Neuroendocrine Cancer UK

04/09/2026

💙 Fundraiser Friday 💙

As the summer fundraising season begins to wind down, we're celebrating three fantastic fundraisers this week – from walking challenges and half marathons to a very special father-and-son Kiltwalk. 🦋

🥾 Bobby & Aaron – Dundee Kiltwalk | £625 raised

Bobby and his son Aaron took on the Dundee Kiltwalk together in memory of Aaron's grandad, who sadly passed away from neuroendocrine cancer 10 years ago. They had an amazing day together – and even got some sunshine for their challenge! ☀️

🚶 Dylenne – August Walking Challenge | £395 raised

Inspired by her uncle's experience of neuroendocrine cancer, Dylenne challenged herself to walk 60 miles throughout August. She didn't just reach her target – she smashed it, completing an incredible 80.09 miles! 👏

🏃‍♀️ Jess – Two Half Marathons | £1,701.25 raised

Jess took on not one, but two half marathons this year – Hackney in May and Stockholm in August. Despite awful wet conditions in Stockholm, she finished with a new PB and raised an incredible amount to support people affected by neuroendocrine cancer, raise awareness and support research. 💙

✨ What's next? Light Up the Lake 2026

📅 Friday 9 October
⏰ 6pm–8pm
🎟️ Adults £15 – includes entry pack & medal
🎟️ Children £5 – includes medal

💙 Or make a difference every month - you don't have to take on a physical challenge to make a difference. A regular monthly gift, whatever the amount, can help us continue supporting people and families affected by neuroendocrine cancer. 🔗 https://neuroendocrinecanceruk.enthuse.com/ncukdonation #!/

03/09/2026

Starting treatment can bring a mixture of emotions, practical questions, and uncertainty about what lies ahead.

💬 If you have been through treatment for neuroendocrine cancer, what is one piece of advice you would offer someone who is just beginning?

Perhaps it’s something that helped you prepare, manage appointments, ask questions, or feel more supported.

If you feel comfortable, please share your advice in the comments. Your experience could offer reassurance to someone taking their first steps through treatment. ❤️

Every person and every neuroendocrine cancer is different, so treatment plans and experiences can vary. Community advice should never replace guidance from your own specialist healthcare team.

You can find trusted information about neuroendocrine cancer treatments on our website:
https://www.neuroendocrinecancer.org.uk/neuroendocrine-cancer/treatments/

01/09/2026

📰 This week’s news from Neuroendocrine Cancer UK

This week, we’re highlighting three opportunities for our community:

📣 Share your experience
We have launched two anonymous surveys - one for people diagnosed with neuroendocrine cancer and another for family members, friends and caregivers. Your experiences will help shape our future support, research, education, advocacy and policy work.

🏴 Help shape cancer care in Wales
The Welsh Government has opened a call for evidence as it develops a new National Cancer Strategy for Wales. People affected by cancer, healthcare professionals and organisations are invited to contribute their experiences and views.

❤️ New wellbeing pilot programme
We are introducing an eight-week online Solution-Focused Hypnotherapy pilot for people living with neuroendocrine cancer. Places are limited, and eligibility criteria apply. We are also holding an introductory webinar on 17 September.

Read the full stories and find out how to take part on our news page: https://www.neuroendocrinecancer.org.uk/news/

01/09/2026

We have lots of opportunities to connect with the Neuroendocrine Cancer UK community over the next couple of weeks.

Our welcoming in-person support groups will be taking place across England, Scotland and Wales, offering a safe and supportive space for patients, families and carers to meet others who understand.

We’re also delighted to be launching a new support group in Coventry, helping even more people access support closer to home.

Visit our website to find your nearest group and view the full event details:

https://www.neuroendocrinecancer.org.uk/events/

01/09/2026

Evening, team. Just 1 week to go until team member William takes on this years Tour De 4. The Tour de 4 encourages people affected by cancer, whether it's directly or indirectly to raise vital funds for cancer charities across the UK. Everything raised via our link will go directly to the invaluable Neuroendocrine Cancer UK. I appreciate not everyone can given how things are, but a share on this helps too :)

The link to help as always is lingering aboot in the comments. Any amount helps. I have some nice photos to share with you all. I'll do that tomorrow. Much love. Johnnie 🦓

01/09/2026

👏A significant milestone for the neuroendocrine cancer community: Neuroendocrine Cancer UK was involved in setting the top 10 research priorities through the James Lind Alliance (JLA) Priority Setting Partnership.
👉The final top 10 priorities will provide an important roadmap helping to focus future investment on the areas that will make the greatest difference to people affected by neuroendocrine cancer.
✅Find out more: https://incalliance.org/top-10-neuroendocrine-cancer-research-priorities/

28/08/2026

Did you get a place in the 2027 TCS London Marathon? 🎉

Unfortunately, Neuroendocrine Cancer UK wasn’t awarded any charity places for next year’s event – but that doesn’t mean you can’t run for us!

If you’ve been lucky enough to secure your own place through the public ballot, we’d absolutely love you to consider using those 26.2 miles to raise funds and awareness for Neuroendocrine Cancer UK. 🦋

You won’t see us listed as one of the charities when setting up your fundraising page, but you can still choose to support us. Please get in touch and start your London Marathon journey with 📩 [email protected]

28/08/2026

Good luck Liam!! ❤

The Long Way Home – 100km for Eilidh will see Liam Aitchison walk from North Devon to Plymouth this weekend