PBC Foundation

PBC Foundation The PBC Foundation is the only UK organisation dedicated to providing support and information to those affected by Primary Biliary Cholangitis (PBC).

The PBC Foundation is a UK-based organisation dedicated to providing support and information to those around the world affected by Primary Biliary Cholangitis (PBC).

08/09/2026

๐Ÿ’œ YOU ARE NOT INVISIBLE - AUSTRIAN ๐Ÿ’œ

You may have seen the launch of the incredible 'You Are Not Invisible' film yesterday.

Created out of true collaboration across multiple stakeholders from the PBC community, the PBC Foundation is proud to be one of 32 participants, including patient advocacy groups, PBC patients, healthcare professionals and industry representatives, to share a powerful message:

You Are Not Invisible.

Alongside the English version of the film shared yesterday, there are a further 20 films available in different languages. You can find these films, including the English version, in a dedicated playlist on our YouTube channel: https://www.youtube.com/playlist?list=PLfuQcObzL5Ps

Additionally, in the coming days we will be highlighting a different version of this film. Today it's the Austrian version: https://youtube.com/shorts/qGStyaeweUs?feature=share

Please take a moment to view these films and share with your network - you never know who may need to see this message today.

07/09/2026

Este septiembre, durante el ๐Œ๐ž๐ฌ ๐๐ž ๐‚๐จ๐ง๐œ๐ข๐ž๐ง๐œ๐ข๐š๐œ๐ข๐จ๐ง ๐ฌ๐จ๐›๐ซ๐ž ๐ฅ๐š ๐‚๐จ๐ฅ๐š๐ง๐ ๐ข๐ญ๐ข๐ฌ ๐๐ข๐ฅ๐ข๐š๐ซ ๐๐ซ๐ข๐ฆ๐š๐ซ๐ข๐š (๐๐๐‚), queremos lanzar un mensaje a todas las personas que conviven con esta enfermedad y a quienes las acompaรฑan cada dรญa: ๐๐Ž ๐„๐‘๐„๐’ ๐ˆ๐๐•๐ˆ๐’๐ˆ๐๐‹๐„
๐Ÿ‘๏ธ ๐“๐ž ๐ฏ๐ž๐ฆ๐จ๐ฌ.
๐Ÿ‘๏ธ๐“๐ž ๐ฏ๐ž๐ฆ๐จ๐ฌ ๐ž๐ง ๐ž๐ฌ๐จ๐ฌ ๐ฌ๐ข๐ง๐ญ๐จ๐ฆ๐š๐ฌ ๐ช๐ฎ๐ž ๐ช๐ฎ๐ข๐ณ๐š ๐ฅ๐จ๐ฌ ๐๐ž๐ฆ๐š๐ฌ ๐ง๐จ ๐ฉ๐ž๐ซ๐œ๐ข๐›๐ž๐ง.
๐Ÿ‘๏ธ๐„๐ง ๐ž๐ฅ ๐œ๐š๐ง๐ฌ๐š๐ง๐œ๐ข๐จ ๐ช๐ฎ๐ž ๐ง๐จ ๐ฌ๐ข๐ž๐ฆ๐ฉ๐ซ๐ž ๐ฌ๐ž ๐ž๐ง๐ญ๐ข๐ž๐ง๐๐ž.
๐Ÿ‘๏ธ ๐„๐ง ๐ฅ๐š๐ฌ ๐๐ข๐Ÿ๐ข๐œ๐ฎ๐ฅ๐ญ๐š๐๐ž๐ฌ ๐ช๐ฎ๐ž ๐ฆ๐ฎ๐œ๐ก๐š๐ฌ ๐ฏ๐ž๐œ๐ž๐ฌ ๐ฌ๐จ๐ง ๐ข๐ง๐ฏ๐ข๐ฌ๐ข๐›๐ฅ๐ž๐ฌ ๐ฉ๐š๐ซ๐š ๐ช๐ฎ๐ข๐ž๐ง๐ž๐ฌ ๐ญ๐ž ๐ซ๐จ๐๐ž๐š๐ง.
๐Ÿ‘๏ธ ๐„๐ง ๐ญ๐จ๐๐จ ๐ฅ๐จ ๐ช๐ฎ๐ž ๐ฌ๐ฎ๐ฉ๐จ๐ง๐ž ๐ฏ๐ข๐ฏ๐ข๐ซ ๐œ๐จ๐ง ๐ฎ๐ง๐š ๐ž๐ง๐Ÿ๐ž๐ซ๐ฆ๐ž๐๐š๐ ๐œ๐ซ๐จ๐ง๐ข๐œ๐š.
โค๏ธ Y tambiรฉn ๐ฏ๐ž๐ฆ๐จ๐ฌ ๐š ๐ฅ๐š๐ฌ ๐Ÿ๐š๐ฆ๐ข๐ฅ๐ข๐š๐ฌ, ๐š๐ฆ๐ข๐ ๐จ๐ฌ ๐ฒ ๐œ๐ฎ๐ข๐๐š๐๐จ๐ซ๐ž๐ฌ ๐ช๐ฎ๐ž ๐ž๐ฌ๐ญ๐š๐ง ๐š ๐ฏ๐ฎ๐ž๐ฌ๐ญ๐ซ๐จ ๐ฅ๐š๐๐จ.

