Hope4ATRT

Hope4ATRT Hope4ATRT is a dynamic website focused on directing RESOURCES & RESEARCH to families in the fight with ATRT.

Amaraโ€™s family has shared an update on her journey, and while the road remains incredibly difficult, there is a glimmer ...
30/05/2026

Amaraโ€™s family has shared an update on her journey, and while the road remains incredibly difficult, there is a glimmer of hope to hold onto today. Please continue to keep them all in your thoughts and prayers.

๐‡๐ž๐ซ๐ž ๐ข๐ฌ ๐ญ๐ก๐ž ๐ฅ๐š๐ญ๐ž๐ฌ๐ญ ๐จ๐ง ๐€๐ฆ๐š๐ซ๐š'๐ฌ ๐Ÿ๐ข๐ ๐ก๐ญ:
The last few weeks have been the hardest Amaraโ€™s family has ever faced. After undergoing chemotherapy for her brain tumor, Amara caught parainfluenza and her lungs became very sick. Medical teams are still trying to pinpoint exactly what is happening, as no bacteria has grown in her blood cultures. At one point, the family was told her lungs might not recover, and they came incredibly close to losing her.

Today, however, there is a bit of hope to hold onto. Amara is more stable. Her lungs are holding better, and the PICU team is planning to wake her from sedation on Tuesday. That means they will start reducing the breathing tube support to see if she can begin breathing more on her own.

She remains critically ill, and there is still a long road ahead. But โ€œmore stableโ€ and โ€œwaking up Tuesdayโ€ are words the family didnโ€™t think they would get to hear this week.

๐€ ๐ฆ๐ž๐ฌ๐ฌ๐š๐ ๐ž ๐Ÿ๐ซ๐จ๐ฆ ๐ญ๐ก๐ž ๐Ÿ๐š๐ฆ๐ข๐ฅ๐ฒ: "๐‘‡โ„Ž๐‘Ž๐‘›๐‘˜ ๐‘ฆ๐‘œ๐‘ข ๐‘ก๐‘œ ๐‘’๐‘ฃ๐‘’๐‘Ÿ๐‘ฆ๐‘œ๐‘›๐‘’ ๐‘คโ„Ž๐‘œโ€™๐‘  ๐‘ ๐‘’๐‘›๐‘ก ๐‘š๐‘’๐‘ ๐‘ ๐‘Ž๐‘”๐‘’๐‘ , ๐‘๐‘Ÿ๐‘Ž๐‘ฆ๐‘’๐‘Ÿ๐‘  ๐‘Ž๐‘›๐‘‘ ๐‘ ๐‘ก๐‘Ÿ๐‘’๐‘›๐‘”๐‘กโ„Ž. ๐‘Š๐‘’ ๐‘“๐‘’๐‘’๐‘™ ๐‘–๐‘ก ๐‘Ž๐‘›๐‘‘ ๐‘–๐‘กโ€™๐‘  ๐‘˜๐‘’๐‘’๐‘๐‘–๐‘›๐‘” ๐‘ข๐‘  ๐‘”๐‘œ๐‘–๐‘›๐‘”. ๐‘Š๐‘’โ€™๐‘™๐‘™ ๐‘ข๐‘๐‘‘๐‘Ž๐‘ก๐‘’ ๐‘Ž๐‘”๐‘Ž๐‘–๐‘› ๐‘Ž๐‘“๐‘ก๐‘’๐‘Ÿ ๐‘‡๐‘ข๐‘’๐‘ ๐‘‘๐‘Ž๐‘ฆ."

Read more of Amara's journey:

After a difficult road to a diagnosis, Amara and her family are showing immense bravery as they navigate ATRT treatment.

โœจ Today, we honor the beautiful memory of sweet Kavon Harris on what would have been his 7th birthday, while keeping his...
29/05/2026

โœจ Today, we honor the beautiful memory of sweet Kavon Harris on what would have been his 7th birthday, while keeping his wonderful family wrapped in our communityโ€™s love.

