Travelling with the B E A R

10/06/2026

These were our fav things from the day

Quiet hour
Connecting with other families
Space to explore and feel freedom
Allergy safe zone

06/06/2026

03/06/2026

As his parents we know him best and what help he needs. We will always stand by our BEAR and fight for what he deserves.

It has been and I suspect will always be a wild journey.
Some of the things that have been said to us along the way have been just down right bonkers 🤣

It can take a moment to process and then we fight or ignore and carry on the best way we can.

02/06/2026

Yesterday, I got a phone call from the BBC asking if I’d be willing to say a few words on this morning’s show about how we feel about the incredible £10 million prize awarded through .

What an honour.

We’re absolutely thrilled to hear about the potential breakthroughs this funding could bring for allergy research, and so grateful to have been asked to share our perspective.

I’ll always jump at any opportunity to raise awareness of both allergies and the BCL11B genetic condition—two areas that make life unpredictable, challenging, and at times fragile for our little BEAR.

A little disclaimer though... after a week of very little sleep thanks to BEAR battling a chest infection, mixed with my own hormonal chaos and the exhaustion that comes with a half-term holiday centred around Bobby’s needs, I was definitely a bit groggy this morning! 🤣 I am not a morning person 🤣🤣

Also, if you hear me mention a "passport" in the interview, I actually meant a health passport 😅

Every conversation matters. Every bit of awareness helps. 🐻❤️

01/06/2026

7am BBC Radio

#£10millionprize