Por eso, pacientes, asociaciones, profesionales sanitarios y todos los que formamos parte de la comunidad CBP nos unimos para hacer visible lo que a veces permanece oculto.

๐Ÿ‘‚ Porque ๐ฌ๐ž๐ซ ๐ž๐ฌ๐œ๐ฎ๐œ๐ก๐š๐๐จ ๐ข๐ฆ๐ฉ๐จ๐ซ๐ญ๐š.
๐Ÿ’ก Ser ๐œ๐จ๐ฆ๐ฉ๐ซ๐ž๐ง๐๐ข๐๐จ ๐ข๐ฆ๐ฉ๐จ๐ซ๐ญ๐š
๐Ÿค Y ๐ฌ๐ž๐ง๐ญ๐ข๐ซ๐ฌ๐ž ๐š๐œ๐จ๐ฆ๐ฉ๐š๐ง๐š๐๐จ ๐ข๐ฆ๐ฉ๐จ๐ซ๐ญ๐š

Este mes alzamos nuestras voces con un propรณsito comรบn:
๐„๐ฌ๐œ๐ฎ๐œ๐ก๐š๐ซ. ๐‚๐จ๐ฆ๐ฉ๐ซ๐ž๐ง๐๐ž๐ซ. ๐•๐ข๐ฌ๐ข๐›๐ข๐ฅ๐ข๐ณ๐š๐ซ.

๐ŸŽฌ Mira y comparte la pelรญcula de la campaรฑa:
https://youtube.com/shorts/-ggJkQEJn2A?feature=share

Sรญguenos y ayรบdanos a que este mensaje llegue cada vez mรกs lejos.
No eres invisible.
Tu experiencia importa.
Tu voz cuenta.

07/09/2026

You are not invisible ๐Ÿ’œ

This September, for PBC Awareness Month, and beyond, we want every person living with Primary Biliary Cholangitis (PBC) โ€“ and every family member, friend and carer alongside them โ€“ to feel seen.

Seen in the symptoms others may not notice.
Seen in the challenges others may not understand.
Seen in the realities of living with and alongside PBC every day.

Thatโ€™s why the global PBC community โ€“ patients, patient organisations, clinicians and industry partners โ€“ is coming together around one simple but powerful message:

You are not invisible.

Different voices with one shared purpose: to listen, understand and make sure the experiences of the PBC community are seen and heard.

Watch and share the film via this link: https://youtube.com/shorts/-ggJkQEJn2A?feature=share

There are 20 further versions of this film in different languages still to come; keep an eye on our social media channels in the coming days when we will share more.

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.Choose Me Tuesday sessions last for one hour...
07/09/2026

Our next Choose Me Tuesday online self-care session is tomorrow 6pm UK time.

Choose Me Tuesday sessions last for one hour and focus on general wellbeing. They include tools, techniques, tips, and discussions that you can use and adapt to support your own wellbeing.
Visit our website for more information and details on how to book: https://www.pbcfoundation.org.uk/events/
You can find out more about Choose Me Tuesday here https://www.pbcfoundation.international/choose-me-tuesday/

Spanish Q&A SpecialQ&A EN ESPAร‘OLWe are delighted to welcome Dr Alan Bonder for a special PBC Q&A session in Spanish.Thu...
06/09/2026

Spanish Q&A Special
Q&A EN ESPAร‘OL

We are delighted to welcome Dr Alan Bonder for a special PBC Q&A session in Spanish.
Thursday 17 September 5pm UK time / 6pm mainland Spain

This is an opportunity for our Spanish-speaking PBC community to join us, hear from Dr Bonder and learn more about PBC.

