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Epilepsy can be one of the most frightening and isolating conditions a child can experience.

06/06/2026

“Brain surgery can be a really effective option for some young people.” In this episode of the Let’s Talk About Epilepsy podcast, host Dr Lara Carr, is joined by Professor Helen Cross and Tanisha from the Youth Voice Network.

Together, they explore when surgery might be considered and what the process involves, alongside Tanisha sharing her own journey from diagnosis to becoming seizure free.

Epilepsy is different for everyone. The experiences shared here won’t be the same for everyone, so it’s important to speak to a healthcare professional about what’s right for you and your child.

Watch or listen to the full episode of the Let’s Talk About Epilepsy podcast wherever you get your podcasts, including YouTube, Spotify and Apple Podcasts.

If you’re child is feeling sad, worried or lonely, they can text ‘PURPLE’ to 85258 to reach Shout for free, confidential support.

03/06/2026

Meet Roman. Eight years old, football fan, trampoline lover and living with epilepsy ⚽️

A year ago, Roman's family woke up to find him having a seizure in bed.

Within days, he was diagnosed with focal onset epilepsy after a tonic-clonic seizure. For his parents Gem and Paul, those first weeks were overwhelming, scary, and full of questions.

But as epilepsy entered their lives, Roman just kept going. And watching his energy, bravery and absolute refusal to slow down has made his family incredibly proud 💜

If you're a parent or carer navigating a new diagnosis, or simply looking for a story that reminds you what's possible, Roman's is one worth reading: https://ow.ly/qMHP50Z6cT7

03/06/2026

In this episode of the Let’s Talk About Epilepsy podcast, Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery.

They share when surgery might be considered, what the process involves, and what it can mean for young people and their families.

Epilepsy is different for everyone. Always speak to a healthcare professional for advice that’s right for you.

Watch or listen to the full episode wherever you get your podcasts, including YouTube, Spotify and Apple Podcasts.

If you’re child is feeling sad, worried or lonely, they can text ‘PURPLE’ to 85258 to reach Shout for free, confidential support.

02/06/2026

Exam season is stressful for any young person.

But for those living with epilepsy, it can bring a whole set of extra worries, for them and for you.

A young person in our community reflected on their experience of navigating exams with epilepsy 💜

From the fear of having a seizure mid-exam to simply trying to hold it all together, it's a real story that many families will find familiar.

The great news is, they came out the other side with some really practical tips to share with other young people facing the same thing. Check them out below 👇

If you think your child could do with a little extra support this exam season, we're here to help. Visit the link to find out how our youth support services could make a difference: https://ow.ly/J89I50Z52MJ

29/05/2026

Are exams bringing up worries for your child about all the “what ifs”?

The pressure of exam season can feel overwhelming.

Sometimes, they may not want to share everything they’re feeling, or might find it hard to put it into words.

That’s where Shout can help 💜

Shout is a free, confidential text service where your child can speak to a trained volunteer who will listen and support them through how they’re feeling.

There’s no pressure to have the right words. Just a safe space to talk things through and feel a little steadier.

📲 They can text PURPLE to 85258 to start a conversation

Available 24/7. Even during revision or late at night.

👉 Learn more about Shout: https://ow.ly/7wph50Z11vA

28/05/2026

It’s not always easy for a child living with epilepsy. But our Youth Support team is here for them 💜

We offer free, one-to-one support tailored to your child’s individual needs. Whether they need someone to talk to, support with challenges at school, or help understanding their condition, we’re here for them.

They’ll be matched with a Youth Support Coordinator and can receive a number of sessions depending on what they need.

Referrals are simple and flexible.

You can refer your child, they can refer themselves, or a professional working with them can complete the form.

📲 Find out more and submit a referral here: https://ow.ly/W6T850Z11tK

Alongside one-to-one support, we also offer a range of services including online group sessions, in-person events, and helpful resources on our website.

👉 Explore them all here: https://ow.ly/aEvy50Z11tI

Because no child should have to navigate epilepsy on their own.

28/05/2026

A seizure at work changed Shahleen’s life overnight.

Since her first seizure at 22, Shahleen has faced many challenges in her epilepsy journey, from losing independence to waiting years for specialist support.

She also faced harmful stigma around epilepsy within her community, where misunderstandings about the condition made it harder for her and her family to find support and information.

But instead of staying silent, Shahleen chose to speak up.

By sharing her epilepsy story online, she’s helping other young people feel seen, understood, and encouraged to seek the support they deserve 💜

This is a powerful reminder of how important awareness, representation, and open conversations around epilepsy can be - especially for children and young people who may feel isolated or misunderstood.

👉 Read Shahleen’s full story: https://ow.ly/biU650Z3JZY

27/05/2026

We recently shared how to ask for exam support if your child is living with epilepsy.

But what actually happens once that support is in place? 💭

It’s one thing for your child to be told they’ll receive adjustments. It’s another to understand how it will actually support them in practice.

That’s why we spoke to an exams officer and a parent to explain how schools put exam access arrangements into action

If your child is sitting mock exams right now, this is the time to understand how that support works in real situations, and to make sure it’s right for them ahead of their final exams 💜

Swipe to learn what to expect 👇

📲 For more guidance and support around exams, explore our Study Hub: https://ow.ly/9lzF50Z1utR

26/05/2026

Run through London’s most iconic parks with Royal Parks Half Marathon 🌳🏃

Since 2008, this uniquely picturesque event has taken runners through Hyde Park, Kensington Gardens, St James’s Park and Green Park, right in the heart of the city.

Whether you’re taking on your first half-marathon or working towards a personal goal, every mile you run can help support children and young people living with epilepsy.

Join and you’ll be supported every step of the way - from training guidance to fundraising support, right through to race day.

🗓 Sunday 11 October

👉 Sign up today and make your miles matter: https://ow.ly/XxjF50Z11oR

25/05/2026

Half term can be a much-needed pause during the long exam season 💜

This point in the exam period can be especially challenging. If your child is feeling tired, stressed, or losing motivation, they’re not alone.

In this video, young person Anisa shares a few simple affirmations that can help young people reset and keep going.

Small moments of encouragement, reassurance, and understanding can make a real difference right now for your child. Share these affirmations with them and show you're there for them.

📲 For practical support and guidance on exams and studying, explore our Study Hub: https://ow.ly/BU9I50Z1urM

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St Piers Lane
Lingfield
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Website

https://www.youngepilepsy.org.uk/

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