Diagnosed with ATRT at just 10 months old, Kavon was a fierce and courageous warrior who fought hard for almost his entire life. Today, we remember his incredible strength, his beautiful spirit, and the immense love he brought to everyone who knew him. ๐ŸŽ—๏ธโค๏ธ

Please join us in remembering Kavon today and sending his family your thoughts and comfort on this special day. ๐Ÿซ‚๐Ÿ•Š๏ธ๐ŸŽˆ

๐ˆ๐ง ๐‹๐จ๐ฏ๐ข๐ง๐  ๐Œ๐ž๐ฆ๐จ๐ซ๐ฒ ๐จ๐Ÿ ๐Š๐š๐ฏ๐จ๐ง ๐‡๐š๐ซ๐ซ๐ข๐ฌ
May 29, 2019 ~ June 6, 2022

๐ŸŽˆ๐ŸŽˆ ๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ๐ง๐ ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‘๐ข๐Ÿ๐ญ๐ž๐ง! ๐ŸฅณRiften is a very happy little boy who is full of energy most days. He is a freedom lover...
29/05/2026

๐ŸŽˆ๐ŸŽˆ ๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ๐ง๐ ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‘๐ข๐Ÿ๐ญ๐ž๐ง! ๐Ÿฅณ

Riften is a very happy little boy who is full of energy most days. He is a freedom lover, a helper, and has a truly kind, loving soul. โค๏ธ We are all so amazed by how strong, resilient, and determined he is! ๐Ÿ’ช

๐‘๐ข๐Ÿ๐ญ๐ž๐ง ๐ž๐ง๐ฃ๐จ๐ฒ๐ฌ playing with dinosaurs ๐Ÿฆ•, Hot Wheels ๐ŸŽ๏ธ, and puzzles๐Ÿงฉ, as well as playing on the playground, making new friends, and spending quality time with his family. ๐Ÿซ‚

๐‡๐ž ๐ฅ๐จ๐ฏ๐ž๐ฌ:
๐Ÿ–๏ธ coloring and scribbling on paper
๐Ÿ“š reading books with his family
๐Ÿต Watching ๐ถ๐‘ข๐‘Ÿ๐‘–๐‘œ๐‘ข๐‘  ๐บ๐‘’๐‘œ๐‘Ÿ๐‘”๐‘’, ๐ต๐‘™๐‘–๐‘๐‘๐‘–, and ๐‘€๐‘ . ๐‘…๐‘Ž๐‘โ„Ž๐‘’๐‘™ during his treatments and down time ๐Ÿ“บ

๐‘๐ข๐Ÿ๐ญ๐ž๐งโ€™๐ฌ ๐€๐“๐‘๐“ ๐‰๐จ๐ฎ๐ซ๐ง๐ž๐ฒ: Riftenโ€™s tumor was discovered on January 7th and resected on January 9th. Following his pathology results on January 22nd, his family moved to Tennessee the very next day to begin treatment at St. Jude. On January 28th, they discovered the cancer had spread to his spine, and treatment officially began in February.

Riften has been handling his treatments so well, and his scans from the first week of April showed the spot on his spine shrinking! ๐Ÿ™Œ๐ŸŽ—๏ธ He will have his next set of scans after his round 4 at the end of this month.

We are sending so much love, strength, and birthday joy to Riften and his family today. We are all rooting for you!

โ€ฆ

๐Ÿฅณ ๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ‘๐ซ๐ ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐…๐ฅ๐ฒ๐ง๐ง! ๐ŸŽ‚ Flynn turns three today, and he is oh-so-cheeky! He absolutely loves playing with other k...
27/05/2026

๐Ÿฅณ ๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ‘๐ซ๐ ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐…๐ฅ๐ฒ๐ง๐ง! ๐ŸŽ‚
Flynn turns three today, and he is oh-so-cheeky! He absolutely loves playing with other kids and can be quite the little trickster! Heโ€™ll do anything to make the people around him laugh. ๐Ÿ˜‚๐ŸŽญ

๐…๐ฅ๐ฒ๐ง๐ง ๐ฅ๐จ๐ฏ๐ž๐ฌ:
๐Ÿš— playing with cars
๐ŸŠโ€โ™‚๏ธ swimming
๐Ÿชš helping his dad with outside jobs (especially the chainsaw!)
๐Ÿ‘ถ his little brother Frankie and would play with him late into the night if he was allowed

