FTWW Fair Treatment for the Women of Wales

31/07/2026

🎉📣We are very excited to publish July’s FTWW newsletter!

In this month’s newsletter you will read about FTWW’s attendance at the Ministerial Summit for Women’s Health and about training that FTWW delivered for Llais. Read about our attendance in the Women’s Health Community Engagement Event, celebrate ROSA UK’s ten years of campaigning for lasting change for women and girls, and learn about the newly launched campaign calling for standardised aftercare following endometriosis surgery. We also feature an exciting endometriosis research opportunity and invite you to contribute to an important survey what matters most to people living with multiple long-term health conditions.

To keep up to date with all FTWW’s activities and news, please subscribe to our monthly bi-lingual newsletter!
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🎉📣Rydyn ni’n edrych ymlaen yn fawr at gyhoeddi cylchlythyr FTWW ym mis Gorffennaf!

Yng nghylchlythyr y mis hwn, byddwch yn darllen am bresenoldeb FTWW yn yr Uwchgynhadledd Weinidogol ar Iechyd Menywod ac am yr hyfforddiant a ddarparwyd gan FTWW i Llais. Darllenwch am ein presenoldeb yn Nigwyddiad Ymgysylltu’r Gymuned Iechyd Menywod, yn dathlu deng mlynedd ROSA UK o ymgyrchu dros newid parhaol i fenywod a merched, a dysgu am yr ymgyrch sydd newydd ei lansio i gael ôl-ofal safonol yn dilyn llawdriniaeth endometriosis. Rydyn ni hefyd yn cynnwys cyfle ymchwil endometriosis cyffrous ac yn eich gwahodd i gyfrannu at arolwg pwysig o’r hyn sydd bwysicaf i bobl sy’n byw gyda nifer o gyflyrau iechyd hirdymor.

I dderbyn yr wybodaeth ddiweddaraf am holl weithgareddau a newyddion FTWW, tanysgrifiwch i’n cylchlythyr dwyieithog misol!

17/07/2026

It's been a busy and inspiring week for FTWW!

We began the week in Llandrindod Wells, delivering a training session to senior leaders from Llais on the importance of women's health, co-production, and amplifying patient voices.

The session included: an overview of FTWW's work; myth-busting around women's health; information about our DrawingOut project, and a range of interactive activities, including WHINGO (Women's Health Bingo)!

Later in the week, we travelled to Cardiff to attend the Ministerial Summit for Women's Health alongside two FTWW volunteers, Donna and Dee.

The summit was a powerful opportunity to bring lived experience directly to clinicians, policymakers and the media. Together, we shared personal reflections and FTWW calls for women's voices to be at the heart of healthcare design and delivery.

The day highlighted the importance of listening to patients; co-producing services with the people who use them; resourcing the third sector, and recognising that while some pain may be considered "normal", it should never simply be accepted.
We were encouraged to see a continued commitment to strengthening women's health support and progressing the objectives of the Women's Health Plan.

A huge thank you to everyone involved in making these important conversations happen. We look forward to them continuing – watch this space!

10/07/2026

Your chance to share what’s important to you when it comes to living with multiple long-term health conditions!

The James Lind Alliance (JLA) brings patients, carers, and clinicians together to identify and prioritise unanswered questions about health topics, so that researchers and funders know what matters most to people who need to use the research in their everyday lives. These collaborations are called Priority Setting Partnerships or PSPs for short – and one has been set up to look at what’s most important for people living with multiple long-term conditions.

The Multiple Long-Term Conditions (MLTC) Priority Setting Partnership has created a survey which they’d like you to complete. Please note that the survey is only available through the medium of English, with a closing date of mid-August. The team is seeking views from people with lived experience, carers, and professionals to help identify future research priorities for care for people living with multiple long-term conditions. If this sounds like you, please do take a look – and please also share widely!

A link to the survey can be found below in the comments.

Thank you very much for your support!..........................................................................................................................

Eich cyfle i rannu beth sy’n bwysig i chi wrth fyw gyda chyflyrau iechyd hirdymor niferus!

Mae Cynghrair James Lind (JLA) yn dod â chleifion, gofalwyr a chlinigwyr at ei gilydd i nodi a blaenoriaethu cwestiynau sydd heb eu hateb am bynciau iechyd, er mwyn i ymchwilwyr a chyllidwyr gael gwybod beth sydd bwysicaf i bobl sydd angen defnyddio’r ymchwil yn eu bywydau bob dydd. Yr enw a roddir ar waith cydweithio fel hyn yw Partneriaethau Gosod Blaenoriaethau - ac mae partneriaeth wedi ei chreu i edrych ar beth sydd bwysicaf i bobl sy’n byw â chyflyrau iechyd hirdymor niferus.

