PACE (Parent's Action for Children with Epilepsy)

PACE (Parent's Action for Children with Epilepsy) We are a group for parents of children with epilepsy.

We are a voice for parents who have concerns about provision of services and who would like raise the profile of the inequalities in service provision and the lack of emotional, financial and social support for families living epilepsy.

07/11/2012

Does anyone have any experience, good or bad, with the ketogenic diet? I'm going to see dietician on Friday about possibly starting my 5 year old on it...

07/11/2012
11/10/2012

CORRECTION!!!meeting is in the MDEC building behind outpatients car-park

11/10/2012

Meeting tomorrow (12th Oct) with the health board at 10am,same place as last time.

First aid for seizures
20/09/2012

First aid for seizures

06/09/2011

Very successful meeting with the council today. All the political parties have given us their full support and are writing to the health board and education board. They also want us to go to Stormont. There will be a write-up in the Telegraph and the Derry News. Delighted with the response!

16/08/2011

Meeting tonight 16th August at 7.30pm in the Disability Action Office on the Strand Road, Derry. Hope to see a food turnout!

16/08/2011

We are organising a seminar in October for carers of people with epilepsy. When we have more details I will post them as soon as possible. Hopefully we will get good numbers - we have a lot to do this year!!!!!!!

14/06/2011

Successful meeting this evening. Thanks to all for your attendance and ideas for the next step!

14/06/2011

We are a small group at the minute but all new members are welcome. We hope to raise the profile of issues affecting families living with epilepsy and the problems they are facing.

Address

Derry

Website

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