The Pernicious Anaemia Society

19/06/2026

🌟 Your Membership with the Pernicious Anaemia Society! 🌟

Annual Membership - £20/year: Unlock a world of ongoing benefits! After your first year, we make it seamless—your membership renews automatically for just £10 annually. The hassle-free way to stay connected and supported. Cancel anytime in your membership account.

Lifetime Membership - £125: Experience the gold membership journey! Become a cherished Lifetime Member and Supporter of the Society. Your generosity comes with perks—receive an exclusive Welcome Pack, complete with a copy of the former Chairman’s book and unique PAS merchandise. It's a lifetime of connection, support, and gratitude.

✨ Why Join?
🌍 International Representation: We are the sole international charity advocating for Pernicious Anaemia patients.

🧪 Research Advocacy: Your support helps commission and fund crucial research.

🤝 Informed Community: Benefit from a community of knowledgeable members actively contributing to research.

🏥 Healthcare Collaboration: We value healthcare providers and strive to collaborate for enhanced patient quality of life, focusing on improved diagnosis and treatment.

🔗 Join us now, Your support makes a significant impact: https://pernicious-anaemia-society.org/member/

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!

18/06/2026

🏛️ 2026 is the year PAS takes Pernicious Anaemia to Parliament.

For 20 years, PAS has been building the evidence, the education, and the community that makes this moment possible. And this year, we're using it.

On 10th September 2026, PAS will join the B12 Alliance at a Parliamentary Reception at the House of Commons - bringing together MPs, health policymakers, and leading medical experts to face the reality of B12 deficiency in the UK head on.

The B12 Alliance is a coalition of charities and patient organisations united around a single goal - better understanding, better diagnosis, and better treatment for everyone affected by B12 deficiency, whatever the cause.

For PAS, this is personal.

We hear daily from people who have waited years for a diagnosis. Who have been told their levels are "normal" while their health declines. Who have been denied the treatment frequency they need to live a functional life. Who have watched neurological symptoms worsen while the system failed to act.

That is what we are taking to Parliament. Real stories. Real evidence. A clear and urgent case for change.

What we're asking for:
Patient-focused treatment that reflects individual need

Modernised diagnostic standards

Greater understanding of the risks of untreated and undertreated B12 deficiency

Education for healthcare professionals that meets the scale of the problem

This is what 20 years of work has been building towards.

If you believe patients deserve better - please support us.

💜 Donate to The B12 Alliance Parliamentary Reception & National Awareness Drive: 🔗 https://www.justgiving.com/campaign/b12alliancewestminster

🔗 Become a PAS member and help us keep fighting: pernicious-anaemia-society.org/member

📱 Follow B12 Alliance on instagram

✨ 20 Years of Education, Research & Support. This Year Things Change.

16/06/2026

🤰 B12 deficiency during pregnancy isn't just about the mother.

It matters for the baby too. And for young children. And that's not talked about enough.

B12 is essential for healthy neurological development - before birth and in the early years of life. Deficiency during pregnancy has been linked to increased risk of neural tube defects, developmental delays, and low birth weight. In breastfed infants whose mothers have low B12, deficiency can develop quickly and silently - with potentially serious consequences for a baby's developing nervous system.

For women with Pernicious Anaemia specifically, pregnancy requires careful monitoring. PA doesn't go away in pregnancy - and the stakes for getting treatment right are higher.
What's important to know:

PA is autoimmune and lifelong - it doesn't resolve during pregnancy

B12 needs to be actively monitored throughout pregnancy and the postnatal period, particularly for breastfeeding mothers

Infants and young children of mothers with PA or B12 deficiency may need their own levels checked

Symptoms in young children can be subtle - developmental concerns, irritability, poor feeding, or fatigue deserve investigation

For children, reference ranges for B12 are different to adults - something that is only recently getting the research attention it deserves

If you have PA and are pregnant, planning a pregnancy, or have young children - this is worth a conversation with your healthcare team.

And if you're navigating this and want support from people who understand - PAS membership gives you access to our helpdesk, expert resources, and a community that gets it.

🔗 http://pernicious-anaemia-society.org/member

✨ 20 Years of Education, Research & Support. This Year Things Change.