His family shares, โ€œ๐‘Š๐‘’ ๐‘Ž๐‘Ÿ๐‘’ ๐‘ ๐‘œ ๐‘–๐‘›๐‘๐‘Ÿ๐‘’๐‘‘๐‘–๐‘๐‘™๐‘ฆ ๐‘๐‘Ÿ๐‘œ๐‘ข๐‘‘ ๐‘œ๐‘“ ๐น๐‘™๐‘ฆ๐‘›๐‘›. ๐ป๐‘’ โ„Ž๐‘Ž๐‘  ๐‘ โ„Ž๐‘œ๐‘ค๐‘› ๐‘Ÿ๐‘’๐‘ ๐‘–๐‘™๐‘–๐‘’๐‘›๐‘๐‘’ ๐‘Ž๐‘›๐‘‘ ๐‘๐‘Ÿ๐‘Ž๐‘ฃ๐‘’๐‘Ÿ๐‘ฆ ๐‘“๐‘Ž๐‘Ÿ ๐‘๐‘’๐‘ฆ๐‘œ๐‘›๐‘‘ โ„Ž๐‘–๐‘  3 ๐‘ฆ๐‘’๐‘Ž๐‘Ÿ๐‘ , ๐‘Ž๐‘›๐‘‘ ๐‘ ๐‘’๐‘’๐‘–๐‘›๐‘” โ„Ž๐‘–๐‘š ๐‘ ๐‘š๐‘–๐‘™๐‘’ ๐‘’๐‘ฃ๐‘’๐‘Ÿ๐‘ฆ ๐‘ ๐‘–๐‘›๐‘”๐‘™๐‘’ ๐‘‘๐‘Ž๐‘ฆ ๐‘–๐‘  ๐‘Ž ๐‘ก๐‘Ÿ๐‘ข๐‘’ ๐‘ก๐‘’๐‘ ๐‘ก๐‘Ž๐‘š๐‘’๐‘›๐‘ก ๐‘ก๐‘œ โ„Ž๐‘–๐‘  ๐‘‘๐‘’๐‘ก๐‘’๐‘Ÿ๐‘š๐‘–๐‘›๐‘Ž๐‘ก๐‘–๐‘œ๐‘› ๐‘ก๐‘œ ๐‘™๐‘–๐‘ฃ๐‘’ ๐‘™๐‘–๐‘“๐‘’ ๐‘ก๐‘œ ๐‘กโ„Ž๐‘’ ๐‘“๐‘ข๐‘™๐‘™๐‘’๐‘ ๐‘ก, ๐‘›๐‘œ ๐‘š๐‘Ž๐‘ก๐‘ก๐‘’๐‘Ÿ ๐‘คโ„Ž๐‘Ž๐‘ก ๐‘ก๐‘Ÿ๐‘–๐‘Ž๐‘™ ๐‘–๐‘  ๐‘กโ„Ž๐‘Ÿ๐‘œ๐‘ค๐‘› โ„Ž๐‘–๐‘  ๐‘ค๐‘Ž๐‘ฆ. ๐‘Š๐‘’ ๐‘™๐‘œ๐‘ฃ๐‘’ ๐‘ฆ๐‘œ๐‘ข ๐‘ ๐‘œ ๐‘š๐‘ข๐‘โ„Ž, ๐น๐‘™๐‘ฆ๐‘›๐‘›, ๐‘Ž๐‘›๐‘‘ ๐‘“๐‘’๐‘’๐‘™ ๐‘–๐‘›๐‘๐‘Ÿ๐‘’๐‘‘๐‘–๐‘๐‘™๐‘ฆ ๐‘๐‘™๐‘’๐‘ ๐‘ ๐‘’๐‘‘ ๐‘ก๐‘œ ๐‘๐‘’ ๐‘Ž๐‘๐‘™๐‘’ ๐‘ก๐‘œ ๐‘๐‘’๐‘™๐‘’๐‘๐‘Ÿ๐‘Ž๐‘ก๐‘’ ๐‘กโ„Ž๐‘–๐‘  ๐‘ ๐‘๐‘’๐‘๐‘–๐‘Ž๐‘™ ๐‘‘๐‘Ž๐‘ฆ ๐‘ค๐‘–๐‘กโ„Ž ๐‘ฆ๐‘œ๐‘ข!โ€ ๐Ÿ’ช๐ŸŒŸ
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๐Ÿค ๐๐Ž๐–๐„๐‘๐…๐”๐‹ ๐๐€๐‘๐“๐๐„๐‘๐’๐‡๐ˆ๐ ๐…๐Ž๐‘ ๐€ ๐‚๐”๐‘๐„! ๐ŸŽ—๏ธ๐Ÿ”ฌWe are incredibly proud to announce that Hope4ATRT has officially partnered with t...
27/05/2026

๐Ÿค ๐๐Ž๐–๐„๐‘๐…๐”๐‹ ๐๐€๐‘๐“๐๐„๐‘๐’๐‡๐ˆ๐ ๐…๐Ž๐‘ ๐€ ๐‚๐”๐‘๐„! ๐ŸŽ—๏ธ๐Ÿ”ฌ

We are incredibly proud to announce that Hope4ATRT has officially partnered with the St. Baldrick's Foundation to co-fund a 2026 Summer Fellowship Award at Children's Hospital Los Angeles!

