Neuroendocrine Cancer UK

19/06/2026

🎉 Fundraiser Friday 🎉

This week we're celebrating some of our fantastic Cakes for a Cause 2026 fundraisers! 🧁💙

From patient support groups and healthcare teams to schools, families and individuals, people across the UK have been baking, fundraising and raising awareness of neuroendocrine cancer one slice at a time.

🧁 Kim & the Sheffield Patient Support Group – £121.25 raised
A huge thank you to Kim and everyone at the Sheffield Patient Support Group who came together to support Cakes for a Cause and help raise awareness of neuroendocrine cancer.

🧁 Frances & Hugh Joicey C of E Primary School – £546.25 raised
Children, families and staff at Hugh Joicey C of E Primary School enjoyed a special Cakes for a Cause gathering, raising an incredible amount to support Neuroendocrine Cancer UK.

🧁 Sian & the Macmillan Neuroendocrine Team – £481.25 raised
Sian and the Macmillan Neuroendocrine Team at Northampton General Hospital hosted a Cakes for a Cause afternoon for local neuroendocrine patients and their families, bringing people together for support, conversation and, of course, cake.

🧁 Michelle – £355.00 raised
Living with neuroendocrine cancer herself, Michelle baked and sold cake boxes to friends, family and work colleagues, raising vital funds and awareness for a cause close to her heart.

💙 Together, our incredible fundraisers have raised more than £3000 through Cakes for a Cause.

🍰 Inspired to get involved? Registration for Cakes for a Cause 2027 is now open! Sign up today and help us raise awareness and vital funds, one bake at a time.

Register here: https://www.tfaforms.com/5180945

18/06/2026

📰 "My cancer was invisible to the doctor."

This year, our Invisible Cancer report received national media coverage, helping to shine a light on the reality of neuroendocrine cancer.

The article highlights the experiences of people like Craig, who spent five years seeking answers before receiving a diagnosis, and Gordon, a GP who initially missed the signs of his own neuroendocrine cancer.

The report found that:
• Diagnosis takes an average of 4.5 years from first symptom
• Almost half of patients are not diagnosed at their first referral
• More than half are diagnosed at an advanced stage

Neuroendocrine cancer is often called an invisible cancer because symptoms can be vague, affect multiple body systems, and are frequently mistaken for other conditions such as IBS, asthma or menopause.

As Professor Martyn Caplin explains:

💬"Smaller volumes of neuroendocrine cancer are generally easier to manage than more advanced disease. Delays increase both the physical and emotional toll on patients and limit clinical options."

➡️ Read the article and learn more about why earlier diagnosis matters:

Neuroendocrine cancer impacts more than 6,000 people a year in England

17/06/2026

"Taekwondo saved my life."

We're incredibly grateful to British Taekwondo for sharing Leanne Armstrong's inspiring story.

In 2019, what seemed like an ordinary training session led to the discovery of Leanne's neuroendocrine cancer. That moment changed her life forever.

Like many people living with neuroendocrine cancer, Leanne faced uncertainty, major treatment decisions and the reality of living with a rare cancer that is often diagnosed late. But with expert care, determination and the support of those around her, she has continued to do what she loves.

Last year, Leanne achieved her 5th Dan and Master status in Taekwondo – a remarkable achievement and a testament to her strength, resilience and dedication.

Her story is a powerful reminder that while a neuroendocrine cancer diagnosis can be life-changing, it does not define a person or their future.

Thank you, Leanne, for continuing to raise awareness and inspire others in our community.

15/06/2026

Support groups and events taking place throughout June and the beginning of July.

Register here: https://www.neuroendocrinecancer.org.uk/events/

15/06/2026

Please continue to share your love and support to Ruth, who is now approaching her 1000th dip!!! ❤

12/06/2026

🎉 Fundraiser Friday 🎉

This week we're celebrating another fantastic group of fundraisers who have taken on marathons, walks and community challenges to support Neuroendocrine Cancer UK.

Whether raising awareness as a healthcare professional, walking in memory of a loved one, or fundraising while living with neuroendocrine cancer themselves, every fundraiser is helping to make a difference.

🏃‍♀️ Kate – Edinburgh Marathon – Over £1,000 raised
Kate took on the Edinburgh Marathon, running in support of a friend living with neuroendocrine cancer. Not only has Kate raised vital funds through her marathon challenge, but as a healthcare professional she continually raises awareness of neuroendocrine cancer amongst her peers, helping to educate others about this often misunderstood disease.

🌉 Steven & Kirsty – Humber Bridge Memory Walk – £755 raised
Family and friends came together to complete a memory walk across the Humber Bridge in honour of Andy, who lived with neuroendocrine cancer for 17 years. The fundraiser celebrated Andy's positivity, determination and commitment to supporting others affected by neuroendocrine cancer.

🥾 Lauren, Lia & Ashley – South Downs Way Challenge – £2,077.50 raised
Lauren and her friends took on the South Downs Way in memory of her dad, Michael, following his battle with Merkel Cell carcinoma. Across two long weekends, they completed the challenge while raising awareness of rare cancers and the importance of research and early diagnosis.

🥾 Chris & Margaret – Glasgow Kiltwalk 2026 – £1,696.55 raised
Living with neuroendocrine cancer himself, Chris took on the Glasgow Kiltwalk alongside Margaret to raise funds and awareness for Neuroendocrine Cancer UK. Completing the challenge in just over four and a half hours, he was overwhelmed by the generosity and support received along the way.