05/06/2026
I was at a cardiology appointment with my mum today.
Not working. Just being a daughter.
The nurse picked up that I knew the lingo and asked what I do. I explained. Mentioned PANS and PANDAS.
She stopped and said “I’ve heard of that. Actually, I have a friend whose child changed overnight. Completely different child. No one could explain it.”
We talked about the Stanford and Columbia research, and the work we have planned ourselves.
At the end she said she was so glad she had met me - and that she wanted to mention it to her paediatric colleagues and hoped I might come and do a talk for them.
I was not expecting that today.
This is why awareness matters. Not just in the clinics treating these children. Everywhere. In cardiology departments. In GP waiting rooms. In school staffrooms.
This is how change happens - one unexpected conversation at a time.
If you’re a healthcare professional who wants to know more, my DMs are open.