Heart Valve Voice

Heart Valve Voice Our mission is to improve the diagnosis, treatment & management of heart valve disease by raising awareness and providing support. www.heartvalvevoice.com

Heart valve disease is a common and serious but highly treatable condition which impacts upon more than one million people over the age of 65 in the UK. The UK boasts many world-renowned experts in heart valve disease, but patients do not always get the treatment that they deserve. This may be caused by low public awareness of the symptoms of heart valve disease, meaning people sometimes assume th

at their symptoms are simply due to getting older. It may also be because GPs do not have sufficient consultation time to fully explore patient symptoms. Or it could be that in the UK heart valve disease is not being treated with the priority it deserves. Heart Valve Voice is an advocacy group formed by a partnership between patients and doctors with the aim of taking on the challenges surrounding heart valve disease diagnosis and treatment. We aim to act as a source of information and be a voice for those who suffer from heart valve disease. Since being founded in 2013, we have succeeded in putting heart valve disease on the agenda for patients, healthcare providers and national policy makers. By working for you and with you, we can transform the diagnosis, referral and treatment of heart valve disease in the UK and bring us in line with other European countries. To explore our calls to action, please, visit our website: www.heartvalvevoice.com

This September, consultant surgeon and experienced long-distance runner Muntzer Mughal is taking on the 190-mile Coast t...
03/09/2026

This September, consultant surgeon and experienced long-distance runner Muntzer Mughal is taking on the 190-mile Coast to Coast walk in memory of his dear friend Colin, while raising awareness and funds for Heart Valve Voice.

Muntzer and Colin had been friends for 30 years and had planned to complete the challenge together. Sadly, Colin passed away unexpectedly in June following a short illness.
Colin underwent a successful heart valve replacement 11 years ago and went on to enjoy many more years of good health — a powerful reminder of the difference timely diagnosis and successful heart valve treatment can make.

On 4 September, Muntzer will set off from St Bees, carrying two pebbles from the Irish Sea — one for himself and one for Colin. After 12 days and 190 miles, he’ll place them in the North Sea at Robin Hood’s Bay, where he plans to finish during Heart Valve Disease Awareness Week. For the final mile, Muntzer will be joined by his wife, Shameela, and Colin’s widow, Themis, bringing this incredibly personal journey to a fitting close.

Support Muntzer’s Coast to Coast challenge and help us continue raising awareness of heart valve disease here: https://heartvalvevoice.com/muntzer-mughals-fundraiser/

Last weekend our Exec Director Wil attended  the European Society of Cardiology Congress in Munich. This not only allows...
02/09/2026

Last weekend our Exec Director Wil attended the European Society of Cardiology Congress in Munich.

This not only allows HVV to stay up to date with innovation in the field of valve disease, but also is an opportunity to build relationships with those at the forefront of research and services providers, ensuring the patient voice is always heard.

To read more about the conference please visit:

https://heartvalvevoice.com/heart-valve-voice-at-esc-congress/

David Chambers had no family history of heart disease, and no major symptoms, so when they discovered a leaking mitral v...
31/08/2026

David Chambers had no family history of heart disease, and no major symptoms, so when they discovered a leaking mitral valve, he needed urgent treatment. He was lucky to have the choice of a transcatheter repair to the valve which made recovery much quicker for him.

Read his full story here: https://heartvalvevoice.com/david-chambers-mitral-valve-teer-story/

I moved down to Birmingham from Edinburgh, with my wife, in my late twenties, and followed a career advising companies on pension schemes for their employees. We have remained in the West Midlands ever since, raising our two daughters, and now watching our five grandchildren grow and develop. I was....

You still have time until Monday to sign up for the iconic London to Brighton Cycle Ride and join the Heart Valve Voice ...
27/08/2026

You still have time until Monday to sign up for the iconic London to Brighton Cycle Ride and join the Heart Valve Voice cycle team! Join our team of clinicians, patients and funders, and take on the city to coast route to raise vital funds for people living with heart valve disease.

Find more information and the sign-up link here: https://heartvalvevoice.com/london-to-brighton-cycle-ride/

Our modelling shows an optimal aortic stenosis pathway could reduce overall system costs by 51.7% (around £35,000 per pa...
26/08/2026

Our modelling shows an optimal aortic stenosis pathway could reduce overall system costs by 51.7% (around £35,000 per patient) through fewer emergency admissions and shorter hospital stays.

Better care isn't just better for patients—it's better for the NHS.

Read more:

https://heartvalvevoice.com/wp-content/uploads/2026/08/Elsies-Journey-sSAS-FINAL-200826.pdf

Our new report shows that improving care for people with aortic stenosis doesn't require new pathways—it requires making...
26/08/2026

Our new report shows that improving care for people with aortic stenosis doesn't require new pathways—it requires making existing pathways work better.

Earlier diagnosis.
Faster treatment.
Better outcomes.

Read the report:
https://ow.ly/vnQg50ZFmQr

We're launching one of the most important reports Heart Valve Voice has ever produced.Elsie's Journey: The Optimal Aorti...
25/08/2026

We're launching one of the most important reports Heart Valve Voice has ever produced.
Elsie's Journey: The Optimal Aortic Stenosis Pathway sets out how earlier diagnosis, faster referral and timely treatment can save lives and help the NHS work more effectively.
Watch this space.

Brenda Walker was an indefatigable champion for heart valve disease patients. After receiving life-saving treatment for ...
24/08/2026

Brenda Walker was an indefatigable champion for heart valve disease patients. After receiving life-saving treatment for aortic stenosis, she went on to live well into her 90s.

In tribute to Brenda and her remarkable legacy, we’re running the Brenda Walker Challenge. We’re asking people to donate just £1 to create a virtual mile in her memory.

Together, let’s see how many miles we can create in Brenda’s honour.

You can read all about it and donate here:

https://heartvalvevoice.com/the-brenda-walker-challenge/

Last few places for the London to Brighton Bike Ride!Ready to take on an unforgettable challenge while helping people af...
20/08/2026

Last few places for the London to Brighton Bike Ride!

Ready to take on an unforgettable challenge while helping people affected by heart valve disease?

We have just a few places remaining for the London to Brighton Bike Ride. Join our team of clinicians, patients and funders, and take on the city to coast route to raise vital funds for people living with heart valve disease.

Whether you’re a seasoned cyclist or looking for a brilliant new challenge, we’d love to have you riding with us.

Click here to find out more: https://heartvalvevoice.com/london-to-brighton-cycle-ride/

Livvy Gosney was diagnosed with heart valve disease in 2015.After six years facing delays to treatment due to Covid, Liv...
19/08/2026

Livvy Gosney was diagnosed with heart valve disease in 2015.

After six years facing delays to treatment due to Covid, Livvy was finally called in to receive her life-saving treatment in 2021.

This is her journey through that life-changing experience and Livvy talks about her journey to treatment and documents the highs and lows of life after open-heart surgery.

We’re pleased to say that she doing really well and enjoying life with her family and keeps in touch with the charity.

https://www.youtube.com/watch?v=KgDEuYZ2z7s

Livvy Gosney was diagnosed with heart valve disease in 2015 after h...

Address

Royce Road
Manchester
M155BJ

Alerts

Be the first to know and let us send you an email when Heart Valve Voice posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Heart Valve Voice:

Shortcuts

Share