500 Miles For M.E.

01/09/2026

29/06/2026

24/06/2026

Do you live in Wales? Want to find out what the new Welsh Gov funded ME and Long Covid services are offering for patients at local level?

Come and join the next ME Voices Wales webinar on Monday 29th June 12.30-1.30pm.

Hywel Dda Health Board’s ME/Long Covid Team will give a presentation about their service and answer your questions.

You don’t have to be in Hywel Dda to be there – it’s good to find out what’s going on wherever you live in Wales. ME Voices Wales is about building a stronger ME voice at both local and all-Wales level, so please come along.

Register here: b919a555-2bcc-4413-9c84-bf790e8ec518@02b9cc2d-367d-482a-9831-f9b347e38272" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/b919a555-2bcc-4413-9c84-bf790e8ec518@02b9cc2d-367d-482a-9831-f9b347e38272

More info: https://www.wames.org.uk/mevw-webinar-hywel-dda-29-june-2026/
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Ydych chi’n byw yng Nghymru? Hoffech chi ddarganfod beth mae'r gwasanaethau ME a Covid Hir newydd a ariennir gan Lywodraeth Cymru yn cynnig i gleifion yn lleol? Dewch ac ymunwch â'r webinar nesaf gan Lleisiau ME Cymru - Dydd Llun 29ain Mehefin 12.30-1.30yp.

Bydd Tîm ME/Covid Hir Bwrdd Iechyd Hywel Dda yn rhoi cyflwyniad am eu gwasanaeth ac yn ateb eich cwestiynau. Nid oes rhaid i chi fod yn byw yn ardal Hywel Dda i fod yno – mae'n dda gwybod beth sy'n digwydd ble bynnag chi'n byw yng Nghymru. Mae Lleisiau ME Cymru am adeiladu llais ME cryfach ar lefel leol a drwy Cymru gyfan, felly dewch ac ymunwch.

Cofrestrwch yma: b919a555-2bcc-4413-9c84-bf790e8ec518@02b9cc2d-367d-482a-9831-f9b347e38272" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/b919a555-2bcc-4413-9c84-bf790e8ec518@02b9cc2d-367d-482a-9831-f9b347e38272
Mwy o wybodaeth: https://www.wames.org.uk/mevw-webinar-hywel-dda-29-june-2026/

18/04/2026

The first ME Voices Wales self-management webinar: Wed 22 April 12.30-1.30pm

ABUHB's Symptom Management service will explain what support they can give people with ME/CFS. Please share

Register here: https://tinyurl.com/mwkvbnp9

18/07/2025

Severe ME Difrifol Cymru is an informal group of people in Wales with Severe/Very Severe ME and carers. On Tuesday 15thJuly, we had a stall at Y Farchnad (The Marketplace) in the Welsh Senedd, where we hoped to recruit as many Senedd Members (MSs) as possible to support the Motion for debate being sponsored by Adam Price (MS) (Motion8884: https://record.senedd.wales/Motion/8884

We were very busy - with one, two, and sometimes three MSs at a time, engaging with our patient stories, listening whilst we explained the rationale behind the Motion, and each going away with a pack of info. 17 MSs signed our register and there were probably a couple more we missed, and others who were absent from the Senedd on the day but who have written to add their support - in all more than a third of all MSs, most saying they will support the Motion and several offering to speak in the debate. And, of course, they all wanted a photo with the banner and the Team!

We came away very encouraged, and hopeful that the motion will now stand a better chance of being selected for debate after the Senedd’s Summer Recess. We’ll keep you posted.

A BIG THANK YOU: to all of you who lobbied your MSs to attend – it paid off! ; to WAMES, ME Association, Action for ME and the 25% ME Group for supporting our efforts - because we are STRONGER TOGETHER!; to Jeremy Jeffs who lent us his amazing photos; to the Team who variously designed and prepared the display, spent hours printing, paid for the pop-up banner, took the risk of sharing their very personal lived experiences of Severe / Very Severe ME in writing or in person on the day; to those who remained at home as carers so that others could attend; and most especially to those who were too ill to be there themselves but who we knew were right behind us.

What a TEAM EFFORT!!!

Diolch yn fawr iawn, Pawb – Thanks Everyone!

Team on the day: Myfanwy, Eleri, Ian, Gwenda, Rob.

19/05/2025

It was great to be running the Wrexham 10k alongside my friend Yanto(aka Gareth aka Deadpool)Evans,Trustee of Long Covid - who, like me, believes that we’re stronger together!

Invest in ME Research Charity Long Covid Support

https://www.justgiving.com/fundraising/br-bpjt2ttucxu7-wrexham-10k