The Pernicious Anaemia Society

The Pernicious Anaemia Society We are a registered charity that exists to provide information, help and support to sufferers of Pernicious Anaemia (PA), including their families and friends.

We also strive to improve current and future diagnosis and treatment of Pernicious Anaemia.

04/09/2026

Could hypnotherapy offer another tool for managing symptoms?

Join the Pernicious Anaemia Society for an online webinar, The Power of Hypnotherapy in Symptom Management, with Liane Reeves.

Liane is an Adult Allergy Specialist Dietitian with extensive experience helping people manage health conditions through diet. She also holds a Graduate Certificate in Clinical Hypnosis and Related Techniques and provides gut-directed hypnotherapy.

📅 Wednesday, 23 September 2026
🕡 6:30–7:30 p.m. BST
📍 Online via Zoom

Tickets are £5 for PAS members and £15 for non-members.

Learn more and book your place:
https://pernicious-anaemia-society.org/event/the-power-of-hypnotherapy-in-symptom-management-webinar/

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant...
04/09/2026

🩸 Vitamin B12 deficiency isn't just about diet! 🩸 While many associate B12 deficiency with poor nutrition, a significant number of cases are due to non-dietary causes, such as Pernicious Anaemia. This can lead to life-threatening complications if not diagnosed and treated early. Understanding the root cause is crucial.

Join the Pernicious Anaemia Society to support vital research, raise awareness, and ensure that everyone has access to the right information and care.

👉 Head to our website to learn more: https://pernicious-anaemia-society.org/

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!







📊 Your experiences are changing the conversation.Earlier this year, PAS members in England helped us gather vital data o...
03/09/2026

📊 Your experiences are changing the conversation.

Earlier this year, PAS members in England helped us gather vital data on the real-world experience of receiving B12 injection treatment on the NHS.

Here's some of what they told us.

Nearly half reported purchasing additional B12 privately in the last 12 months - because NHS treatment alone wasn't enough to control their symptoms.

Almost a third had their injection frequency reduced or stopped against their wishes or without a proper clinical review.

And 81 respondents said self-administration had never been offered or even discussed by their GP practice - despite evidence suggesting it improves quality of life and reduces pressure on NHS services.

The data also showed something significant: people who self-administered their prescribed injections were more likely to report only a mild impact of their condition on daily life, and less likely to report significant impairment - compared to those receiving injections through their surgery.

This isn't a surprise to anyone in our community. But now we are working on evidence to back it up.

This report is part of what PAS is contributing to the B-12 Alliance campaign - making the case for self-administration access, symptom-led treatment, and consistent care for everyone with Pernicious Anaemia not just in England but globally.

💜 Support the campaign:
🔗 https://bit.ly/4zuX2IZ

🔗 Join PAS and help us keep building this evidence:
pernicious-anaemia-society.org/member

✨ 20 Years of Education, Research & Support. This Year Things Change.

At the Pernicious Anaemia Society, everything we do comes back to one core mission:💛 To improve the lives of people livi...
02/09/2026

At the Pernicious Anaemia Society, everything we do comes back to one core mission:

💛 To improve the lives of people living with Pernicious Anaemia through support, education, research, and advocacy.

We know that PA is so often misunderstood. Many of our members spent years searching for answers, being misdiagnosed, or told they were “fine” when they knew they weren’t.

That’s why this community matters so much.

We’re here to change that story - for everyone.

Through our work, we aim to:
- Raise awareness of PA and the seriousness of B12 deficiency
- Support patients and families navigating symptoms, diagnosis, and treatment
- Challenge outdated thinking in clinical settings and push for better training
- Fund research into the symptoms and impacts that are often overlooked
- Create community so no one feels invisible or alone in their experience

Whether it’s a friendly voice on our helpline, an online support group where people finally feel understood, or a personal story that gives someone hope - PAS exists to connect, empower, and uplift.

We are patients, volunteers, researchers, clinicians, and advocates. And together, we’re building something powerful: a future where everyone with PA is diagnosed sooner, treated properly, and supported fully.

Thank you for being here, for sharing your stories, and for supporting our mission - we couldn’t do it without you.

🌐 Learn more about our work and how to get involved:
https://pernicious-anaemia-society.org/aboutus/

👣 Could your feet be signalling a B12 deficiency?Tingling toes. Burning sensations. Persistent coldness. Numbness that d...
01/09/2026

👣 Could your feet be signalling a B12 deficiency?

Tingling toes. Burning sensations. Persistent coldness. Numbness that doesn't go away. These might seem like minor niggles - but experts say they could be an early warning sign of vitamin B12 deficiency.

"The feet sit at the very end of the body's nerve and blood supply, so they're the first to feel the effects when metabolism or circulation is compromised," says Marion Yau, podiatrist at Harley Medical Foot and Nail Clinic.

Here's why: B12 is essential for producing myelin - the protective coating around your nerve cells. Without enough B12, that coating can break down, disrupting nerve signals and triggering unusual sensations in the feet and toes. B12 deficiency can also reduce the blood cells' ability to carry oxygen - showing up in the feet as colour changes, persistent coldness, and slow-healing wounds.

