Cauda Equina and me: Riding the wave of - recovery

Cauda Equina and me: Riding the wave of - recovery Living with Cauda Equina syndrome

The worse pain in my legs in a while today. Days like this I just want to chop them off 😢 this is one of the downsides o...
17/06/2026

The worse pain in my legs in a while today. Days like this I just want to chop them off 😢 this is one of the downsides of living with Cauda Equina syndrome. The only thing that helps is rest. I’ve not got used to the bad days yet, but I’ve learnt that when my body does this I need to stop ✋

Took me all day to finish my son’s birthday cake but I am bloody proud of myself for taking my time.
13/06/2026

Took me all day to finish my son’s birthday cake but I am bloody proud of myself for taking my time.

Woke up this morning with heightened back and leg pain. Potentially the fact I was doing chores yesterday that I should...
13/06/2026

Woke up this morning with heightened back and leg pain. Potentially the fact I was doing chores yesterday that I shouldn’t have been doing. However let’s face it we are all human and before Cauda Equina syndrome this was the norm for me. I am going to have a nice relaxing bath and pace myself today as I have my youngest son’s birthday cake to finish today.

Baking has always been a part of my life. I have struggled since CES as I can’t sit or stand for long periods of time. I...
06/06/2026

Baking has always been a part of my life. I have struggled since CES as I can’t sit or stand for long periods of time. I have to do it in stages now but I have learnt to pace myself. This is my latest creation which I am so incredibly proud of 😁😋

I’m in Manchester ready for the Cauda Equina workshop hosted by the members of the fabulous charity. I met lots of peopl...
04/06/2026

I’m in Manchester ready for the Cauda Equina workshop hosted by the members of the fabulous charity.
I met lots of people last night who understand my daily challengers because they also experience the same or similar.

Onwards and upwards though because I will not let this syndrome beat me 💪🏼😁

Really bad night last night in relation to heightened neuropathy and leg cramps every hour or so. I think I’m going to n...
02/06/2026

Really bad night last night in relation to heightened neuropathy and leg cramps every hour or so. I think I’m going to need some match sticks to keep my eyes open today 😆

No excuses this morning, counted back from 5 again, got up and showed up 😁💪🏼
31/05/2026

No excuses this morning, counted back from 5 again, got up and showed up 😁💪🏼

I had an appt with the women’s bladder specialist half an hour ago. Nothing else she can do bless her due to the time fr...
28/05/2026

I had an appt with the women’s bladder specialist half an hour ago. Nothing else she can do bless her due to the time frame from my first surgery 18 months ago.
Instead of crating I said…..
We both tried everything we could and there as been no improvement. I informed her that I feel that she puts all she can into those that have a chance of improving.

I’m feeling ok right now as I knew this was coming. I have the support of my family and friend to keep pushing me to build a new me 😊

First workout session since 23rd July last year.
27/05/2026

First workout session since 23rd July last year.

Putting flowers in hanging basket was a job I loved to do every year. I used to stand up and do them at a table. I can’t...
25/05/2026

Putting flowers in hanging basket was a job I loved to do every year. I used to stand up and do them at a table. I can’t stand for long now though but was determined to do them. This morning I sat on the grass on my knees. It wasn’t pain free but I managed to do my baskets 😁 💪🏼

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