 2024 and become a support group leader for our Birmingham and West Midlands group. She was part of our Priority Setting Partnership to establish which areas of research matter most to our community, and now reviews applications for our Catalyst Grants as an Expert by Experience.

Stef says: "There’s so much happening in the world of research that I am very hopeful for the future. My DCM is genetic, so there's a 50% chance my daughter might have the same condition. This has been my main drive for getting involved in research.

Cardiomyopathy UK has been a great charity supporting people living with the condition for a long time. I think it's great that funding research has become part of their path too – they have a great understanding of what really matters to people living with this condition.

By making a gift towards their research appeal, you give 1 in 250 people hope for the future."

We really appreciate you sharing your story, Stef ❤️

Donate to our research fund to help spark the next breakthrough 👇
https://www.crowdfunder.co.uk/p/fundingresearchcardiomyopathyuk

Ever wondered what a day in the lab actually looks like? 🔬 This month, we've been sharing more about our Catalyst Grants...
24/08/2026

Ever wondered what a day in the lab actually looks like? 🔬

This month, we've been sharing more about our Catalyst Grants – grants that allow researchers to test new ideas and gather the evidence they need to secure further funding in future.

We've already heard from Professor Juan Pablo Kaski, who's looking at how hypertrophic cardiomyopathy (HCM) progresses in the hope of identifying new targets for treatments. Now, in this photo series, his team take us with them for the day, giving us a glimpse behind the scenes of scientific research.

That's where gifts to our campaign this month go: to researchers working towards a future with better outcomes for people affected by cardiomyopathy.

Tap through to see your support in action! ♥️

Donate here: https://www.crowdfunder.co.uk/p/fundingresearchcardiomyopathyuk

19/08/2026

For many of us, scientific research can feel quite abstract, and it's not always easy to imagine what a project might actually look like. So we want to give you more of an insight into the work we fund.

There are already two projects on the go that were funded by a Cardiomyopathy UK Catalyst Grant – and given how exciting they are, we can't wait to see what comes next!

💻 At Imperial College London, Dr Arunashis Sau is testing a new AI tool which analyses routine heart recordings to predict risk.

🧬 At University College London and Great Ormond Street Hospital, Professor Juan Pablo Kaski is looking at how hypertrophic cardiomyopathy (HCM) progresses in the hope of identifying new targets for treatments.

In this video, Professor Kaski talks us through the work his team are doing – and what they hope to achieve for the cardiomyopathy community.

If you’re passionate about research into cardiomyopathy, we’d love to invite you to make a donation to our research fund. Whatever the amount, we're hugely grateful for the community support that enables us to fund vital research work like this ❤️

Donate here: https://www.crowdfunder.co.uk/p/fundingresearchcardiomyopathyuk

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75A Woodside Road
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