Because the longest nerves in the body run all the way down to the toes, they're often the first to be affected when B12 is low.

B12 deficiency affects around 1 in 10 people - rising to 1 in 5 adults over 60. And because symptoms develop slowly over several years, millions of people could be living with deficiency without knowing it - risking irreversible nerve damage.

The telltale signs are frequently dismissed as anxiety, ageing, or something else entirely. That's exactly the problem.

If you're experiencing changes in your feet alongside fatigue, brain fog, low mood, or other unexplained symptoms - it's worth asking your GP for a B12 test.

And if you already have Pernicious Anaemia and are noticing these symptoms between injections, that's information worth taking to your next appointment.

🔗 Learn more about PA symptoms and testing:
https://bit.ly/4xkaxcU

💜 PAS members can get support through our helpdesk:
pernicious-anaemia-society.org/member

✨ 20 Years of Education, Research & Support. This Year Things Change.

At PAS, we're always grateful for your generous support and donations, which fuel our mission to raise awareness and sup...
31/08/2026

At PAS, we're always grateful for your generous support and donations, which fuel our mission to raise awareness and support those affected by pernicious anaemia.

While donating directly with Gift Aid is fantastic and greatly appreciated, we're thrilled to introduce another way for you to support us while also getting something back in return!

🌍 We've partnered with http://charitablebookings.com/ , a platform that allows you to select The Pernicious Anaemia Society as your chosen charity when you make your travel and holiday bookings.

By booking through http://charitablebookings.com/ , you'll still enjoy the same great rates and deals offered directly by the companies, but a small percentage of your booking will be donated to PAS! ✈️

So, if you're planning your next getaway or travel adventure, why not check out http://charitablebookings.com/ and nominate The Pernicious Anaemia Society as your charity of choice? It's a simple way to support our cause while booking your well-deserved holiday. 🏖️

Thank you for your continued support!

Support our charity by becoming a member or donating regularly. Follow our page for more insights and useful information about PA!








📢 Happening tomorrow!Our Scotland Online Support Group Meeting takes place tomorrow, 28 August, from 7:00–8:30 p.m. BST ...
27/08/2026

📢 Happening tomorrow!

Our Scotland Online Support Group Meeting takes place tomorrow, 28 August, from 7:00–8:30 p.m. BST via Zoom.

The topic will be “Thoughts on Self-Administration.”

All PAS members are very welcome to attend, regardless of where they live. Register using the link on your membership homepage.

https://pernicious-anaemia-society.org/event/scotland-online-support-group-meeting/

💙 You're in your 40s or 50s. You're exhausted in a way that sleep doesn't fix. Your mood is low. Your brain feels foggy....
27/08/2026

💙 You're in your 40s or 50s. You're exhausted in a way that sleep doesn't fix. Your mood is low. Your brain feels foggy. Your heart races at odd moments. You don't feel like yourself - and you can't quite explain why.

Sound familiar?

For many women, the answer they're given is perimenopause. And it might well be part of the picture. But there's another condition that produces almost identical symptoms - and it's missed far more often than it should be.

Pernicious Anaemia.
The overlap between PA and perimenopause is significant - and genuinely confusing, even for healthcare professionals. Fatigue, brain fog, low mood, poor sleep, palpitations, anxiety, feeling "off." These symptoms belong to both conditions. And because perimenopause is increasingly (and rightly) recognised and discussed, it's often the first - and sometimes only - explanation women are offered.

Many women in our community were given HRT before anyone thought to check their B12. Some are now on both HRT and B12 injections - and only in hindsight can they see which symptoms belonged to which condition, and which were both at once.

Here's the important thing: one doesn't rule out the other.

You can be perimenopausal AND have Pernicious Anaemia. And if your symptoms aren't fully resolved with HRT, or if something still doesn't feel right, it's worth asking your GP to check your B12 alongside your hormone levels.

A B12 test is simple, low-cost, and could change the entire picture.

We'd love to see this conversation reach every woman navigating this - including those inspired by advocates like , whose work on women's health and the menopause has helped so many feel seen and heard. The same visibility is needed for PA.

If any of this resonates, start by asking your GP for a full picture - not just hormones, but B12 too.

🔗 Learn more about testing for PA:
https://pernicious-anaemia-society.org/articles/testing-for-pernicious-anaemia/

💜 PAS members can get support understanding their symptoms and results through our helpdesk:
pernicious-anaemia-society.org/member

✨ 20 Years of Education, Research & Support. This Year Things Change.

26/08/2026

Topic: Thoughts on Self-Administration

PAS support group meetings are an excellent way to meet other members of the society, share experiences, learn of how PA has impacted on their lives and how they have developed coping strategies to deal with the ongoing symptoms in a welcoming and friendly environment.
Our Support Group Coordinator, Karen, will be holding an online Support Group Meeting on the 28th August.
Whilst Karen is based in Scotland, you don’t have to live in that area to attend. It doesn’t matter where you live as this is a Zoom meeting and all members are welcome to attend.
Hope you can make it!
Log in to members home page here:

https://pernicious-anaemia-society.org/event/scotland-online-support-group-meeting/

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