TS 2000 study

19/08/2024

The TS 2000 Team are still recruiting for our smartphone app study, looking to track the feelings and symptoms of young adults with TSC! 📱📢

This will help us find new ways to manage and treat TSC!🌟

To take part, follow the link on our website: http://ts2000study.co.uk/take-part

25/07/2024

Here at the TS 2000 Team, we are interested in working with young adults with TSC to see whether our app is effective in capturing and tracking the difficulties they may face. Want to trial it out for us? Visit our website to get involved!☄️📲 https://www.ts2000study.co.uk/news

11/07/2024

Exciting updates from the TS 2000 Team! Read all about it in our Summer Newsletter 2024 on our website: https://ts2000study.co.uk/news 📰

Want to get involved in TSC research? We are still recruiting for our smartphone feasibility study! We hope to hear from you! 📲💫Click the link to register your interest: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.

11/07/2024

Just over a month ago our PhD researcher Kate attended the
Tuberous Sclerosis Association's Big Day 2024! At this amazing event, bringing together the TSC community, Kate got to present our current work on how smartphones could potentially help young adults with TSC track their everyday life!

What an amazing day it was to see what initiatives are currently happening to support and advocate for those with TSC!🌟💚

07/06/2024

Want to join our feasibility study in assessing the use of smartphones in young adults with Tuberous Sclerosis Complex?📲📶

Click the following link to register your interest:
https://t.co/iDfz6pnl2L

03/06/2024

We are still recruiting for our current smartphone study! If you believe you meet and our criteria and are interested in joining our study click the following link - https://t.co/iDfz6pnl2L. 💫

Big news from the TS 2000 Team! 🌟We are recruiting for the next phase of our study!🎉

We will be testing out a new smartphone app that can help track the day-to-day feelings and symptoms of young adults with Tuberous Sclerosis Complex.📲🧠

Want to take part? Take a look at our advert to get all the information you need and then register your interest by clicking this link: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

We can't wait to hear from you😃

23/05/2024

We are recruiting for the next phase of our study! 💥

Are you a young adult with TSC who currently uses a smartphone? We want to hear from you! We want to find out how an app could potentially help young adults with TSC track their everyday feelings and symptoms.

You can register your interest for our study via this link - https://t.co/iDfz6pnl2L

16/05/2024

At the big day this year, Kate who is leading phase 4 of the TS 2000 Study will be discussing how useful smartphone apps could potentially be for supporting young adults with TSC. She will also be talking about our new feasibility study, where we are looking for young adults with TSC to trial a smartphone app for us! 📱🧠

If you think you would be interested in this study please check you are eligible via our website - https://www.ts2000study.co.uk/take-part

You can also register your interest for our study via this link - https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

15/05/2024

Today the 15th of May marks the Global Awareness day of TSC! 🌎💚The TSC community are coming together to raise awareness of TSC and advocate for it's support and treatment. Join us in sharing your experiences and knowledge of TSC!

02/05/2024

Big news from the TS 2000 Team! 🌟We are recruiting for the next phase of our study!🎉

We will be testing out a new smartphone app that can help track the day-to-day feelings and symptoms of young adults with Tuberous Sclerosis Complex.📲🧠

Want to take part? Take a look at our advert to get all the information you need and then register your interest by clicking this link: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

We can't wait to hear from you😃

26/03/2024

Today the TS 2000 Team are showing their support for 2024, 💜 which aims to raise awareness of the impact of epilepsy. Around 8 out of 10 people with TSC also have epilepsy and it is one of the first signs in a TSC diagnosis, meaning its early recognition and treatment is vital. For more details on how best to support someone during a seizure visit https://www.nhs.uk/conditions/what-to-do-if-someone-has-a-seizure-fit/.

22/03/2024

This week marks Neurodiversity Celebration Week 2024! 🥳

We are proud to support this initiative which aims to both celebrate neurodiversities and de-bunk the misconceptions and stereotypes associated with them. Around 1 in 2 people with TSC are neurodivergent, so join us this week in celebrating our unique differences!

Check out the official website below to see what important events have been happening during Neurodiversity celebration week!🎉

https://www.neurodiversityweek.com/introduction