More than a tremor

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21/01/2026

Animated me said it best 😆 it’s more than a tremor

07/10/2025

3 months later - reflections on My DBS

The Bad Stuff:
😞 I’m the heaviest i’ve ever been
😞 My tennis is not quite right
😞 Bumps in the head
😞 The charging burden
😞 I’m having some Offs
😞 The expectations game

The Good Stuff:
😄 I’m back on the bike
😁 My speech is better
😁 I’m sleeping better
😁 I can put my contact lenses in
😁 I dont have to use a straw
😁 I can read my own handwriting
😁 I’m more productive
😁 I can put on a jacket without help
😁 I can hold a wine glass !
😁 I’ve got my life back (for now)
😁 I’m grateful

30/09/2025

Q & A with Sharon's son, George. Episode 183: Special Guest Kuhan: Highs & LowsKuhan was diagnosed with Parkinson’s in 2013 at the age of 38 and remains dete...

It doesn’t have to define you
13/08/2025

It doesn’t have to define you

Staggered into the neurology hospital last month full of fear, walked out with a skip in my step & renewed hope after 2 ...
22/07/2025

Staggered into the neurology hospital last month full of fear, walked out with a skip in my step & renewed hope after 2 tiny computers were implanted in my chest, wired to 4 electrodes in my brain.. all controlled wirelessly from a phone! listen to the behind the scenes experience🎧👉🏼’DBS Diaries’ 2parkiesinapod.com

To the amazing team at this place who successfully implanted electrodes in my brain connected, to a computer in my chest...
28/06/2025

To the amazing team at this place who successfully implanted electrodes in my brain connected, to a computer in my chest and gave me some respite from my Parkinson's ...thank you for giving us our lives back 🙏🏼🙏🏼🙏🏼💙

24/06/2025

The moment of truth
They said it might be underwhelming but less than 2 days after electrodes were implanted in my brain (deep brain stimulation) it took just 17 mins from switch on to find the right contact points & stimulation level for success! my tremor, slowness and stiffness were all largely gone within seconds from that point, as you’ll see in this video. Things may change, other symptoms & side effects still persist and this is not a cure. But it was the relief I had been so desperately seeking. With 2 electrodes still left to switch on and various tweaks still to come, I finally feel like I have some options 😌 lots of people to thank but for now I’m eternally grateful to the entire NHS team at UCLH for giving me back my life 🙏🏼

Proud to support Cure Parkinson's
12/06/2025

Proud to support Cure Parkinson's

In Parkinson’s there is no black & white
10/04/2025

In Parkinson’s there is no black & white

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