The fellowship has been awarded to Dr. Jessica Tsai, M.D., Ph.D., to support a dedicated researcher in investigating the biological vulnerabilities of ATRT. Her breakthrough project focuses on uncovering why ATRT cells die, paving the way for more targeted, less toxic therapies for our littlest warriors.

As our co-founder Dr. Jaymi Yamoah shared: โ€œ๐ผ๐‘กโ€™๐‘  ๐‘Ž๐‘™๐‘ค๐‘Ž๐‘ฆ๐‘  ๐‘ ๐‘œ ๐‘’๐‘ฅ๐‘๐‘–๐‘ก๐‘–๐‘›๐‘” ๐‘ก๐‘œ ๐‘ ๐‘’๐‘’ ๐‘Ÿ๐‘’๐‘ ๐‘’๐‘Ž๐‘Ÿ๐‘โ„Ž๐‘’๐‘Ÿ๐‘  ๐‘‘๐‘’๐‘‘๐‘–๐‘๐‘Ž๐‘ก๐‘–๐‘›๐‘” ๐‘ก๐‘–๐‘š๐‘’ ๐‘Ž๐‘›๐‘‘ ๐‘’๐‘›๐‘’๐‘Ÿ๐‘”๐‘ฆ ๐‘–๐‘›๐‘ก๐‘œ ๐ด๐‘‡๐‘…๐‘‡ ๐‘Ÿ๐‘’๐‘ ๐‘’๐‘Ž๐‘Ÿ๐‘โ„Ž. ๐ผ๐‘ก ๐‘š๐‘’๐‘Ž๐‘›๐‘  ๐‘กโ„Ž๐‘’ ๐‘ค๐‘œ๐‘Ÿ๐‘™๐‘‘ ๐‘ก๐‘œ ๐‘ข๐‘  ๐‘Ž๐‘›๐‘‘ ๐‘กโ„Ž๐‘’ ๐‘“๐‘Ž๐‘š๐‘–๐‘™๐‘–๐‘’๐‘  ๐‘ค๐‘’ ๐‘ ๐‘’๐‘Ÿ๐‘ฃ๐‘’. ๐‘‡๐‘œ๐‘”๐‘’๐‘กโ„Ž๐‘’๐‘Ÿ ๐‘ค๐‘’ ๐‘’๐‘›๐‘ฃ๐‘–๐‘ ๐‘–๐‘œ๐‘› ๐‘Ž ๐‘“๐‘ข๐‘ก๐‘ข๐‘Ÿ๐‘’ ๐‘คโ„Ž๐‘’๐‘Ÿ๐‘’ ๐‘กโ„Ž๐‘’๐‘Ÿ๐‘’ ๐‘Ž๐‘Ÿ๐‘’ ๐‘๐‘’๐‘ก๐‘ก๐‘’๐‘Ÿ ๐‘ก๐‘Ÿ๐‘’๐‘Ž๐‘ก๐‘š๐‘’๐‘›๐‘ก๐‘  ๐‘Ž๐‘›๐‘‘ ๐‘ข๐‘™๐‘ก๐‘–๐‘š๐‘Ž๐‘ก๐‘’๐‘™๐‘ฆ ๐‘Ž ๐‘๐‘ข๐‘Ÿ๐‘’ ๐‘“๐‘œ๐‘Ÿ ๐ด๐‘‡๐‘…๐‘‡!โ€ ๐Ÿ’›

Fostering the next generation of scientific talent means accelerating the timeline from the lab bench to clinical trials.

Read the full press release here:
๐Ÿ‘‰ hope4atrt.org/press/hope4atrt-stbaldricks-summer-fellowship-award ๐Ÿ“ฐโœจ

๐ŸŽ—๏ธ ๐‡๐จ๐ง๐จ๐ซ๐ข๐ง๐  ๐‹๐ข๐ฅ๐ฒ ๐‹๐จ๐ฎ๐ข๐ฌ๐ž ๐Š๐ข๐ž๐Ÿ๐Ÿ๐ž๐ซThis May, as we observe ๐๐ซ๐š๐ข๐ง ๐“๐ฎ๐ฆ๐จ๐ซ ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Œ๐จ๐ง๐ญ๐ก, we want to introduce you to a truly ...
26/05/2026

๐ŸŽ—๏ธ ๐‡๐จ๐ง๐จ๐ซ๐ข๐ง๐  ๐‹๐ข๐ฅ๐ฒ ๐‹๐จ๐ฎ๐ข๐ฌ๐ž ๐Š๐ข๐ž๐Ÿ๐Ÿ๐ž๐ซ
This May, as we observe ๐๐ซ๐š๐ข๐ง ๐“๐ฎ๐ฆ๐จ๐ซ ๐€๐ฐ๐š๐ซ๐ž๐ง๐ž๐ฌ๐ฌ ๐Œ๐จ๐ง๐ญ๐ก, we want to introduce you to a truly special family and share the story of a beautiful, fiery little girl whose legacy is going to make a lasting impact on the fight against ATRT.

