Alex TLC

Alex TLC Alex, The Leukodystrophy Charity, or Alex TLC, provides invaluable support and information to people affected by leukodystrophies and their families.

Established in 2004, Alex, The Leukodystrophy Charity (Alex TLC) was founded by a mother whose sons, Alex and Ayden, had both been diagnosed with leukodystrophy. She recognised the severe lack of information and support available to families in her position and wanted to make sure that no one had to face leukodystrophy alone. Leukodystrophies are rare genetic disorders primarily affecting the whit

e matter of the central nervous system (i.e., the brain or spinal cord). They affect males and females of all ages and backgrounds, most notably children. The majority of leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan. There are over 100 known types of leukodystrophy identified to date, including some so rare they only affect one or two individuals.

Happy Pride Month to all of our LGBTQ+ community members! 🌈
01/06/2026

Happy Pride Month to all of our LGBTQ+ community members! 🌈

Each month we will share information about a different type of leukodystrophy to help raise awareness. This month we are...
31/05/2026

Each month we will share information about a different type of leukodystrophy to help raise awareness. This month we are sharing about CADASIL 💙

To find out more about CADASIL, visit our condition page: https://alextlc.org/condition/cerebral-autosomal-dominant-arteriopathy-with-subcortical-infarcts-and-leukoencephalopathy-cadasil/

cureCADASIL have useful information and patient resources to access: https://curecadasil.org/

We are here to support individuals and families affected by all types of leukodystrophy, get in touch by emailing [email protected] 📩

Today marks the final day of Have you read our Supporter Stories? These inspiring stories are told by some of the incr...
31/05/2026

Today marks the final day of

Have you read our Supporter Stories? These inspiring stories are told by some of the incredible people who have fundraised for us, in their own words.💙

Discover the amazing people making a difference:

https://alextlc.org/fundraise/supporter-stories/

Help raise awareness of leukodystrophy by sharing your journey 💙Our life with leukodystrophy campaign shares real life s...
30/05/2026

Help raise awareness of leukodystrophy by sharing your journey 💙

Our life with leukodystrophy campaign shares real life stories of leukodystrophy. The aim is to shine a light on the far-reaching impact of leukodystrophy and the challenges faced every day by our community members.

To share your leukodystrophy journey, complete our online form: https://alextlc.org/our-community/share-your-leukodystrophy-journey/

30/05/2026

You can help people living with leukodystrophy find connection, support, and hope at our Community Weekends 💙

Your support is crucial to ensure we can continue to host these vital events; please donate if you can, or share our posts to spread the word.

https://www.justgiving.com/campaign/alextlc-cw

29/05/2026

Want to raise awareness of leukodystrophy or spark conversations? Our Teemill shop has a large selection of designs, now available in dark and light colours. What's more, shipping is FREE this weekend, no code needed!

https://alex-tlc.teemill.com/

If you've purchased any of our awareness merchandise, we'd love to use your photos in our posts, just email: [email protected]

29/05/2026

It's

This year's theme from Addison's Disease Self-Help Group is 'Turn Awareness into Action'. We've created this short video to explain the vital link between Addison's Disease and adrenoleukodystrophy (ALD). Please share to spread the word!

More information can be found on our website: https://alextlc.org/condition/addisons-disease

Our May News Round-Up is out today 📩 This month we will be sharing about a job opportunity within the charity, upcoming...
28/05/2026

Our May News Round-Up is out today 📩

This month we will be sharing about a job opportunity within the charity, upcoming online community meetings, the devastating flood at one of our charity shops and ways you can get involved 💙

To join our mailing list: https://alextlc.org/newsletter-sign-up/

Please join us in saying a heartfelt thank you to Chloe and her family, who raised an incredible £3565 for Alex TLC in m...
27/05/2026

Please join us in saying a heartfelt thank you to Chloe and her family, who raised an incredible £3565 for Alex TLC in memory of her dad, Mark.

Thank you 💙

Address

45 Peckham High Street
London
SE155EB

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 9am - 6pm
Sunday 9am - 6pm

Telephone

+442077014388

Website

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