Brain Cancer Justice

22/06/2026

Two Witney constituents, Sarah Bainbridge and Stevie Billcliffe, shared the heartbreaking reality of brain cancer and what it means for the families left to live through it.

Sarah, co-founder of Brain Cancer Justice, lost her daughter Jess to glioblastoma. Jess was just 36 and the mother of three young children, including one-year-old twins.

Speaking about why Brain Cancer Justice exists, Sarah said:

“We are driven by passion, by anger that things haven’t changed.”

She went on to explain one of BCJ’s key asks:

“We want somebody to represent brain cancer – a national lead who stays with this when governments change. Every time the Government changes, you start this all over again, and patients don’t have that luxury of time.”

Stevie Billcliffe, who lost her father in May, courageously shared her thoughts and the reality faced by families watching someone they love slip away:

“Every stage you go through, you lose more and more of the person you love. You watch every ounce of spirit drain from them, even though they are fighting to carry on.”

Stevie also challenged the idea that glioblastoma is rare:

“To be told it is rare knocks me for six, because my friend in the village next door has exactly the same diagnosis.”

Brain Cancer Justice is powered by patients, families and loved ones who know this reality all too well.

The Government has listened. Now it must deliver.


Sarah Bainbridge Stevie French Charlie Maynard MP for Witney

21/06/2026

Chris is riding his bike back home to Brighton today - 50 miles! His GBM is coming with him. Seriously impressive. 🚴

Why is he doing this? Because our current health system is so dire - there is no access ⛔️ to new GBM treatments here in the UK that can help him - consequently he is regularly travelling to Germany🇩🇪 to access IOZK - a treatment that could extend his life. Today he is riding his bike 🚴 with his team to raise funds to help him continue to access IOZK.

This is just one example of many 🇬🇧UK patients heading to Germany.

Fellow GBM, Mark Suckling, here in the UK was told by his oncology team there was nothing further they could do. Chris helped him to find treatment.

Patients are having to look elsewhere to try and extend their lives. Thousands upon thousands of £s are heading overseas with them. 💷

The Government needs to recognise this and make the cognitive decision to enable greater access to treatment and trials here in the UK. Remove the red tape. ❌🥊

For patients the choice is horrendous: have no further medicine and accept death OR spend thousands of £s - if you have access to it - to head abroad to extend your limited life. 🤷

Better outcomes are possible but we need to see our system dramatically improve and we need far greater financial support. 📈

To find out more about Chris’s run head to his page: Chris Rigg

17/06/2026

It was encouraging to see so many MPs share the challenges facing brain cancer patients. Thank you Monica Harding MP for Esher & Walton for raising the issues facing Pip but also the wider community.

17/06/2026

This is the approach you want from your MP… so that the Government recognises the urgency, the injustice and delivers the changes that are so desperately needed.

Watch this in full!

Lee Barron MP rightly highlights:

“This is the start, not the end.

12 years of broken promises must end.

The issue is delivery and policy, not necessarily legislation.

Political pressure must continue after the debate.

The Power lies in patient and family stories.

Government must finally deliver on promises already made.”

We cannot thank you enough Lee Barron - Proud Member of Parliament for Corby & East Northants - Max and Jackie Hall for your groundbreaking action.

We fully support you, Jackie and Max, and we look forward to working together Lee 🫂🙏💪

17/06/2026

In case you missed it… here are the details:

Parliament debated the petition you signed – “Invest in brain cancer and give rights – turn terminal into treatable”

Watch the debate: https://www.youtube.com/watch?v=XSYeMnixS1E

Read the transcript: https://hansard.parliament.uk/commons/2026-06-15/debates/EDB04B04-7B7A-428F-A73C-74AC24F23ADD/BrainCancer

Read the research: https://commonslibrary.parliament.uk/research-briefings/cbp-10486/

The petition: https://petition.parliament.uk/petitions/738881

16/06/2026

15/06/2026

We won’t stop until we see delivery. But step one has been completed… the petition debate. 👍

MPs spoke compassionately about brain cancer, raised the challenges but also provided clear instructions around next steps. ⏩

We now need the Government to act and deliver.

We are grateful to all of you who got in touch with your MP, shared your story and engaged them with the greater needs for brain cancer patients. Your action has led to more voices being heard. 👏

But we won’t stop, there is so much more that needs to be done to achieve JUSTICE! 🧠⚖️🔬🧬

15/06/2026

Yet again the Government response is 🗑️

The Department of Health and Social Care said it is "establishing a national Brain Tumour Research Consortium" and announced a £13.7m investment to support groundbreaking research, external to develop novel treatments.

What the DHSC don’t say in their response in this article is:
1. £13.7 million is part of the money promised in 2018 - it’s is ‘old money’
2. that this £13.7 million is for infrastructure - Not funding for direct research projects

The Government also refer to their goal:
“…to reduce the number of lives lost to cancer over the next ten years, including for brain cancer"

Why is the biggest cancer killer of children and under 40 year olds not seen as URGENT and a priority? A further decade of failure is incomprehensible.

More than 100,000 people signed an e-petition for more research, forcing it to be discussed in Parliament.

15/06/2026

It is ASTOUNDING that these words were shared over a decade ago!

Accurate, thoughtful and passionate words from former MP, Helen Jones, highlighted the challenges facing the brain cancer community in 2016. But shockingly the same problems still exist today:

“Real lives, real people, real families affected by this, and they are let down at almost every stage of the process… this system is underfunded and not properly structured and has been so for years.”

“There is a correlation between the amount of money spent and survival rates… but survival rates have only gone up by 7.5% between 1970 and 2015. Overall in cancer they have doubled.”

“Creating a positive research environment, with an emphasis on increasing funding, will not only keep our scientists in this country, but would attract scientists from elsewhere in the world.”

The petition in 2016, due to the hard work of Maria and the Realf family, has seen governments say all the rights words but fail to deliver.

Today we need to see this Government standup, listen and deliver. We cannot go on for another decade under this horrendous landscape. We URGENTLY need to turn TERMINAL into TREATABLE.



Sharon Hodgson James Murray Department of Health and Social Care - DHSC

14/06/2026

For 24 hours please make this your profile pic! Help us make Facebook inundated with the Brain Cancer Justice flower - we’re fighting for justice on Monday - please support us.