The DMD Life Of Riley

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The DMD Life Of Riley Riley is living with Duchenne Muscular Dystrophy. Join us for the highs and lows and all in between!

22/01/2026

When Riley was diagnosed with DMD about 3 1/2 years ago, we lived in a tiny 2 bed house that was not just not suitable for Riley’s needs it was dangerous! We were added to the list for a council house, with the housing crisis in Cornwall we didn’t know if we would ever find something suitable. A year later we were given notice from our landlord that we needed to leave as the were selling our house and we were devastated. That same day (so strange) we had the phone call that changed our lives, we had been offered a 3 bedroom council house that could be fully adapted to meet Riley’s needs!
We moved in in January 2024 and had many a meeting, phonecall, assessment and conversation about the adaptions! We were made to wait for almost 2 years for work to start but it is now finally finished and this house is Riley’s forever home and we can’t be more grateful for our beautiful adapted home that our children can grow up in, make memories in, be safe in and be happy in!! ❤️❤️❤️❤️

💚 Final Total 💚So the Just Giving Page for Rugby for Riley, The Finale Closes in 7 Days! This is the the money from your...
27/07/2025

💚 Final Total 💚

So the Just Giving Page for Rugby for Riley, The Finale Closes in 7 Days!
This is the the money from your ticket sales, pre bought raffle and auction money and any extra fundraising done through individual fundraising events prior to the day!

And the Grand Total is …….. (Drum Roll Please) ………

£5023.63!!!!!!!!

All of this Money will go directly to Duchenne Uk to support their vital work for the DMD Community!

Today we met with Matt Begley who has been a massive Supporter of the Rugby for Riley Events at Redruth RFC for a photo with our big Cheque!

As always Thankyou for all your support forever and always!

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January Riley Photo Dump!Riley upgraded to a Power ChairSeeing in the New YearPromoting Rugby4Riley The FinaleOur Star P...
03/02/2025

January Riley Photo Dump!

Riley upgraded to a Power Chair
Seeing in the New Year
Promoting Rugby4Riley The Finale
Our Star Performer at school

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