Heart Valve Voice

Heart Valve Voice Our mission is to improve the diagnosis, treatment & management of heart valve disease by raising awareness and providing support. www.heartvalvevoice.com

Heart valve disease is a common and serious but highly treatable condition which impacts upon more than one million people over the age of 65 in the UK. The UK boasts many world-renowned experts in heart valve disease, but patients do not always get the treatment that they deserve. This may be caused by low public awareness of the symptoms of heart valve disease, meaning people sometimes assume th

at their symptoms are simply due to getting older. It may also be because GPs do not have sufficient consultation time to fully explore patient symptoms. Or it could be that in the UK heart valve disease is not being treated with the priority it deserves. Heart Valve Voice is an advocacy group formed by a partnership between patients and doctors with the aim of taking on the challenges surrounding heart valve disease diagnosis and treatment. We aim to act as a source of information and be a voice for those who suffer from heart valve disease. Since being founded in 2013, we have succeeded in putting heart valve disease on the agenda for patients, healthcare providers and national policy makers. By working for you and with you, we can transform the diagnosis, referral and treatment of heart valve disease in the UK and bring us in line with other European countries. To explore our calls to action, please, visit our website: www.heartvalvevoice.com

We are delighted to share that we have now raised £3,456 towards the Brenda Walker Challenge.If every pound raised was r...
04/06/2026

We are delighted to share that we have now raised £3,456 towards the Brenda Walker Challenge.

If every pound raised was represented by a £1 coin laid flat edge-to-edge, we would have created a line stretching more than 80 metres – that’s almost the length of a football pitch or 16 double-decker buses parked end to end.

If you would like to take part in this wonderful memorial of Brenda, who was committed to raising awareness of heart valve disease, then please visit: https://heartvalvevoice.com/the-brenda-walker-challenge/

Today is World Bicycle day, so to mark this special day, why not join our newly launched Heart Valve Voice Cycling ClubT...
03/06/2026

Today is World Bicycle day, so to mark this special day, why not join our newly launched Heart Valve Voice Cycling Club

This is a very inclusive, free club that welcomes cyclists of all ability and ambition. It doesn’t matter if it’s a bigger challenge or a weekly ride to the shops. every mile will count.

The club is about encouraging its members to keep riding, promote how cycling support healthy hearts, and raise more awareness of heart valve disease and the importance of early diagnosis.

If you want to get on board, you can join the club via Strava on this link:

https://strava.app.link/hV6MP6dnE3b

We will be launching new fund raising events over the coming months and we are taking on the London to Brighton bike ride on the 13th September.

See you on the road soon!

Heart Valve Voice has arrived at the British Cardiovascular Society Conference in Manchester.With top-rated content, dir...
01/06/2026

Heart Valve Voice has arrived at the British Cardiovascular Society Conference in Manchester.

With top-rated content, direct access to key decision-makers, and strong delegate attendance this is an important place for HVV to be. It attracts over 2,400 cardiovascular healthcare professionals and HVV is there to ensure that patient voices remain central to discussions.

If you’re attending, we’d love to connect and discuss how we can work together to improve care for patients.

To learn more about the event click here: https://heartvalvevoice.com/british-cardiovascular-society-conference/

What an amazing awareness-raising blazing ride of glory that was! A fantastic thank you to our two two-wheeled heroes Wi...
28/05/2026

What an amazing awareness-raising blazing ride of glory that was! A fantastic thank you to our two two-wheeled heroes Wil and Phill.

They had sunshine, they had rain, and they reached Paris to be met by a staunch group of heart-disease survivors.

This is what we do, we bridge that space between the patient and clinician so the patient voice is HEARD and however long and hard the journey is we get there.

Read Wil’s thoughts about the ride here: https://heartvalvevoice.com/paris-ride-we-made-it/

After 250 miles from Brighton to Paris, I can honestly say this has been one of the most rewarding and emotional things I’ve ever done. What made the finish line so special wasn’t simply reaching Paris, it was seeing the patients waiting for us at the end. Patients who have experienced heart val...

If you have a heart condition it’s really important to know whether you can drive or not, and the DVLA has recently rele...
27/05/2026

If you have a heart condition it’s really important to know whether you can drive or not, and the DVLA has recently released new guidelines surrounding aortic stenosis, and it’s pretty good news!

Go and check out more details on our website: https://heartvalvevoice.com/dvla-fitness-to-drive/



New Guidance for Heart Valve Disease The DVLA has recently published updated guidance on assessing fitness to drive, introducing important changes for patients living with heart valve disease and the healthcare professionals who support them. Key Update: Aortic Stenosis and Driving One of the most s...

20/05/2026

250km from Brighton to Paris completed for .

What started as a challenge to raise awareness of heart valve disease became something much bigger — a chance to share patient stories, highlight the importance of early detection and timely treatment, and ensure patient voices were heard at .

We’ve met incredible people along the way, received amazing support from patients, clinicians, friends and family, and been reminded constantly why this work matters so much.

A huge thank you to everyone who donated, supported, encouraged, shared posts and followed the journey. It genuinely meant the world.

Now for a short rest… before someone inevitably asks “what’s the next challenge?

19/05/2026

Day four! We have arrived in the outskirts of Paris!

We covered about 50 miles from Gisors to Maisons Laffitte, another day of all kinds of weather and terrain, but we pushed through and made it!

Thanks again for all the messages of support, if you'd like to support us further head to this link: https://heartvalvevoice.com/patient-community-support-hvvparis26/

18/05/2026

Day three! Bit of a different one today! 🌧️

We covered about 60 miles from Neufchâtel-en-bray to Gisors, met some of the locals and managed to navigate some heavy rain.

Thanks again for all the messages of support, if you'd like to support us further head to this link: https://heartvalvevoice.com/patient-community-support-hvvparis26/

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Royce Road
Manchester
M155BJ

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