In the wake of an unimaginable loss, Lily's wonderful parents, Lizzie and Matt (along with big sister Mia), have chosen to channel their grief into profound purpose. We want to extend our deepest, most heartfelt gratitude to them for choosing to partner with Hope4ATRT. To point their community toward critical answers and hope, they have established a dedicated donation fund in loving memory of Lily.

In addition to a portion of their sales from their business, ๐Ÿ๐ŸŽ๐ŸŽ% ๐จ๐Ÿ ๐š๐ฅ๐ฅ ๐๐จ๐ง๐š๐ญ๐ข๐จ๐ง๐ฌ ๐ฆ๐š๐๐ž ๐ญ๐จ ๐‹๐ข๐ฅ๐ฒโ€™๐ฌ ๐Ÿ๐ฎ๐ง๐ ๐ฐ๐ข๐ฅ๐ฅ ๐ ๐จ ๐๐ข๐ซ๐ž๐œ๐ญ๐ฅ๐ฒ ๐ญ๐จ ๐€๐“๐‘๐“-๐ฌ๐ฉ๐ž๐œ๐ข๐Ÿ๐ข๐œ ๐ซ๐ž๐ฌ๐ž๐š๐ซ๐œ๐ก. They are turning their pain into a beacon of light for other families, ensuring Lilyโ€™s legacy helps fund the cure.

Below, we invite you to read Lilyโ€™s beautiful story, shared directly from her angel page. ๐Ÿ•Š๏ธโœจ

๐‹๐ข๐ฅ๐ฒโ€™๐ฌ ๐’๐ญ๐จ๐ซ๐ฒ
hope4atrt.org/atrt-angels/lily-kieffer
Lilian Louise was born on April 13, 2024, and from the moment we found out about her, she was deeply loved. When she came earth side, she changed our lives for the better in every possible way. Her older sister, Mia, was completely obsessed with her from the very beginning. She adored her baby sister. Sweet Lily left us on April 23, 2025, at only 1 year and 10 days old.

Lily was fiery, beautiful, ornery, and oh so sweet. She had a light about her that you couldnโ€™t help but feel the moment she entered a room. She loved riding in the little red car with her older sister, climbing the stairs only to get to the top and look back with the proudest grin, and sitting in her ball pit giggling at the simplest joys. She had a deep love for chicken noodle soup and was always trying to steal Miaโ€™s snacks.

Lily was just beginning to take her first steps around her first birthday and was hitting all of her milestones. She had started saying โ€œmamaโ€ and โ€œdadaโ€ more intentionally and was such a happy, joy-filled baby. We are so grateful that love, safety, and happiness are all she ever truly knew.

Lily showed no signs of having a tumor, and it wasnโ€™t until months after she passed, when we received the final reports, that we learned she had ATRT โ€” a rare and aggressive brain tumor located on her brainstem.

While we will never fully understand why this happened, we do know that Lily is safely in the hands of her Creator. Her life, though far too short, continues to impact others in ways we never could have imagined. Through her story, we hope to raise awareness for ATRT, support research for children and families affected by this devastating diagnosis, and honor the beautiful little girl who made us better simply by being ours.

In Lilyโ€™s honor, proceeds from the MBC sale will be donated to Hope4ATRT to help support families, research, and the fight against pediatric brain cancer. We pray Lilyโ€™s light continues to shine through every life touched by her story.

๐Ÿ’ก ๐‡๐จ๐ฐ ๐˜๐จ๐ฎ ๐‚๐š๐ง ๐’๐ฎ๐ฉ๐ฉ๐จ๐ซ๐ญ:
To support this vital ATRT-specific research in honor of sweet Lily, you can give directly on her angel page here: hope4atrt.org/atrt-angels/lily-kieffer
..