15/06/2026

Please, share far and wide! Thank you

🏛️ B12 deficiency doesn't discriminate.

It affects people across every age group, every background, every diagnosis - whether the cause is Pernicious Anaemia, dietary deficiency, malabsorption, medication, or something else entirely.

And across all of those causes, too many people in the UK are sharing the same story.

Told their levels are "normal" while their health is declining. Denied the treatment frequency they need. Dismissed, delayed, or passed from one specialist to another with no answers.

The B12 Alliance exists because this is bigger than any one condition or any one organisation. It's a coalition of charities, patient groups and advocates united around a single goal - better understanding, better diagnosis, and better treatment for everyone affected by B12 deficiency.

And on 10th September 2026, we're taking that message to the heart of government.

🏛️ The B12 Alliance Parliamentary Reception at the House of Commons will bring MPs, health policymakers, and leading medical experts face to face with the reality of B12 deficiency in the UK.

Our goal is clear - commitment to patient-focused treatment, modernised diagnostic standards, and greater understanding of the risks of undertreated deficiency.

To make it happen - and ensure our message reaches far beyond Westminster - we need to raise £30,000. Every pound funds the event, professional patient testimonies, media and campaign materials, and educational toolkits for patients and clinicians.

This is our chance to change the future of B12 treatment in the UK.

💜 Donate to the campaign: 🔗 https://bit.ly/4uKTmjx
📣 Share this post
👉 Follow the B12 Alliance and help us call on your MP to attend our event: 🔗 https://www.b12alliancewestminster.org.uk/

✨ 20 Years of Education, Research & Support. This Year Things Change.

15/06/2026

There are several common misconceptions about Pernicious Anaemia (PA) so it is important to be aware of the facts.

1️⃣ Pernicious Anaemia only affects older people. This is not true. People of all ages, and this includes young children, have been diagnosed with PA.

2️⃣ You can get enough B12 from your diet. PA is an auto-immune disease. If you have PA, no matter what you eat, you cannot absorb sufficient B12 from your food. You will require lifelong vitamin B12 therapy usually through regular injections.

3️⃣ Pernicious Anaemia is not a serious condition. PA is a serious condition and, without the correct treatment it is debilitating and can be life-threatening. If you have been B12 deficient for a long time recovery may also take some time., Neurological symptoms resulting from B12 deficiency may take several months or even years to resolve completely

4️⃣ Once you've had your injection you will be fine. This 'one size fits all' regime is not true. Whilst some people manage perfectly well on 3 monthly injections, others find their symptoms returning long before their next injection is due. The clinical picture is the most important factor in assessing the frequency of treatment and serum blood tests and further testing of B12 levels are not required once Vitamin B12 treatment has commenced.

Support our charity by becoming a member or donating, and follow our page for more insights and useful information about PA!

12/06/2026

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant number of cases are due to non-dietary causes, such as Pernicious Anaemia. This can lead to life-threatening complications if not diagnosed and treated early. Understanding the root cause is crucial.

Join the Pernicious Anaemia Society to support vital research, raise awareness, and ensure that everyone has access to the right information and care.

👉 Head to our website to learn more: https://pernicious-anaemia-society.org/

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!

11/06/2026

🏛️ B12 deficiency doesn't discriminate.

It affects people across every age group, every background, every diagnosis - whether the cause is Pernicious Anaemia, dietary deficiency, malabsorption, medication, or something else entirely.

And across all of those causes, too many people in the UK are sharing the same story.

Told their levels are "normal" while their health is declining. Denied the treatment frequency they need. Dismissed, delayed, or passed from one specialist to another with no answers.

The B12 Alliance exists because this is bigger than any one condition or any one organisation. It's a coalition of charities, patient groups and advocates united around a single goal - better understanding, better diagnosis, and better treatment for everyone affected by B12 deficiency.

And on 10th September 2026, we're taking that message to the heart of government.

🏛️ The B12 Alliance Parliamentary Reception at the House of Commons will bring MPs, health policymakers, and leading medical experts face to face with the reality of B12 deficiency in the UK.

