Help Our Ava

Please help our beautiful daughter, Ava was diagnosed with Stage 4 Neuroblastoma in February 2023

20/08/2025

Ava's 1st day of Primary ❤️

04/02/2025

Today is World Cancer Day 🌎

It has been 2 years since Ava's diagnosis of Neuroblastoma, She has fought it and remains in remission, she is still fighting to keep it away.

Thinking of everyone whose lives have been affected by this horrible disease, the ones who current fighting and sadly those who are no longer with us 🎗

05/01/2025

💫Happy New Year Everyone💫

At the beginning of December we headed back to New York for vaccine number 5, unfortunately Ava was feeling a bit under the weather and only got worse while we were there, we took her to MSK where they ran blood tests which confirmed she was fighting a respiratory infection.

We tried to do some Christmas sightseeing and enjoy the atmosphere, but the weather was very cold and Ava was struggling so we ended up spending a lot of time indoors this visit. We managed to get some pictures of her during her moments of happiness while we were there.

Once home from New York and Ava had recovered, she celebrated her 5th birthday 🎂 followed by a trip to RHC Glasgow for her to “Ring the Bell” 🔔 signalling the end of her NHS treatment.
She still has 5 more visits to New York over the next 2 years.

We had a lovely Christmas and hope you all did too.
Next up is a trip to London next week for a nuclear MIBG scan, as always we very anxious at scan time and always will be, but we will always remain positive.

Thanks again to everyone and all the best for 2025💛

01/10/2024

Hi Everyone
If any businesses have one of Ava's charity tin's and would like it collected, please let us know and we will arrange for it to be picked up.
Thank you.💛

15/08/2024

New York Visit 1 Complete 😀

Hi everyone, for the past month we have been in New York for the start of Ava’s treatment.
It was a bit rushed organising after receiving her last scan results and having her Hickmann line removed a few days before we were flying but we made it and all went well.

The day after arriving we had our 1st consultation with Ava’s Dr at MSK, they explained everything to us regards the vaccine and which arm of the trial she would be on.
The following day she had to have her bone marrow tests done which, at MSK is done differently, they sample from 4 points and, as you can imagine, she was a bit sore after this.

Ava then started the vaccine trial the following week, receiving one dose each week for 3 weeks, she also has to take an oral medication each day for 2 weeks on and off for 6 the next months as part of the trial.
So far everything has gone well with some minor side effects to the vaccine itself, mainly some pain at the injection site, redness and swelling but they subsided after 48hrs. Nothing compared to the treatment and side effects she has endured to this point.

Over the last 18 months we have certainly had some bumps in the road with the lasting side effects to Ava’s overall and continuing treatment, this last month has been no exception. Ava routinely gets peripheral neuropathy pain (nerve pains), fatigue and behavioural/emotional challenges. However, we have tried our best to make positive memories along the way and make the most of our time in New York to allow the kids to look back and remember their favourite bits; “days in the big park”, “Dinosaurs in the museum”, ”Being a princess”, “Swimming at camp”.

As always, thank you everyone for your continued support as this trip and future treatments wouldn’t have been possible without it. ❤

03/07/2024

We have some amazing news to share.
Ava's latest scans confirmed she is in remission and has beat cancer ☺️

It still hard to think that 18months ago, we had the devistating news that Ava had a 50/50 chance of beating her cancer, but she has absolutely smashed it and done us all so proud.
She is has been amazing throughout the full treatment process.
Now our focus turns to keeping her in remission.

We are currently speaking with MSK and Ava is now enrolled in the trial with her first of many visits now planned.

Again, we would like to say that we are forever grateful for all the support we have had and allowing us this opportunity for Ava to receive this additional treatment which will hopefully prevent her cancer from ever returning.

We cant thank you all enough. Its means so much to us as a family and we are so grateful. ❤️💛

Address

Mauchline

Website

https://gofund.me/f4d60160

Alerts

Be the first to know and let us send you an email when Help Our Ava posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Help Our Ava:

Want your business to be the top-listed health & beauty business in Mauchline?