โœจ๐‡๐š๐ฉ๐ฉ๐ฒ ๐‡๐ž๐š๐ฏ๐ž๐ง๐ฅ๐ฒ ๐Ÿ’๐ญ๐ก ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‚๐š๐ฌ๐ž๐ฒ. ๐ŸŽ‚โœจPlease join us in keeping Casey and her family close in your thoughts today, cele...
24/05/2026

โœจ๐‡๐š๐ฉ๐ฉ๐ฒ ๐‡๐ž๐š๐ฏ๐ž๐ง๐ฅ๐ฒ ๐Ÿ’๐ญ๐ก ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‚๐š๐ฌ๐ž๐ฒ. ๐ŸŽ‚โœจ

Please join us in keeping Casey and her family close in your thoughts today, celebrating her beautiful memory, and surrounding her loved ones with our community's deepest support. ๐Ÿซ‚

Casey's family shares this beautiful message today: ๐ด๐‘›๐‘œ๐‘กโ„Ž๐‘’๐‘Ÿ โ„Ž๐‘’๐‘Ž๐‘ฃ๐‘’๐‘›๐‘™๐‘ฆ ๐‘๐‘–๐‘Ÿ๐‘กโ„Ž๐‘‘๐‘Ž๐‘ฆ ๐‘“๐‘œ๐‘Ÿ ๐‘œ๐‘ข๐‘Ÿ ๐‘ ๐‘ค๐‘’๐‘’๐‘ก๐‘’๐‘ ๐‘ก ๐‘Ž๐‘›๐‘”๐‘’๐‘™. ๐‘‡โ„Ž๐‘’๐‘Ÿ๐‘’ ๐‘–๐‘ ๐‘›โ€™๐‘ก ๐‘Ž ๐‘‘๐‘Ž๐‘ฆ ๐‘กโ„Ž๐‘Ž๐‘ก ๐‘”๐‘œ๐‘’๐‘  ๐‘๐‘ฆ ๐‘กโ„Ž๐‘Ž๐‘ก ๐‘ค๐‘’ ๐‘‘๐‘œ๐‘›โ€™๐‘ก ๐‘กโ„Ž๐‘–๐‘›๐‘˜ ๐‘Ž๐‘๐‘œ๐‘ข๐‘ก, โ„Ž๐‘œ๐‘›๐‘œ๐‘Ÿ ๐‘œ๐‘Ÿ ๐‘™๐‘œ๐‘ฃ๐‘’ ๐‘œ๐‘› ๐‘œ๐‘ข๐‘Ÿ ๐‘”๐‘–๐‘Ÿ๐‘™. ๐‘Š๐‘’ ๐‘ก๐‘Ÿ๐‘ข๐‘™๐‘ฆ ๐‘š๐‘–๐‘ ๐‘  โ„Ž๐‘’๐‘Ÿ ๐‘’๐‘Ž๐‘โ„Ž ๐‘Ž๐‘›๐‘‘ ๐‘’๐‘ฃ๐‘’๐‘Ÿ๐‘ฆ ๐‘‘๐‘Ž๐‘ฆ. ๐ถ๐‘Ž๐‘ ๐‘’๐‘ฆ ๐‘ก๐‘Ž๐‘ข๐‘”โ„Ž๐‘ก ๐‘ข๐‘  ๐‘ ๐‘œ ๐‘š๐‘ข๐‘โ„Ž ๐‘–๐‘› โ„Ž๐‘’๐‘Ÿ 6 ๐‘š๐‘œ๐‘›๐‘กโ„Ž๐‘  ๐‘–๐‘›๐‘๐‘™๐‘ข๐‘‘๐‘–๐‘›๐‘” ๐‘๐‘’๐‘Ÿ๐‘ ๐‘’๐‘ฃ๐‘’๐‘Ÿ๐‘Ž๐‘›๐‘๐‘’, ๐‘Ÿ๐‘’๐‘ ๐‘–๐‘™๐‘–๐‘’๐‘›๐‘๐‘’, ๐‘๐‘Ž๐‘ก๐‘–๐‘’๐‘›๐‘๐‘’, ๐‘™๐‘œ๐‘ฃ๐‘’ ๐‘Ž๐‘›๐‘‘ ๐‘”๐‘Ÿ๐‘Ž๐‘ก๐‘–๐‘ก๐‘ข๐‘‘๐‘’ ๐‘’๐‘ฃ๐‘’๐‘› ๐‘คโ„Ž๐‘’๐‘› ๐‘‘๐‘’๐‘Ž๐‘™๐‘–๐‘›๐‘” ๐‘ค๐‘–๐‘กโ„Ž ๐‘กโ„Ž๐‘’ ๐‘–๐‘š๐‘๐‘œ๐‘ ๐‘ ๐‘–๐‘๐‘™๐‘’. ๐‘†โ„Ž๐‘’ ๐‘‘๐‘’๐‘ ๐‘’๐‘Ÿ๐‘ฃ๐‘’๐‘  ๐‘Ž๐‘™๐‘™ ๐‘กโ„Ž๐‘’ ๐‘Ÿ๐‘’๐‘š๐‘’๐‘š๐‘๐‘Ÿ๐‘Ž๐‘›๐‘๐‘’ ๐‘Ž๐‘›๐‘‘ ๐‘๐‘’๐‘™๐‘’๐‘๐‘Ÿ๐‘Ž๐‘ก๐‘–๐‘œ๐‘› ๐‘œ๐‘› โ„Ž๐‘’๐‘Ÿ ๐‘ ๐‘๐‘’๐‘๐‘–๐‘Ž๐‘™ ๐‘‘๐‘Ž๐‘ฆ. โค๏ธ

