26/05/2026
LUPUS AWARENESS MONTH
" THIS BODY IS NOT WHO WE ARE "
Todays spotlight 💡SEAL Henry Olusegun Olumide Adeola Samuel , is an english singer, songwriter, and record producer.
SEAL has been the recipient of three Brit Awards, four Grammy Awards, MTV Video Music Award, with more than 20 million albums or singles sold.
SEAL was diagnosed with Discoid lupus erythematosus (DLE), which causes coin like scarring of the skin at 21 years of age.
SEAL has stated in many interviews that lupus had a significant on teenage years and early twenties. As Lupus caused hair loss and scarring on his face, significant impact on confidence and required steriod treatment to manage symptoms.
DLE commonly causes sores on the face and scalp but can affect skin anywhere on the body.
Receiving a chronic illness disagnosis in your twenties ( or any age) can be major shock, abruptly changing your plans, projections, aspirations, sense of self and expectations.
MY ADVICE FOR THOSE WITH A NEW CHRONIC ILLNESS DIAGNOSIS :
Give yourself permission to grieve your past life
Remember that it is normal to feel angry or distressed.
Remember that finding the diagnosis and treatment options is step one.
Focus on the things you can do or things you need, to make coping easier
Start to explore new and ongoing ways to reclaim your confidence
Where possible channelling adversity
This is the most important allow yourself to feel your emotions
Remember your body is not who you are, who you are is deeper than that
If you have energy left over ( remember this step is optional) embrace advocacy and support
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