Action Kidney Cancer

29/05/2026

We are pleased to announce the launch of the new Cancer52 patient survey on Monday 1st June. Cancer52 is a charity and an alliance of over 100 patient groups and charities that represent and support people with rare and less common cancers.

The survey will help us to strengthen the voices of people affected by rare and less common cancers. Through the survey, we hope to gather insights into patients’ experiences, challenges, and priorities across the cancer journey, helping to inform future advocacy work.

We will use the findings of this survey in our work to influence Government and NHS policy to improve diagnosis, access to treatments, and quality of life for people with rare and less common cancers.

Please find out how to contribute to this survey by visiting our website here:

We are pleased to announce the launch of the new Cancer52 patient survey on Monday 1st June. Cancer52 is a charity and an alliance of over 100 patient groups and charities that represent and support people with rare and less common cancers. By rare and less common, we mean all cancers other than the...

28/05/2026

Please join us at the IKCC World Kidney Cancer Symposium on the 18th June at 1.00pmm BST.
It could not be easier to register, simply follow the link below:
https://actionkidneycancer.org/get-involved/world-kidney-cancer-day-2026/

21/05/2026

We are really delighted that friends Karolina and Karmen will run the Edinburgh half marathon 2026 for us and to raise awareness of kidney cancer on May 24th, they are joining us from sweden.
The friends commented ' Every mile we run is for hope, strength, and support for those going through treatment and recovery.
Together, we can remind every kidney cancer patient that they are not running this race alone. This is more than just a race.'

Please read their story and support their efforts:

https://www.gofundme.com/f/action-kidney-cancer

We will run the Edinburgh half marathon 2026 for the people fighting kidney cancer! Every mile we ru… Karmen Kodia needs your support for Action Kidney Cancer

21/05/2026

We are delighted that Aoife Murray is running in The Edinburgh Marathon on Sunday the 24th May.
Aoife set her self the challenge of two marathons this year, she completed the London Marathon earlier this month, amazing.
Please take the time to read why Aoife set herself this gruelling challenge and you may wish to donate to her fundraising by following the link below:

We will be thinking of you on Sunday and wish you a great race.

https://www.justgiving.com/fundraising/Aoife-Murray2026?utm_medium=FR&utm_source=CL&utm_campaign=021

21/05/2026

We are absolutely delighted to have four runners in this years Edinburgh Marathon on Sunday the 24th May 2026.

Cara Hope is doing the double, she ran in the London Marathon earlier this month for us and to raise awareness of kidney cancer in memory of her dad David who passed away 10 years ago.

Please take the time to read more about Cara and and why she has set herself this monstrous challenge.

Good luck Cara, we wish all the best on Sunday.

https://www.justgiving.com/team/cara-hope-2026

20/05/2026

Please save the date of 18th June 2026 for IKCC World Kidney Cancer.
This years theme is 'Kidney Cancer and Emotional Wellbeing' the theme was identified in The IKCC 2025 Global Patient Survey, which found that 85% of kidney cancer patients faced challenges related to emotional wellbeing.
In the next few weeks we will be sharing with how to be involved on the day. Please register to join the free webinar on the day, please create your twibbon and share on your socials and there is a document you can download to check your emotional wellbeing.

To find out more please follow the link below:

https://actionkidneycancer.org/get-involved/world-kidney-cancer-day-2026/

19/05/2026

Long-term results from two studies (FASTRACK and FASTRACK II) suggest that a treatment called SABR, a highly targeted form of radiotherapy, may be a good treatment option for some people with kidney cancer who cannot have surgery safely.

Read more on our website here:

Long-term results from two studies (FASTRACK and FASTRACK II) suggest that a treatment called SABR, a highly targeted form of radiotherapy, may be a good treatment option for some people with kidney cancer who cannot have surgery safely. Kidney cancer is often treated with surgery, but some patients...

18/05/2026

We are delighted to have been invited to join the Uro Oncology Nurse Traing Day in Sheffield today. This is a great way for us to meet some of the nurses who treat kidney cancer patients in Sheffield and the surrounding areas.
Today's event has over 20 nurses in attendance, we have been sharing with them the services we provide for patients and how we support nurses with our Renal Oncology Nurse Network.

12/05/2026

A small early study suggests a new immunotherapy may help some cancers that no longer respond to standard treatment, especially a common type of kidney cancer called clear cell renal cell carcinoma (RCC). The results were very encouraging in this population of patients. All the patients in the study had been heavily pretreated. They all had a number of different treatments, in some cases three, four, or five different types of medicine and their cancer had progressed through each of them.

Read more on our website here:

A small early study suggests a new immunotherapy may help some cancers that no longer respond to standard treatment, especially a common type of kidney cancer called clear cell renal cell carcinoma (RCC). In the study, researchers tested the treatment in people with several cancers. In some patients...

11/05/2026

Steve Pointon has just added a new podcast to his Living With and Beyond Cancer podcast. In this episode he talks with Richard Barker about his journey with kidney cancer, including his experience as a caregiver, post-operative recovery, and life changes. Richard shares his challenges, coping mechanisms, and advocacy for cancer patients, along with his plans for life after cancer.

Please take the time to listen by following the link below:
https://actionkidneycancer.org/help-support/patient-videos-and-podcasts/