Alex TLC

Alex TLC Alex, The Leukodystrophy Charity, or Alex TLC, provides invaluable support and information to people affected by leukodystrophies and their families.

Established in 2004, Alex, The Leukodystrophy Charity (Alex TLC) was founded by a mother whose sons, Alex and Ayden, had both been diagnosed with leukodystrophy. She recognised the severe lack of information and support available to families in her position and wanted to make sure that no one had to face leukodystrophy alone. Leukodystrophies are rare genetic disorders primarily affecting the whit

e matter of the central nervous system (i.e., the brain or spinal cord). They affect males and females of all ages and backgrounds, most notably children. The majority of leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In many cases, this sadly means a reduced or limited lifespan. There are over 100 known types of leukodystrophy identified to date, including some so rare they only affect one or two individuals.

Do you have shares which are too small to sell? Turn them into something meaningful and help support our vital work. Sha...
23/06/2026

Do you have shares which are too small to sell? Turn them into something meaningful and help support our vital work.

ShareGift specialise in accepting small shareholdings that would cost more to sell than they are worth, generating substantial funding for charities. ShareGift also accept larger donations of shares.

Simply mention Alex TLC when you make your gift 💙

Find out more: https://alextlc.org/donate/ways-you-can-donate/sharegift/

23/06/2026

It's

This week, we're sharing the voices of people supported by Alex TLC 💙

Alfie's mum says:

"Alex TLC have given us a family, understanding and acceptance. They have been our voice when we were not heard, celebrated our triumphs, and consoled us through the tears."

Stories like Alfie's remind us why small charities make such a big difference every day.

Planning on grabbing a bargain during the Amazon Prime Big Deal Days? Don't forget to use easyfundraising to make a free...
22/06/2026

Planning on grabbing a bargain during the Amazon Prime Big Deal Days? Don't forget to use easyfundraising to make a free donation to Alex TLC.

Easyfundraising partners with over 8,000 brands that will donate part of what you spend to a cause of your choice at no extra cost to you. If you've not already signed up, it couldn't be easier, just click the link below.

https://www.easyfundraising.org.uk/causes/alextlc/

22/06/2026

Today marks the start of .

For people affected by leukodystrophy, finding someone who truly understands can make all the difference. This video features a quote from our staff member, Fiona, whose family received support from Alex TLC after her mum was diagnosed with an adult-onset leukodystrophy.

Alongside Fiona's words are photos of some of the incredible people who make up our community. Their stories remind us why small charities matter and why nobody should face leukodystrophy alone.

Big congratulations to Hack, who won £197 in our June 50/50 Cash Draw 💰“"We didn’t know about this rare disease until se...
21/06/2026

Big congratulations to Hack, who won £197 in our June 50/50 Cash Draw 💰

“"We didn’t know about this rare disease until seeing our friends dealing with it which made us realise how awful it is. The world still has very limited expertise and knowledge about it. I think if we come together and show our support we can help many people with the condition around the world.”

Sign up now to avoid missing out on July's draw!

https://alextlc.org/donate/5050-cash-draw/

Meet the NHS England Inherited White Matter Disorders (IWMD) team 👩‍⚕️👨‍⚕️Shagufta Khan is a Senior Genetic Counsellor a...
21/06/2026

Meet the NHS England Inherited White Matter Disorders (IWMD) team 👩‍⚕️👨‍⚕️

Shagufta Khan is a Senior Genetic Counsellor at Birmingham Women’s and Children’s Hospital. Having worked within the Clinical Genetics Department for over 20 years and extensively counselled families with rare metabolic and neurometabolic diseases 🧬

To find out more about Shagufta Khan and the rest of the team: https://alextlc.org/nhs-england-iwmd-leukodystrophy-professionals/

Address

45 Peckham High Street
London
SE155EB

Opening Hours

Monday 9am - 6pm
Tuesday 9am - 6pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 6pm
Saturday 9am - 6pm
Sunday 9am - 6pm

Telephone

+442077014388

Website

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