To celebrate her life today, we are also looking back at a few of Caseyโ€™s favorite things:
๐Ÿ“š She loved her books and anyone who read to her
๐Ÿ’– She loved her big sister Kyla, Mom and Dad, and we think sheโ€™d also enjoy her younger brother Caiden as well
๐Ÿ’ฌ She loved visitors and babbling all day
๐Ÿงธ She was the best cuddle bug

๐ŸŽ—๏ธDiagnosed with ATRT at just 7 weeks old in 2022, Caseyโ€™s beautiful legacy shines so brightly in our hearts, reminding us exactly why we must never stop fighting for better treatments and a cure. ๐Ÿ•Š๏ธ

๐‘๐ž๐ฆ๐ž๐ฆ๐›๐ž๐ซ๐ข๐ง๐  ๐‚๐š๐ฌ๐ž๐ฒ ๐„๐ฉ๐ฉ๐ž๐ซ๐ฌ๐จ๐ง
May 24, 2022 ~ December 14, 2022


Today, we honor what would have been Esmeeโ€™s 5th birthday, choosing to fill this day with love and remembrance for her b...
24/05/2026

Today, we honor what would have been Esmeeโ€™s 5th birthday, choosing to fill this day with love and remembrance for her beautiful, bright spirit. โœจ

We wrap Esmee's family in our tightest embrace, sending endless love and strength their way on this emotional milestone. โค๏ธ

Please join us in pausing today to remember Esmee, to say her name, and to surround her family with the powerful support of our community. ๐ŸŽ—๏ธ

Happy heavenly 5th birthday, Esmee. ๐ŸŽˆ You are forever loved, forever missed, and forever strong. ๐Ÿ•Š๏ธ

Esmee de Groot
May 24, 2021 ~ April 5, 2024

โ€ฆ

Vandaag eren we wat Esmeeโ€™s 5e verjaardag zou zijn geweest, en kiezen we ervoor om deze dag te vullen met liefde en herinneringen aan haar prachtige, stralende geest. โœจ

We sluiten Esmee's familie in onze armen en sturen hen oneindig veel liefde en kracht op deze emotionele mijlpaal. โค๏ธ

Laten we vandaag samen stilstaan om Esmee te herdenken, haar naam te noemen en haar familie te omringen met de krachtige steun van onze gemeenschap. ๐ŸŽ—๏ธ

Fijne hemelse 5e verjaardag, Esmee.๐ŸŽˆ Je wordt voor altijd gemist, voor altijd herinnerd en je blijft voor altijd in ons hart. ๐Ÿ•Š๏ธ

Esmee de Groot
24 mei 2021 ~ 5 april 2024

โ€ฆ

ATRTangel CommunitySupport

๐Ÿซง๐Ÿซง ๐–๐ž ๐๐ฎ๐›๐›๐ฅ๐ž๐ ๐€๐œ๐ซ๐จ๐ฌ๐ฌ ๐ญ๐ก๐ž ๐†๐ฅ๐จ๐›๐ž! ๐ŸŒLast Saturday was absolutely unforgettable. Seeing skies all across the globe filled wi...
23/05/2026

๐Ÿซง๐Ÿซง ๐–๐ž ๐๐ฎ๐›๐›๐ฅ๐ž๐ ๐€๐œ๐ซ๐จ๐ฌ๐ฌ ๐ญ๐ก๐ž ๐†๐ฅ๐จ๐›๐ž! ๐ŸŒ

Last Saturday was absolutely unforgettable. Seeing skies all across the globe filled with bubbles in honor of our fierce warriors was a beautiful, moving reminder of just how powerful our community truly is. Thank you to everyone who stepped outside, blew bubbles, and shared their moments with us!

