ITP Support Association

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ITP Support Association Formed in 1995 an independent UK registered charity which promotes & improves the general welfare of people with Immune Thrombocytopenia

💚 It's World Mental Health Day.Living with ITP can mean a lot of waiting, a lot of uncertainty and a lot of explaining a...
10/10/2026

💚 It's World Mental Health Day.

Living with ITP can mean a lot of waiting, a lot of uncertainty and a lot of explaining a condition most people have never heard of. It's completely understandable if that weighs on you.

Our patient guides, helpline and support group details are all here: https://itpsupport.org.uk/

If you're finding things hard right now, please reach out. Samaritans are there 24/7 on 116 123, or you can text SHOUT to 85258.

Be kind to yourself today 💜

📖 Living With ITP: the basics. Your mood and managing it all.With World Mental Health Day tomorrow, this week's excerpt ...
09/10/2026

📖 Living With ITP: the basics. Your mood and managing it all.

With World Mental Health Day tomorrow, this week's excerpt from our patient guide is about the side of ITP that doesn't show up on a blood test.

The book is honest about it: bleeding, tiredness and flare-ups can take a real toll on how you feel, and anxiety is common in people living with long-term conditions. It also has plenty of practical ideas, from telling your ITP team how you're feeling (and not only your symptoms) to a simple breathing exercise you can do anywhere.

There's a page on 'scanxiety' too, that knot in your stomach while you wait for a platelet count. If you've felt it, you're far from alone.

Swipe through 👉

📖 Read the full book free, or request a printed copy: itpsupport.org.uk/living-with-itp-book/

07/10/2026

🎬 "There's nothing better than the human connection of meeting up face to face."

Dr Cindy Neunert on why events like the Convention matter.

ITP can feel deeply isolating. It's a condition most people have never heard of, and explaining it to friends, family and colleagues is exhausting in itself. Resources like our books help with those conversations, but Cindy's point goes further: patients learn an enormous amount from each other.

Being able to say "I'm struggling with this", and to hear from someone who has struggled too and found a way through, is something no leaflet can replace.

We've grown used to Zoom. But being in a room with people who simply get it is different.

🧣 We asked: ITP and the winter chill, how do you cope?One of you, who works outdoors, shared this.Winter can be a tough ...
05/10/2026

🧣 We asked: ITP and the winter chill, how do you cope?

One of you, who works outdoors, shared this.

Winter can be a tough stretch when you're already managing fatigue, so we'd love to build a proper list of cold-weather tips from our community before the winter chill hits.

What gets you through the colder months? Drop your tips below 👇

(Shared by a member of our community. This is one person's experience, not a product recommendation.)

03/10/2026

🎬 "Two really significant gaps."

At this year's Convention, Prof. Cindy Neunert of Columbia University Medical Center named two areas where ITP care still falls short.

The first is transition. When young people move from their paediatric team to adult care, often at the same time as heading off to university, they need the right tools to make that jump, and the barriers to accessing adult care need to come down.

The second is women's health. Sexual health, periods, oral contraceptives, HRT and pregnancy all need proper conversations, better information, and a lot fewer myths.

Has your own care covered these things well, or not at all? We'd really like to hear 👇

🍂 Welcome to October. We're starting the month with another full lecture from this year's ITP Annual Patients' Conventio...
01/10/2026

🍂 Welcome to October. We're starting the month with another full lecture from this year's ITP Annual Patients' Convention, now on our YouTube channel.

Dr Catherine Bagot, Consultant Haematologist at Glasgow Royal Infirmary, shares what patients told researchers about TPO mimetics (romiplostim, eltrombopag and avatrombopag). She covers the side effects people noticed, including brain fog and changes to hair and nails, and what the switch to generic eltrombopag means for patients and for the NHS.

She also makes a strong case for something many of you have raised with us: when a treatment changes, people deserve a clear explanation of why.

▶️ Watch the full talk: https://youtu.be/Q2-LNfc5hmk

And as always, please speak to your haematologist before making any changes to your treatment.

If you're on a TPO mimetic, what side effects (if any) have you noticed? Tell us below 👇

Shout out to our newest followers! Excited to have you onboard!Carley Campbell, Morgan Hostetter, Te Re Sa, Cathy Haddad...
30/09/2026

Shout out to our newest followers! Excited to have you onboard!

Carley Campbell, Morgan Hostetter, Te Re Sa, Cathy Haddad, রংধনুর সাতরং, Tasha Carter, Kelly Weatherhead, Matthieu Balase, Myra Humphrey, Tom McDermott, Janet Turnbull, Jeannie Lee, Sheikh Tariq, Tiffany Spring, Mariana Gamboa Méndez, Tom Co***rd

One more Myth vs Fact before September wraps up. It's a common misconception, and worth knowing if you or someone you l...
30/09/2026

One more Myth vs Fact before September wraps up.

It's a common misconception, and worth knowing if you or someone you love lives with ITP.

Address

The Platelet Mission, Kimbolton Road
Bedford
MK442EL

Opening Hours

Monday 9am - 12am
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+448447770559

Website

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