Mae’r Bartneriaeth Gosod Blaenoriaethau Cyflyrau Hirdymor Niferus wedi creu arolwg, ac maen nhw eisiau i chi ei lenwi. Dim ond drwy gyfrwng y Saesneg y mae’r arolwg hwn ar gael, a bydd yn cau ganol mis Awst. Mae’r tîm yn chwilio am farn pobl sydd â phrofiad uniongyrchol, gofalwyr a gweithwyr proffesiynol er mwyn nodi blaenoriaethau ymchwil yn y dyfodol ar gyfer pobl sy’n byw â chyflyrau hirdymor niferus. Os oes gennych chi ddiddordeb, tarwch olwg ar yr arolwg - a chofiwch rannu’r neges!

Mae dolen i’r arolwg yn y blwch sylwadau isod.

Diolch yn fawr iawn am eich cefnogaeth!

08/06/2026

Good afternoon!

We are delighted to share details of the following event taking place in Cardiff next week:

Advanced Therapies in Rare Disease: An Introduction for patients, families and care givers, on Thursday 18th June from 9am to 1pm.

This is a public engagement event focused on advanced therapies and rare diseases. The event is being led by the rare diseases nurses and is designed to help people learn more about what advanced therapies are, how they are used in practice and what this may mean for those living with rare diseases.

The Eventbrite link for the event can be found below in the comments. Please also see the attached posters for the event with a QR code for ease of signing up.

This event is for those local to the Cardiff area, the event is free and there is lunch afterwards.

04/06/2026

Just a reminder that there's still time to apply for our Communications Coordinator role!

🚨 We’re Hiring! 🚨

Could YOU be FTWW’s next Communications Coordinator?

• Full-time or 0.8 FTE, home-based role in Wales
• Occasional travel required
• Salary: £30,000 plus £312 per year home working payment
• Funded until September 30th 2027 - with potential for extension!

If you’re passionate about community, advocacy, and making a real difference, we’d love to hear from you

Tag someone who might be interested or share to help us spread the word!

Find out more via the link in the comments!

29/05/2026

We're pleased to share this advert for a study at Cardiff University School of Medicine. If you'd like to get involved or find out more, please follow the instructions on the poster!

28/05/2026

📣We’re very excited to publish May’s FTWW newsletter!

This month you can find out more about upcoming projects on endometriosis and PMDD, latest developments for PCOS, get involved in research – and apply to join FTWW’s staff team!

To keep up to date with all FTWW’s activities, please subscribe to our monthly bi-lingual newsletter here.
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📣Rydyn ni’n gyffrous iawn o gyhoeddi cylchlythyr FTWW fis Mai!

Y mis hwn cewch ragor o wybodaeth am brosiectau sydd ar y gweill ar endometriosis a PMDD, datblygiadau diweddaraf ar gyfer PCOS, cymryd rhan mewn ymchwil – a gwneud cais i ymuno â thîm staff FTWW!

I gael y wybodaeth ddiweddaraf am holl weithgareddau FTWW, tanysgrifiwch i'n cylchlythyr dwyieithog misol yma.

26/05/2026

🚨 We’re Hiring! 🚨

Could YOU be FTWW’s next Communications Coordinator?

• Full-time or 0.8 FTE, home-based role in Wales
• Occasional travel required
• Salary: £30,000 plus £312 per year home working payment
• Funded until September 30th 2027 - with potential for extension!

If you’re passionate about community, advocacy, and making a real difference, we’d love to hear from you

Tag someone who might be interested or share to help us spread the word!

Find out more via the link in the comments!

15/05/2026

FTWW welcomes the recently announced change of name of PCOS to PMOS in recognition of it 'not just being about ovarian cysts' but a complex, long-term condition with multiple symptoms and impacts on health. More than a change of name, this will help to drive awareness, understanding, treatment, and support for the millions of women and people assigned female at birth living with it. Please watch this space!

30/04/2026

📣Our latest FTWW Newsletter (April) is out now!

In this edition, you will read about:

*FTWW’s congratulations - and thanks - to the amazing SheUltra Marathon Runners
*A Husting Recap for Making Menstrual Health Matter in Wales
*Celebrating 50 Years of Race Equality First
*ME Voices Being Heard in Wales
*Where to find us in May
*FTWW’s farewell to Dee

Please follow the link in the comments below (or scan the QR code on the poster) to subscribe to our monthly newsletter and keep up to date with our work!