CLDF Families Team

CLDF Families Team Supporting families with children who have liver disease

Best of luck to Connor who will be running the Birmingham and Black Country half marathon next month in order to help ot...
19/06/2026

Best of luck to Connor who will be running the Birmingham and Black Country half marathon next month in order to help other young people with liver disease https://ow.ly/mtna50ZbPcZ

Join us in congratulating Irene Clarke who has been awarded the British Empire Medal in the King's Birthday Honours for ...
16/06/2026

Join us in congratulating Irene Clarke who has been awarded the British Empire Medal in the King's Birthday Honours for her services to fundraising and to the local community. After her grandson was diagnosed with liver disease 19 years ago, Irene, her husband Ken and her extended family have been committed to raising funds and awareness to support young people with liver disease. We're delighted to see her recognised in this way - well done Irene!👏 👏

Best of luck to Rachel who is taking on the stunning but demanding 50K North Yorks Ultra Challenge next weekend, in memo...
13/06/2026

Best of luck to Rachel who is taking on the stunning but demanding 50K North Yorks Ultra Challenge next weekend, in memory of someone very special

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survi...
12/06/2026

When Matt, who has biliary atresia, underwent Kasai surgery as a baby, his parents were warned that his chances of survival were slim. That was 35 years ago! Matt now leads a busy life and has some words of advice for young people growing up with a liver condition https://ow.ly/1Usb50Z8Sra

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our...
10/06/2026

Are you - or do you know - a young adult with liver disease, who would like to chat to others in the same situation? Our 18-24 support group meets tomorrow, June 11, at 6pm and we'd love to see you there. To find out more, or for your link to join email [email protected]

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in ...
09/06/2026

Whilst liver disease symptoms in children vary, many parents will agree it can lead to a significant lack of sleep - in children and parents alike! We've put together some information and guidance we hope will help https://ow.ly/I8Or50Z8QPk

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you ...
08/06/2026

We're delighted to confirm that odevixibat will continue to be available as a treatment for PFIC in Scotland. Thank you to everyone who played their part in securing this. More here https://ow.ly/TGQZ50Z8Icv

A huge thank you to everyone who took part in Big Yellow Friday on March 13! You raised a fantastic £20K to support youn...
07/06/2026

A huge thank you to everyone who took part in Big Yellow Friday on March 13! You raised a fantastic £20K to support young people and families around the UK affected by childhood liver disease 🎉🎉https://ow.ly/Gq0050Z78hn

This , a big thank you to all of you who, like Rosie's mum Katie, have taken the time to share your experiences to hel...
04/06/2026

This , a big thank you to all of you who, like Rosie's mum Katie, have taken the time to share your experiences to help others https://ow.ly/aurA50Z77YS .You're helping us to make a real difference 🙏

Join us in congratulating Alice, who has biliary atresia and raised over £2,900 by running the London Marathon. She was ...
28/05/2026

Join us in congratulating Alice, who has biliary atresia and raised over £2,900 by running the London Marathon. She was following in the footsteps of her mum, Jess, who first ran the marathon for us 15 years ago!👏👏https://ow.ly/txEe50Z4f0v

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