Because of your incredible support, ๐ฐ๐ž ๐ซ๐š๐ข๐ฌ๐ž๐ ๐จ๐ฏ๐ž๐ซ $๐Ÿ,๐Ÿ“๐ŸŽ๐ŸŽ ๐ข๐ง ๐ฃ๐ฎ๐ฌ๐ญ ๐จ๐ง๐ž ๐ฐ๐ž๐ž๐ค! ๐Ÿ’ฅ

But we arenโ€™t done yet. There is still more to May, and we are officially halfway to our ultimate $5,000 goal. Letโ€™s keep this momentum going for our warriors!

Here is how you can help us cross the finish line this month:
๐Ÿ”— ๐ƒ๐จ๐ง๐š๐ญ๐ž ๐Ž๐ง๐ฅ๐ข๐ง๐ž: givebutter.com/hope4atrt-bubbleday
๐Ÿ“ฑ Text ๐๐ฎ๐›๐›๐ฅ๐ž๐ƒ๐š๐ฒ to ๐Ÿ“๐Ÿ‘-๐Ÿ“๐Ÿ“๐Ÿ“

Every dollar brings us closer. Let's finish May strong! ๐Ÿ’ช๐Ÿ’›

๐ŸŽˆ๐Ÿฆ–๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ’๐ญ๐ก ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‰๐š๐œ๐จ๐›! ๐Ÿฅณ๐ŸŽ‚Join us as we celebrate this incredible, brave, and joy-filled warrior! ๐Ÿ’™Jacob loves: ๐Ÿš— Z...
22/05/2026

๐ŸŽˆ๐Ÿฆ–๐‡๐š๐ฉ๐ฉ๐ฒ ๐Ÿ’๐ญ๐ก ๐๐ข๐ซ๐ญ๐ก๐๐š๐ฒ, ๐‰๐š๐œ๐จ๐›! ๐Ÿฅณ๐ŸŽ‚
Join us as we celebrate this incredible, brave, and joy-filled warrior! ๐Ÿ’™

Jacob loves:
๐Ÿš— Zooming around with his ๐‡๐จ๐ญ ๐–๐ก๐ž๐ž๐ฅ๐ฌ
๐Ÿงฑ Building master creations with ๐‹๐ž๐ ๐จ
๐ŸŽจ Getting creative with ๐๐ฅ๐š๐ฒ-๐ƒ๐จ๐ก
๐Ÿ› ๏ธ Watching his favorite show, ๐‡๐š๐ง๐๐ฒ๐ฆ๐š๐ง ๐‡๐š๐ฅ
๐ŸŽถ ๐ƒ๐š๐ง๐œ๐ข๐ง๐ , ๐ฌ๐ข๐ง๐ ๐ข๐ง๐ , ๐š๐ง๐ ๐ ๐จ๐ข๐ง๐  ๐จ๐ง ๐›๐ข๐  ๐š๐๐ฏ๐ž๐ง๐ญ๐ฎ๐ซ๐ž๐ฌ!

โœจ ๐–๐ก๐š๐ญโ€™๐ฌ ๐๐ž๐ฑ๐ญ ๐Ÿ๐จ๐ซ ๐‰๐š๐œ๐จ๐› โœจ
Jacob has recovered remarkably well from his previous surgery, and his next medical steps are officially scheduled:
๐Ÿ—“๏ธ ๐Œ๐š๐ฒ ๐Ÿ๐Ÿ”๐ญ๐ก: Upcoming scans
๐Ÿฅ ๐‰๐ฎ๐ง๐ž ๐Ÿ๐Ÿ๐ญ๐ก: Ommaya reservoir insertion surgery
๐Ÿ’ช ๐„๐ง๐ ๐จ๐Ÿ ๐‰๐ฎ๐ง๐ž: Beginning his next rounds of chemotherapy treatments
๐ŸŽ’ ๐€๐ฎ๐ ๐ฎ๐ฌ๐ญ: Jacob will officially start Transitional Kindergarten (TK)!

๐Ÿ™ His family requests prayers for completely clear scans on May 26th, for continuous strength and peace during these next steps, and complete, permanent healing so this cancer never returns.

๐Ÿ“– Read more about Jacobโ€™s journey with ATRT at hope4atrt.org/atrt-fighters/jacob

โ€ฆ.

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