If you have a question for the session, please submit it using the contact form on our website https://www.pbcfoundation.org.uk/contact-us/

Visit our Events webpage for more information and details of how to join https://www.pbcfoundation.org.uk/events/

A recording of the session will also be shared on our YouTube channel https://www.youtube.com/pbcfoundation

Our Q&A sessions provide general information and support about PBC and do not replace discussions with your own healthcare team. Speakers are unable to provide individual medical advice. Questions may be grouped, anonymised or edited for clarity.
If you need help with a more detailed issue, please contact our helpline on +44 (0)131 556 6811.

Join Linda & Collette on Monday 7 September at 2pm for an on-line Community Cafรฉ.Community cafรฉs are designed to help re...
06/09/2026

Join Linda & Collette on Monday 7 September at 2pm for an on-line Community Cafรฉ.

Community cafรฉs are designed to help reduce isolation and bring people together in a relaxed, welcoming environment.

They provide an opportunity to connect with others impacted by PBC, share conversation and community and learn about the services and support available through the PBC Foundation.

Visit our website for more information and details on how to book: https://www.pbcfoundation.org.uk/events/

You can read more about our cafรฉโ€™s here: https://www.pbcfoundation.international/connecting-through-community-cafes/

Coming up this week at the PBC Foundation - week of Monday 7 September.Whether you're looking for information, support, ...
05/09/2026

Coming up this week at the PBC Foundation - week of Monday 7 September.

Whether you're looking for information, support, or the chance to connect with others affected by PBC, we'd love to see you.

Visit our website for more information and details on how to book:
https://www.pbcfoundation.org.uk/events/

Booking for online attendance at our Patient Conference is open until 5pm on Friday 11 September.

Our latest Q&A with Dr Martin Weltman and Mo Christie is now available on our YouTube channel and can be viewed here: ht...
03/09/2026

Our latest Q&A with Dr Martin Weltman and Mo Christie is now available on our YouTube channel and can be viewed here: https://youtu.be/g3SIn-kV7K8

In this PBC Q&A, we cover:

โ€ข Hair loss, peripheral neuropathy, raised LDH, cysts and oedema โ€“ and whether they may be related to PBC
โ€ข Cholesterol and cardiovascular risk
โ€ข Liver cancer screening in PBC
โ€ข Mental health, stress and PBC
โ€ข Creatine, CoQ10, vitamins and supplements
โ€ข Nitrofurantoin and recurrent UTIs
โ€ข Mosquito repellents and travel with PBC
โ€ข Shingles vaccination
โ€ข Other conditions associated with PBC
โ€ข Regular monitoring and tests for people with PBC
โ€ข Second-line PBC treatments available in Australia

Previous Q&As are also available on our YouTube channel: https://www.youtube.com/pbcfoundation

Our Q&A sessions are designed to provide general information and support about PBC and do not replace discussions with your own healthcare team.
Please note that speakers are unable to provide individual medical advice during these sessions.
Questions may be grouped, anonymised or edited for clarity.
If you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

A huge thank you to everyone who has completed the survey about our services so far.Have you been meaning to complete th...
03/09/2026

A huge thank you to everyone who has completed the survey about our services so far.

Have you been meaning to complete the survey but just haven't got round to it yet? Maybe you've just got back into the swing of things after the summer and only just seen that there's a new survey? If so, we have good news! There is still time to have your say and weโ€™d love your feedback.

At The PBC Foundation, we are committed to providing the best possible support and services for people affected by PBC.

As well as comparing feedback from previous surveys, we have included some new questions to help us understand what is helping most, what could be improved, and where additional support may be needed.

Your experiences and insights will play an important role in shaping our future services.

Read more here including how to access the survey: https://www.pbcfoundation.international/pbc-foundation-services-survey/

Thank you again for taking the time to share your feedback.

Join our next Q&A session on Thursday 3 September at 7am UK / 4pm Sydney time when Dr Martin Weltman will be answering y...
02/09/2026

Join our next Q&A session on Thursday 3 September at 7am UK / 4pm Sydney time when Dr Martin Weltman will be answering your questions about PBC.

If you have any questions, please submit them by using the contact form on our website: https://www.pbcfoundation.org.uk/contact-us/

Visit our Events webpage for more information: https://www.pbcfoundation.org.uk/events/

A recording will also be shared to our YouTube channel: https://www.youtube.com/pbcfoundation

Our Q&A sessions are designed to provide general information and support about PBC and do not replace discussions with your own healthcare team.

Please note that speakers are unable to provide individual medical advice during these sessions.

Questions may be grouped, anonymised or edited for clarity.

If you need help with a more detailed issue, please contact us on the helpline +44 (0)131 556 6811.

Address

Unit 1, Dunfermline Business Centre, Izatt Avenue
Edinburgh
KY113BZ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 4:30pm

Telephone

+441315566811

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