My Parkinson’s Nurse

My Parkinson’s Nurse Newly diagnosed with Parkinsons? Or had the condition a while and NHS Waiting lists long?

My Parkinsons Nurse is the first, CQC registered independent specialist, remote, UK wide service for people with Parkinson’s.

2 hours a year….maybe….According to the UK NICE guidelines, individuals with Parkinson’s should have a review every 6-12...
02/09/2026

2 hours a year….maybe….

According to the UK NICE guidelines, individuals with Parkinson’s should have a review every 6-12 months by a Specialist. If you're fortunate, you might meet with a Neurologist and a Parkinson’s nurse once a year.

The typical appointment with a Neurologist or Parkinson’s outpatient in the UK lasts between 15 to 60 minutes.

For many, this simply isn’t enough, and others may not receive any appointments at all.

My Parkinson’s Nurse is designed to complement NHS care, ensuring support is available whenever you need it.

02/09/2026

This guide focuses on the following potential therapies: deep brain stimulation (DBS), pump medications and procedures such as focused ultrasound.

02/09/2026

🎙️ Episode 6 is here - and it's an incredibly special one.

Parkinson's doesn't just happen to one person. It happens to a whole family. And this episode is for every partner, parent, sibling, child and friend who walks that journey alongside someone they love.

We sat down with broadcaster Jeremy Vine and his sister, Sonya - two people who know this better than most. Sonya's husband Chris was diagnosed with Parkinson's at 34, two months after their wedding. And their father also had Parkinson's. Two diagnoses. One family. An enormous amount of love, resilience, humour and wisdom.

Sonya shares what those 18 years have really looked like, the practical advice she wishes someone had given her at the start, and why every person in her situation needs a haven of their own. Jeremy is no bystander in this story - he lost his father to Parkinson's, he watches his sister every day, and he carries a quietly fierce hope that the breakthrough is coming.

This is such a fantastic conversation. We hope you enjoy. 🧡

✨ Shaking It Up with Parkinson's is powered by Parkinson's UK.

🎧 Listen now on Spotify, Apple Podcasts, Amazon Music and YouTube Music, or find all episodes at shakingitupwithparkinsonspodcast.com - LINK IN BIO 🌟

02/09/2026

I’m getting really excited at this!! If you have YOPD and live in the UK, please do sign up for online exercise classes!

02/09/2026

Participants Wanted for Parkinson’s Research

Researchers at UCD are inviting people living with Parkinson’s, along with adults without Parkinson’s, to take part in a study exploring breathing muscles in Parkinson’s disease.

The study involves a single 45 to 60 minute session with simple, safe breathing assessments. Appointments can take place at UCD or in your home if travel is difficult.

Interested in taking part or learning more? Contact [email protected] or scan the QR code in the image below.

Your participation could help improve our understanding of Parkinson’s and support future care and physiotherapy approaches.

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