Our goal is clear - commitment to patient-focused treatment, modernised diagnostic standards, and greater understanding of the risks of undertreated deficiency.

To make it happen - and ensure our message reaches far beyond Westminster - we need to raise £30,000. Every pound funds the event, professional patient testimonies, media and campaign materials, and educational toolkits for patients and clinicians.

This is our chance to change the future of B12 treatment in the UK.

💜 Donate to the campaign: 🔗 https://bit.ly/4uKTmjx
📣 Share this post
👉 Follow the B12 Alliance and help us call on your MP to attend our event: 🔗 https://www.b12alliancewestminster.org.uk/

✨ 20 Years of Education, Research & Support. This Year Things Change.

10/06/2026

At the Pernicious Anaemia Society, everything we do comes back to one core mission:

💛 To improve the lives of people living with Pernicious Anaemia through support, education, research, and advocacy.

We know that PA is so often misunderstood. Many of our members spent years searching for answers, being misdiagnosed, or told they were “fine” when they knew they weren’t.

That’s why this community matters so much.

We’re here to change that story - for everyone.

Through our work, we aim to:
- Raise awareness of PA and the seriousness of B12 deficiency
- Support patients and families navigating symptoms, diagnosis, and treatment
- Challenge outdated thinking in clinical settings and push for better training
- Fund research into the symptoms and impacts that are often overlooked
- Create community so no one feels invisible or alone in their experience

Whether it’s a friendly voice on our helpline, an online support group where people finally feel understood, or a personal story that gives someone hope - PAS exists to connect, empower, and uplift.

We are patients, volunteers, researchers, clinicians, and advocates. And together, we’re building something powerful: a future where everyone with PA is diagnosed sooner, treated properly, and supported fully.

Thank you for being here, for sharing your stories, and for supporting our mission - we couldn’t do it without you.

🌐 Learn more about our work and how to get involved:
https://pernicious-anaemia-society.org/aboutus/

09/06/2026

💉 For many people with Pernicious Anaemia, getting an injection means booking an appointment, waiting for availability, and fitting treatment around a system that wasn't designed with them in mind.

But what if treatment could work around you instead?

The option for self-administration for those that want to, gives patients something that matters enormously when you're managing a lifelong condition - control.

Control over when you inject. Control over frequency, so treatment can respond to how you're actually feeling rather than a calendar. Control over your own recovery, your own routine, and your own life.

For people whose symptoms aren't well managed on standard injection schedules, that flexibility isn't a preference. It's a necessity.

The evidence increasingly supports what patients have been saying for years - that one size does not fit all when it comes to B12 treatment. Research being carried out with PAS support, including the work of Rachel Barnes at the Quadram Institute, is building the case for more personalised, patient-controlled care.

And yet too many people still face barriers. Lack of information. Lack of support from their GP. Not knowing it's even an option.

That needs to change.
💜 PAS members have access to helpsheets, helpdesk support, and resources to help them understand their options and advocate for themselves.

🔗 Join us at http://pernicious-anaemia-society.org/member

💜 Help us take the case for better PA treatment to Parliament - support The B12 Alliance Parliamentary Reception & National Awareness Drive: 🔗 https://www.justgiving.com/campaign/b12alliancewestminster

✨ 20 Years of Education, Research & Support. This Year Things Change.

08/06/2026

At PAS, we're always grateful for your generous support and donations, which fuel our mission to raise awareness and support those affected by pernicious anaemia.

While donating directly with Gift Aid is fantastic and greatly appreciated, we're thrilled to introduce another way for you to support us while also getting something back in return!

🌍 We've partnered with http://charitablebookings.com/ , a platform that allows you to select The Pernicious Anaemia Society as your chosen charity when you make your travel and holiday bookings.

By booking through http://charitablebookings.com/ , you'll still enjoy the same great rates and deals offered directly by the companies, but a small percentage of your booking will be donated to PAS! ✈️

So, if you're planning your next getaway or travel adventure, why not check out http://charitablebookings.com/ and nominate The Pernicious Anaemia Society as your charity of choice? It's a simple way to support our cause while booking your well-deserved holiday. 🏖️

Thank you for your continued support!

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!