21/08/2026
"The Pulse Oximeter Machine has helped each and every time Marley has had a life-threatening seizure. Although he isn't a fan of the alarm when he wakes up, for us as parents we just love the feeling of security. Even on the good days, we know it's there for us. I couldn't begin to tell you what a life-saver it's been. Thank you so much." Rosie, Mum to Marley who is living with Dravet Syndrome.
Providing peace of mind to parents and carers is made possible through the incredible support of funders Vinehill Trust, The Saturday Hospital Club and The Hedley Foundation, who have all made contributions towards our Seizure Monitor Fund over the past year. We also want to thank everyone who kindly made a donation, helping to fund Seizure Monitors, in the Big Give, Global’s Make Some Noise and NCVO’s match-funding campaign during Small Charity Week in June. Thanks to the wonderful Postcode Lottery players, your donations were doubled through funding awarded by Postcode Places Trust, resulting in a £10,230 funding boost.
Thank you so much for enabling us to provide these essential pieces of equipment to worried and exhausted families. We couldn't do what we do without you.
For more information about our Seizure Monitor Fund, and to apply, visit https://www.dravet.org.uk/apply-for-grants/seizure-monitor-fund/
