ITP Support Association

24/06/2026

We know the temperatures are soaring, so we are pleased to confirm that the venue for The ITP Annual Patient Convention is fully air-conditioned.

We have checked in with the team at the Royal College of Pathologists (RC Path) to ensure everyone stays cool and comfortable throughout the day.

We cannot wait to see you there on Saturday.

24/06/2026

Could the Secret to Managing ITP Be in the Gut? 🦠

We all know the gut microbiome plays a massive role in our overall health, but how does it impact a rare autoimmune condition like Immune Thrombocytopenia?

Get a sneak peek at our interview with Camelia Vladescu (Non-Malignant Haematology Research Unit Leader at Imperial College Healthcare NHS Trust), as she explains exactly why studying the gut is the next frontier in understanding ITP.

📺 The full interview drops this Monday on our YouTube channel! Make sure you are subscribed so you don't miss the full breakdown of this fascinating research.

22/06/2026

Meet the Team: Global Clinical Trials with Tung Le 🌍🔬

Behind every medical breakthrough is an incredible team managing the complex world of clinical trials. As part of our Hammersmith Lab series, we sat down with Tung Le, the Research Team Leader and Senior Clinical Research Practitioner for the Non-Malignant Haematology Clinical Trials Unit at Imperial College Healthcare NHS Trust.

In this interview, Tung explains how the trials run at Hammersmith link into a massive global network of research, bringing the next generation of treatments safely from the lab bench directly to patient bedsides.

📺 Watch the full video here: https://youtu.be/dbToZmuLxuc

Keep an eye on our feed over the next few weeks as we share insights from Tung and the research team on how these global trials are expanding options for patients who fail standard first-line therapies.

🎟️ See the Hammersmith Team Live: Want to learn how you can get involved in clinical trials or hear the latest data firsthand? Join Professor Cooper at our Annual Patients' Convention in London on Saturday, 27th June 2026. Book your tickets today via the link in our bio!

Behind every medical breakthrough is an incredible team managing th...

20/06/2026

The ITP Annual Patients' Convention on 27th June goes beyond clinical results to address everything else: the stress and anxiety that can come with uncertain counts, the fatigue that disrupts your day, the questions around lifestyle, relationships, and what it actually means to live well with ITP.

Specialist sessions. Informal breakout groups for Adults, Paediatric patients, and Adolescents. And the world's leading ITP clinicians in one room.

Seven days left. Secure your place now via the link in bio.

19/06/2026

A wonderful video from Rhona Bowie, who is one of our Young Adult Board Members. What an inspiration for anyone with ITP or a rare condition.
Everyone at the ITP Support Association is so proud of Rhona’s achievements and her dedication to patient advocacy. 💜💜

19/06/2026

Living Well with ITP
We are pleased to share the details of a forthcoming Webinar which features the ITP Support Associations ITP Ambassador Jonny Mellor. The webinar is hosted by Fortrea who are also Bronze Sponsors for our forthcoming ITP Annual Patient Convention.

You can register by scanning the QR Code in the flyer or by clicking the link below:

da90631e-e02f-48d0-8dae-c5889b6a08a9@5fbc2afc-b6e7-49ed-a6cf-ea49a27f7c12" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/da90631e-e02f-48d0-8dae-c5889b6a08a9@5fbc2afc-b6e7-49ed-a6cf-ea49a27f7c12

19/06/2026

Reducing the Treatment Burden in ITP 🏥❤️

By shifting the focus towards advanced, targeted therapies that require fewer clinic visits and offer far cleaner side-effect profiles, the research team isn't just trying to find a medical cure, they are actively working to give patients their time, energy, and freedom back.

Full video with Tung Le will be on our YouTube on Monday - subscribe so you don't miss it!

17/06/2026

The Biggest Question in ITP: "Why Me?" 🧬❓

When you are diagnosed with Immune Thrombocytopenia, the number one thing everyone wants to know is simply: Why do I have this disease? What triggered it?

Right now, medical science still doesn't have a definitive answer.

Because ITP is a highly complex "diagnosis of exclusion," there is no single pinpoint trigger. However, that is exactly why the cellular and genetic research being conducted in the Hammersmith lab is so vital. By trying to map out why the immune system misbehaves in the first place, Professor Cooper and her team are working every day to finally turn that "we don't know" into concrete answers.

Watch the interview with Professor Nichola Cooper here: https://youtu.be/CkKbABWcnb8

15/06/2026

Your Questions Answered: Our Q&A with Professor Nichola Cooper is Live! 🩸

We asked our community to submit their biggest queries, and our CEO Mervyn Morgan, sat down with leading UK haematologist Professor Nichola Cooper to get the answers straight from the expert.

In this Q&A filmed at Imperial College Hammersmith Hospital, Professor Cooper dives into the topics that matter most.

📺 Watch the full Q&A session on YouTube now: https://youtu.be/JjxMAyHhJ3k

🎟️ Hear the Latest Research Live: Want to put your questions to the medical team in person? Professor Cooper and her laboratory staff will be presenting live at our Annual Patients' Convention in London on Saturday, 27th June 2026. Spaces are filling up fast, so click the link in our bio to secure your place!

In this exclusive Q&A session, the ITP Support Association’s Chief ...

14/06/2026

World Blood Donor Day - and for the ITP community, it carries a very particular meaning.

Many of us have sat on the receiving end of transfusions, or know someone who has. Donated blood and platelets are, quite literally, life-saving for people whose own counts have fallen dangerously low.

While most of us are unable to donate, today is a chance to thank the people who do, and to share why it matters so much.

If you have ever received a transfusion, or if a family member has, we would love to hear your story in the comments. 👇💜